posted
Lyme sucks. It's taken me this long to be able to post again as I couldn't figure out passwords and how to access the site again.
I have been keeping up with the posts and can't tell you how much you all have helped me along this quicksand journey of chronic lyme.
I wanted to let you know that although the past year has been horrific - one good thing, a miracle really, has happened to me.
I have just been approved for SSDI after only 3 months!!! It can happen and I wanted you all to know that the links on disability preparation and letters from loved ones and Senatorial intervention moves the process along so much faster.
I am blessed but still ill........lost my high paying job due to this illness, went through most of my savings in the last year and then this miracle happened!
SSDI can't replace a real livelihood, and I will likely have to sell my home soon.......but I'm feeling positive again.....and haven't for a long time.
Bless you all.....hope to catch up with my old friends and new friends again soon.
posted
Azure and Meg.......thanks so much for welcoming me back.
I too am astounded how quickly my appeal was granted! So sick for so long I lost my career as I just couldn't do it anymore due to lyme. I was traveling the world on business and crawling through airports at my darkest points. But kept going like most of us do...........until we crash.
Thank God I got a brain spect scan done which showed my brain had been affected by lyme........and that when I contacted my State Senator's office in PA, they rallied for me.
Takes a lot of documentation, but I've had years of physical problems. Docs backed me up and husband and friends wrote letters for me......saying who I was before vs. who I am now.
It's surely a miracle that SSDI now recognizes chronic lyme as a true disability.
We're getting there all.........don't lose hope!
Posts: 867 | From PA | Registered: Jan 2006
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bettyg
Unregistered
posted
HWW, WHOOPIE!!! YOU WERE APPROVED FOR SSDI !!!
what were you approved for? lyme?? hard to get!
i'm glad my ssdi info and minoucat's plus conniemc's special forms helped you get it in 3 months!!! unheard of...
may i ask, what did you do in your "former" non-lyme life?
so HAPPY YOU HAVE ONE POSITIVE THING GOING, and of course, US...LYMENET FRIENDS!!
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hey there,
I remember you! Welcome back :-) Glad that you won SSDI and glad you can post again.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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It really floored me when the award came through right after my SSDI physical.
The doc was so nice and it turns out he knew my primary who first diagnosed me. He told me she is highly respected and was tender with me during the physical.
The brain spect definitely helped.
It's funny, I think I was in the right place at the right time. My Senator's office worked with me to get I think called "congressional interest" noted on my file.
And the adjudicator at SSDI was super to me. In fact, she told me right before we spoke they had a meeting about lyme and said it now is recognized so I shouldn't fear immediate rejection.
Betty....I really don't know what I was approved for in the end. I put on my application all of my ailments and diagnoses before the lyme id.
In my past life, I was a VP for a global marketing services firm. Traveling was pretty constant and always stressful. I hid my disease for years before I finally couldn't anymore.
Thanks so much for all of the support you shared!
Posts: 867 | From PA | Registered: Jan 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Welcome Back!
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Welcome back, I have been debating more than ever applying for ssi, but i cant take off time to do it. If that makes sense.
Im glad you got it so fast. Sorry last year has been so bad for you. This lyme thing, I dont know, Hell on earth? It makes ya wonder how much one can take!
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