posted
I live outside Scottsdale. I'm 53 and tested positive for Lyme 2.5 years ago. Since the average Physician seems to be unable to tell the difference between arthritis and lyme, I've been through four sessions of antibiotics "just in case". No one (three MDs or two Rheumatologists) can answer the "how do I know it's gone" question.
As i write this, my knee is in a soft cast because, literally overnight, I could not walk dur to pain and stiffness. Being a consultant, I'm on the road and was forced to the local ER. Naturally, as they took my information, I informed them of my Lyme history. They then added a Lyme titer to my bloodwork. I asked the ER Dr. what the purpose was, since I can guarentee that it will come back positive. She gave an explanation that they can now tell if its recurent or chronic Lyme. Either way, because the Titer will take 5 days, my only treatment is the cast and painkillers. Given the fact I still have no idea what my problem really is, it's time to find a real specialist in my area.
Thanks in advance for anyone who can help.
Cheers
Posts: 1 | From Earth | Registered: Nov 2007
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As I understand it, the way most LLMDs know Lyme is gone is when the symptoms are gone and stay away. Since you are having symptoms that could be from Lyme, it's very possible that your Lyme was never eradicated, or that you also had a co-infection that wasn't treated.
If you haven't already, please print out Dr. Burrascano's "Diagnostic Hints and Treatment Guidelines" at the Ilads website: http://ilads.org/guidelines.html
I hope that you can see an LLMD soon. In the meantime, take care of yourself!!
--Hillary
edited to correct webpages
Posts: 90 | From Sunny Southern Cali | Registered: Sep 2006
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
TRY THIS WEBSITE:
It allows you to search for LLMD's (Lyme Literate Medical Doctors) by entering your zip code.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
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