posted
Already told my story over at "gneeral support"....
My now 5 yr. old son first had his rash Sept '06 (classic signs, flu symptoms, bullseye rash). Pedi misdiagnosed him. Wasn't diagnosed until May '07, presented with a swollen knee, so bad he could't walk. Tested positive. After 2 rounds of antibiotics, hoped it was gone. It's not, finding out Dr's can't agree on what's happening with him.
He has nausea/vomiting many times a week for almost 2 years now, (was sent to a gastro) no answers there after tests, started him on prilosec which really didn't help. About a month ago, has started with visual hallucinations & "tingling headaches". Pedi sent us to another "ologist" A pediatric neurologist. First thing out of his mouth is...."I doubt this is the result of lyme". He said visual hallucinations/disturbances are almost unheard of in lyme. My son passed the neuro physical and after many questions, states that anxiety is usually the reason these hallucinations occur. (My son is not an anxious child, quite the oppostie actually). But in the next breath he said, "I think after meeting *M, I think he could tolerate an MMR wihtout sedation. Doesn't appear anxious". Neurologist also mentioned, "could just be a phase".
It's not a phase, hard to have Dr's believe a little 5 yr old. Only good thing from the appt is appt.for an EEG and MRI.
Would like to bring him for an appt with Dr. J in New Haven CT, not sure we can afford him if our insurance doesn't pay.
Live in MA, anyone have any other good LLMD's, any and all suggestions welcomed. Need to get this little one into treatment asap.
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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bettyg
Unregistered
posted
breaking up your really long paragraph we neuro patients can NOT comprehend or read... please have shorter ones ok!! we thank you xox
quote:Originally posted by s0ngbird1962:
[QB] Already told my story over at "general support"....
My now 5 yr. old son first had his rash Sept '06 (classic signs, flu symptoms, bullseye rash). Pedi misdiagnosed him.
Wasn't diagnosed until May '07, presented with a swollen knee, so bad he could't walk. Tested positive.
After 2 rounds of antibiotics, hoped it was gone. It's not, finding out Dr's can't agree on what's happening with him.
He has nausea/vomiting many times a week for almost 2 years now, (was sent to a gastro) no answers there after tests, started him on prilosec which really didn't help.
About a month ago, has started with visual hallucinations & "tingling headaches".
Pedi sent us to another "ologist" A pediatric neurologist.
First thing out of his mouth is...."I doubt this is the result of lyme".
He said visual hallucinations/disturbances are almost unheard of in lyme.
My son passed the neuro physical and after many questions, states that anxiety is usually the reason these hallucinations occur.
(My son is not an anxious child, quite the oppostie actually).
But in the next breath he said, "I think after meeting *M, I think he could tolerate an MMR wihtout sedation. Doesn't appear anxious".
Neurologist also mentioned, "could just be a phase".
It's not a phase, hard to have Dr's believe a little 5 yr old. Only good thing from the appt is appt.for an EEG and MRI.
Would like to bring him for an appt with Dr. J in New Haven CT, not sure we can afford him if our insurance doesn't pay.
Live in MA, anyone have any other good LLMD's, any and all suggestions welcomed. *********************************
Need to get this little one into treatment asap.
mom, check my profile for kids llmds in CONN, NJ, AND NY. NO KIDS LLMDS IN MASS. *****************************************
also, i have info galore on kids/lyme in my newbie package link below the line; check it out ok to help prepare you!!
Another thing the pedi neurologist said was the only way they could tell it was lyme was to give him a lumbar puncture/spinal tap. ********************************
Didn't trust this Dr. after telling me that these symptoms don't occur with late stage lyme, and after suggesting it could be a phase.
Certainly not intrusting my son to him, for such an painful procedure.
Anyone else have this suggested to them? Wondered about the necessity of this test, as he still test postive on lyme tests....
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time.
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