posted
After reading many posts I'm going to start with...Dear Friends,
I have been ill for 25 years, diagnosed with fibromyalgia, then chronic fatigue syndrome, then maybe connective tissue disorder.
Now I realize it may have been Lyme all along and have an appt with an excellent infectious disease specialist.
She already told me blood tests, Western Blot, will likely be negative. I don't know what the next step is after we get the results, so I'm just looking for input of others experience.
What I'm wondering is, for those of you who had lyme disease for many years before diagnosis, have you discovered what the best treatments are, and do people remain healthy afterwards?
I will not consider anything anyone writes to be medical advice. =)
In the way of sharing, about 18 years ago when my heart started acting up and I became very ill I made a great discovery. Taking a supplement called Brewers Yeast helped me considerably.
Inexpensive, but I switched from pills to the granular, because it is more potent. Mixed it in milk, and that took some getting used to. Not so bad in juice.
I also cut sugar out of my diet at the same time. Perhaps those tips may help others. And take acidophilus if you do Brewers Yeast to avoid overgrowth of yeast/ yeast infection.
Found the Brewers Yeast idea in a book by nutritionis Adelle Davis titled "Lets Get Well". Great Gal, way ahead of her time.
I will keep you all in prayer, and appreciate any ideas you care to share. Blessings!
-------------------- Wishing You Showers Of Blessings! Lyme since Fall 1983 = Diagnosed Summer 2008 IV Rocephin 7 weeks Stopped due to drug fever Now doxycycline "For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11 Posts: 430 | From Sunny South | Registered: Jul 2008
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bettyg
Unregistered
posted
welcome melody; so glad you found us!!!
yes, we've all been misdiagnosed; me for 34 years out of my 38.5 years with chronic lyme.
please send me a PRIVATE MESSAGE, IT'S 2 PEOPLE STANDING TOGETHER, and in it; please show full name of this infectious dr., and city/state!!! ************************************************
sorry for you to learn that INFECTIOUS DRS. DO NOT BELIEVE IN CHRONIC; THEY TREAT FOR LESS THAN 3 WEEKS AND "YOU ARE CURED"!
you want to go to a LLMD, LYME LITERATE MD, only; someone who BELIEVES IN CHRONIC LYME;
and who treats ILADS, intl. lyme associated diseases society.
if you don't learn anything else from coming here; those are the 2 most important things to remember to get you INTO REMISSION!
we'd rather have you spend your out of pocket money on a llmd vs. someone who doesn't treat LYME AND/OR CO-INFECTIONS...other diseases the ticks have!
western blot igm and iggs are best drawn and sent to ONLY these 5 lyme diagnostic labs:
igenex, calif; mdl, nj; fry lab, arizona; stoneybrooke, nyc; and central florida lab....
please check out my newbie links found below! now it's time to read, read, and read! best wishes on getting your health back!! *****************************************
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Thanks for your kind reply, and I'm sorry I was not clearer in my original post.
I am confident this DR. is Lyme Literate. Treats with IV first followed up by long term oral abx. Also, when a friend was ill in hospital and no DRs could figure it out, this DR diagnosed Lyme through spinal fluid. Smart Doctor.
Will send you a pm. Wishing you blessings.
-------------------- Wishing You Showers Of Blessings! Lyme since Fall 1983 = Diagnosed Summer 2008 IV Rocephin 7 weeks Stopped due to drug fever Now doxycycline "For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11 Posts: 430 | From Sunny South | Registered: Jul 2008
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