You can personally rate and review the movie at the bottom of page..(Where it says "Write a review")
I hope their servers have a lot of free space for comments...Joe
Posts: 249 | From Northern NJ | Registered: Jul 2005
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
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I wrote to Jill from "Real Housewives of NYC" at her [email protected] email and asked her to consider going to see this wonderful documentary film.
I had previously written to her about Lyme since her daughter has a form of arthritis and they spend alot of time in the Hamptons.
She responded via her Ask Jill online column(to my first email).
I'm hoping she might respond again and agree to see the film.
She would be a good person to bring attention to our cause.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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bettyg
Unregistered
posted
i posted this here, but i screwed up again; i'm getting so confused on POST REPLY and start a new post; all day long i go thru this! grrrrrr
June 19th, 2009 1:19 am Rating: ***** UNDER OUR SKIN LYME DOCUMENTARY IS A MUST SEE! This is an outstanding documentary on LYME disease and CO-INFECTIONS meaning other serious illnesses the ticks carry: bartonella, babsiosa, erlichia, rocky mountain spotted fever, & many more!
It shows the plight that the largest majority of us have faced ... NOT getting accurately diagnosed for DECADES of our life and the huge loss of QUALITY OF LIFE.
I've had chronic lyme for 39.5 years; 34.5 yrs. MISDIAGNOSED BY 40-50 MDS! UNACCEPTABLE !!
I didn't know until I was correctly diagnosed clinically by my primary dr of 27 years who order my western blot igm and igg blood test.
I had it sent directly to our no. 1 lyme/tick diagnostic lab in USA: IGENEX in Palo Alto, Calif.
call to have them send you their western blot AND/OR co-infection blood kit testing for the PART of the USA you are from!
Their required form is in the paperwork that comes to your home. Dr. must sign, date, & show a diagnosis code why having this test done for insurance purposes. It's $200 prepay unless you are on medicare.
300 other illnesses MIMIC lyme: MS, ALS, Alzheimer's/dementia, bell's palsy, fibromyalgia pain, chronic fatigue, most mental illnesses begin by a tick bite, & many others!
Iowa does NOT have a full-time chronic LLMD, lyme literate md, so I had to go out of state to S. Minn. NO, IT WASN'T MAYO CLINIC; they are NOT top notch on CHRONIC LYME/co-infections. Too many of us have spent up to $100,000 on having tests done there & not received a correct diagnosis.
Our health insurance companies REFUSE to pay for our lyme appts., meds, labs, testings, IV ANTIBIOTICS which can run from $5 - $10,000/MONTH OUT OF POCKET for us!!
We have lost:
. our jobs; health insurance; divorced by spouse; lost custody of kids; family/friends who do NOT believe this is NOT IN OUR HEADS; our homes; bankruptcy; and at this time of losing EVERYTHING and nowhere to go or turn too.. SUICIDE!
This film have a lyme memorial in Iowa, actually the town where I was born, and 7 are memorialized.
We have a lyme bill in congress, HR 1179, lyme & vector-borne illness, been there 10.5 years.
The IDSA, infectious drs., have lobbied congress and specifically NJ chair Frank Pallone, to NOT schedule this bill to be placed on their agenda to BE DISCUSSED for the 1st time in 10.5 years!
Medical community has given him lobbyist money of over $500,000 recently!!
IDSA/infectious drs. have patents, grants, and many other "conflicts of interest" and are 24/7 working to STOP HR 1179 from being heard in congress again.
To all, please call/email your state's federal house reps and ask that they CO-SPONSOR 1179!!
We are so thankful for our chronic llmds who have been risking their medical licenses to treat us long-term antibiotics vs. infectious drs. ONE pill to 3 wks. MAX and say "you're cured"! HOG WASH BIG TIME!
They don't believe in chronic lyme; they undertreat patients and they become CHRONIC whether they want to or not.
Then they are thrown into this LYME WAR CONTROVERSY that we patients never asked for! We are FIGHTING FOR OUR LIVES!
For those of you who have a lyme/co-infection family or friend with this debilitating disease, please take them to this, and gain KNOWLEDGE AND EDUCATION of what has happened in the medical community.
Follow the money; that's why we are not getting CURED PROMPTLY and in cases like me .. into a REMISSION wanting quality of life.
We lyme/co-infection patients wanted to be treated fairly like cancer, HIV, 7 AIDS patients where their health insurances pay "their fair share" and not use the excuse of "experiemental therapy"!
Lyme/co-infections are in all 50 states; don't kid yourself and INTERNATIONALLY! This season's crop is the worst yet!
Look at this link showing all 50 states statistics of lyme reported to CDC:
1980 - Jan. 2008 ...all 50 states broken down by years!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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