LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » I was given Lyme. I am trying to make Lymenade:) HELP ME FIND A CA SPECIALIST

 - UBBFriend: Email this page to someone!    
Author Topic: I was given Lyme. I am trying to make Lymenade:) HELP ME FIND A CA SPECIALIST
Lymenade
Junior Member
Member # 14069

Icon 4 posted      Profile for Lymenade   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
In 2001 I received an academic full scholarship to college and began pre-med/ Neuroscience studies. I walked on to the college rugby, soccer and baseball teams at 2 D1 universities. I was sharp, athletic, and on top of the world. I became very ill and depressed before the second semester started. At this time I had a 4.0 GPA.

I have had Lyme disease and/or its effects since January of 2002. It started with severe joint pain and mood swings. This was my first year of college and I was 165 lbs at 3.5% competitive snowboarding body fat.

By January of 2003 I was 128 lbs and very ill. I had suffered vertigo, depression, mania, loss of appetite, and extreme joint pain with redness from my elbow half way up to my shoulder. I attempted suicide this year by taking 36 Valium with alcohol. I was severely frustrated with my condition and state of mind and no sign of any help.

In December of 2004 I was diagnosed with Lyme disease by a doctor in Albuquerque NM based on an EQUIVOCAL test for Lyme. I was treated for 6 weeks with Doxycycline 500mg/day. After this period I retested NEGATIVE for Lyme. My joints had improved but pain and redness was still present. My depression was still strong.

In 2005 I was hospitalized for visual hallucinations, and I was admitted in a psychotic and paranoid state. I was placed on Seroquel and Depakote. I couldn't handle the drowsiness and the idea of "needing" these drugs to stop the hallucinations. I left the hospital and immediately stopped the medication. Since this time I have suffered violent nightmares, grotesque images when closing my eyes, dreams of people mutilating eachother, and extreme paranoia of people. I have

In 2007 (this year) I now run a successful fitness business that earns over 500k per year. I have everything I could want or need, except good health. I have had some kind of illness at lease once per month for the past 5 years. This month I have had severe abdomen pains, moments of painful heartbeats, paranoia, swollen lymph nodes, abnormal LDH, granulocytes, platelets, high red blood cells, high white blood cells, and joint pain again.

MY QUESTIONS

Did I really have Lyme disease?

Who can help me and where should I start?

Is all of this recent stuff due to Lyme disease? Could I be in relapse?

It seems like most of my symptoms are neurological. Is this a separate set of issues or related?

MY HISTORY OF SYMPTOMS SUMMARIZED IN CHRONOLOGICAL ORDER

joint pain
intense fatigue
loss of appetite
social withdrawal
depression
weight loss
vertigo
hallucinations
paranoia
mania/depression (very rapid cycles)
abdomen pain
chest pain
swollen lymph nodes

Posts: 2 | From Orange County CA | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hillaryb
Member
Member # 10049

Icon 1 posted      Profile for hillaryb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't answer all of your questions, but have you printed out & read Dr. Burrascano's "Diagnostic Hints and Treatment Guidelines" at the Ilads website? There's tons if great info, plus a checklist of many symptoms of Lyme:
http://ilads.org/guidelines.html

It's very possible that you never killed all of the Lyme bacteria, and that your neurological symptoms are because of a relapse. It's also possible that you have an untreated co-infection or virus.

For help finding a doctor near you, go to the California Lyme group on Yahoo:

http://health.groups.yahoo.com/group/CaliforniaLyme/messages

There are a lot of people from there from SoCal. Unfortunately, there aren't many LLMDs down here. I know of 1 in San Diego and 1 in Ventura. I have seen the doctor in San Diego & they might be good for you since you are very interested in health & fitness. PM me for more info.

Good luck finding answers!!!

edited to add: PM means "private message." To send one, click on the little icon of two people & an envelope.

Posts: 90 | From Sunny Southern Cali | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
welcome lemon! i sent you my newbie package now by PRIVATE MESSAGE!

to read PMs, go to top of left hand corner under HELLO by flashing light or in my profile!


you need to get a western blot igm and igg test drawn and sent to IGENEX, CALIF. check my detailed info on that around pages 10-15.


in there are lists of symptoms by body sections, etc. look it over good!

we all get neurological the longer we have had this.

glad you saw my separate post to you; tried to catch you so you would get answers immediately vs. witing 1-2 for them! [Wink]

IP: Logged | Report this post to a Moderator
sfcharm
LymeNet Contributor
Member # 9392

Icon 1 posted      Profile for sfcharm   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 

Posts: 281 | From san francisco | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
jblral
LymeNet Contributor
Member # 8836

Icon 1 posted      Profile for jblral     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you joined the California Lyme yahoo group? If not, it's a good way to find support groups and docs in your area.

http://health.groups.yahoo.com/group/CaliforniaLyme/

Posts: 991 | From California | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 4 posted            Edit/Delete Post   Reply With Quote 
lemon,

just want to make sure of my newbie package that you saw on page 1 about the 24/7 1-800 SUICIDE HOTLINE since you are having so many bizarre things happening to you and you mentioned your earlier suicide attempt. we are about you!!!
[group hug] [kiss]

IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by hillaryb:
It's very possible that you never killed all of the Lyme bacteria, and that your neurological symptoms are because of a relapse. It's also possible that you have an untreated co-infection or virus.

Absolutely! Don't let a negative test stop you from proper treatment. Lyme is serious business. I doubt you were ever "free" of it.

You still had symptoms when you stopped the meds. You need to take antibiotics until you are symptom free for at least 2 months.

Do you need some names of LLMD's in your area?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.