trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I am trying to make contact with ANYONE who has had a psoas bladder hitch and ureteral reimplantation. This surgery will be my next and hopefully last one.
If you know of ANYONE who has had this surgery please let me know. Or if you know of anyway I can find anyone who has.
I have posted on all the endo boards, the hysterectomy boards and here. This surgery is related to a botched ovary removal which has created a spiraling downhill avalanche of 6 surgeries in 6 months.
There are no working internet urological support groups that I can find.
I will ask the doc for referrals to past patients, but not sure if this is feasible. thanks! trails PS--this is not particularly Lyme related except that the endo made it harder to get at the ovary and endo can be caused by lyme. so in a round about way--it is lyme related.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Welcome back Trails ! You are a role model for all you have gone through.
I cant help you, I am sorry, but want to bump this up in case someone knows someone who may help you.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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posted
Hi Trails. Don't you just love learning anatomy the hard way (first hand)!!!
Seriously though, can't really help except to say that when hubby's low back pain started last summer the bodywork therapist was initially convinced that the psoas muscle was the culprit.
Not real sure where we are at regarding that right now. Seems like there is some sort of connection between hubby's back muscle pain and all his G.I. symptoms including the paralytic ileus.
Was told that the psoas muscle is the longest strongest muscle in the body. Goes from the spine in the back to the hamstrings in the front. If it is tight it can put pressure on many different internal organs.
Actually you have 2 psoas muscles -- right and left. Theory is that one of hubby's legs is longer than the other and that caused an imbalance in the psoas muscles and caused his scoliosis.
Therapist can relax hubby's psoas muscle fairly quickly and easily, but adjustments usually only hold for a couple of hours or even less.
From my perspective I would think that backache would be a possible complication of your surgical procedure -- or at least until it heals and the psoas muscles can be rebalanced. I am assuming that only 1 of the 2 psoas muscles is involved, but that is just a guess on my part.
There are some different exercises online that are supposed to help relax the psoas muscles -- hubby wasn't very successful with these, but he didn't stick to them for long as so many different things were going on.
Good luck.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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bettyg
Unregistered
posted
trails, i applaud you for using every conceivable board/link to find others who had had this surgery!! i hope you have better responses than i did when i posted 1 wk. ago requesting iowa hip surgeon.
glad, you're back on board! my heart just goes out to you/partner for all you have endured and another last to follow.
you did other thing i was going to suggest; ask that your dr. contact one of their former patients so they can make contactw/you!
good luck one and for all a final solution!
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
thanks for the bump up northstar! and lymetoo!
Bea---you are so knowledgable! yes you are correct, there are two psoas muscles and my bladder would be sutured to my right psoas muscle.
I alsready have right hip problems. If i sit for extended periods of time I cant move my legs/hips. I gave up backpacking YEARS ago because ANY weight on my hips causes LOTS of pain. hip issues are my longest running lyme issue but not the worst, by far. Still this is rather unerving to know that it might effect my hips! and BTW--my right hip is worse than left by far....go figure. :rollseyes:
I will find out more on thursday. your reply has helped me to navagate some of the tricky parts of this. THANK YOU!
I replied on another post about the uretal stent I had. But I'll repeat it again in case you didn't get a chance to read it.
I had my ovaries removed in 1994, when I came home was in agony for a week.
Finally went back to the ER, they did a IVP and found there was a blockage in the ureter.
I had to have the original incision opened up again.
The DUCK sewed my ureter. They had to implant the ureter in a different spot. I had a stent in for about 3months. They removed it with a cystoscope. That wasn't bad.
I don't know where some of these ducks get their licence. Oh well he got his, he died of a
massive heart attack on the ski slopes. Oh that wasn't nice of me to say, oh well I said it
Hope everything will be okay for you, enough surgery already
Take care your friend Cassie
-------------------- Posts: 564 | From Toronto Ontario Canada | Registered: Jan 2002
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posted
Trails, You did read the post, so ignore this one just kidding
I went to a lawyer when this happened to me. He said unless there is permanent damage I'm wasting my time and money.
Take care your friend cassie
-------------------- Posts: 564 | From Toronto Ontario Canada | Registered: Jan 2002
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
cassie did they have to move your bladder up and do a boari flap or psoas hitch? thanks for your continued care and concern and sharing of your own personal hell! Posts: 1950 | From New Mexico | Registered: Sep 2001
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They had to implant the ureter in a different spot. I had a stent in for about 3months. They removed it with a cystoscope. That wasn't bad.![[bonk]](graemlins/bonk.gif)
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