posted
I recently received a false negative on my lyme titer.
I have been very sick since December with heart palpitations and many neurological problems including seizures.
I have had the severe headaches and very severe neck pain and full body aches.
My eye sight has been changing and I am always tired and dizzy.
I was being tested for MS and heart disease to come up with nothing.
10 days ago I showed a bulls eye on my leg which has all but disappeared.
My doctor started me with a 20 day course of doxycycline ay 100mg twice a day.
Since my lyme titer was neg she wants to test me again in 3 months, but I am worried I am being under treated this late in the game.
I have been told you can get reoccuring rashes and I have been sick with stage 3 symptoms since December.
Please help me find a specialist since the place in Phillipsburg NJ is no longer accepting patients.
I'd prefer to not go to Philly if I do not have to.
I have been out of work 5 months due to this and I am only just starting to be bouncing back (before the bullseye and antibotics, but have since relapsed).
Thank you so much. Tara
[ 17. May 2008, 01:56 PM: Message edited by: Tara Hulko ]
Posts: 4 | From Tamaqua, Pa | Registered: May 2008
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bettyg
Unregistered
posted
welcome tara; so glad you found us.
i sent you a private message w/penn. llmds. it can be found in my profile or on left side under hello.
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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