posted
IDSA hearing - message from Tina Garcia of L.E.A.P. 07/29/09 18:13 Filed in: Lyme Disease in the news On the eve of the hearing in DC, patient advocate and panel member Tina Garcia sends us this message. I will be interviewing Tina very soon, so watch this blog - it will be posted for free to anyone who wants to hear directly from her what the hearing was like. Please feel free to forward the following note to any other Lyme groups who might be interested:
I just wanted to send out a huge thank you to all on Eurolyme and other groups who have shown me so much support! I am here in DC anxious to attend the Hearing!
I thought I'd write to let everyone know that the lime green ribbon campaign is being done in conjunction with media coverage of the Hearing and it is not a demonstration of any sort.
It is a way to get more media attention at the Marriott across from the Ronald Reagan Building, where the Hearing will be held. I am here and watching it all unfold and I assure you that it is an awareness campaign and not a demonstration. It is defintely not a campaign that will negatively effect the Hearing or offend the Review Panel in any way.
This is a very critical moment for the Lyme community, patients and docs. I would ask everyone to please focus strongly on the bond that we all share in this community and muster all the strength and courage we can to unite as a community. We must rise above the disagreements and conflicts that occur between advocacy groups and form a cohesive community of patients and doctors.
We must not allow our actions to be dictated by reactions to efforts that might make us stray from the path we are on. Let's unite and work together, for there is strength in numbers. United we stand -- divided we fall. We can stll hold on to the uniqueness of each of our advocacy groups, but at this crucial hour, we must be willing to work together and appreciate each other's uniqueness and admire each other's strengths and efforts to make a difference for all.
PLEASE FORWARD THIS TO ALL GROUPS AND LISTS AND DISCUSSIONS ASAP. I AM PRESSED FOR TIME, SO IF YOU CAN ALL FORWARD THIS MESSAGE FAR AND WIDE, I WOULD TRULY APPRECIATE IT! THANK YOU!
In Solidarity,
Tina J. Garcia Lyme Education Awareness Program L.E.A.P. Arizona www.leaparizona. com P.O. Box 2654 Mesa, Arizona USA 480-219-6869 Phone 480-830-2788 Fax
-------------------- "SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:
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tina did an outstanding job today!! HUGS/KISSES TINA!
i was 1 of many who really had our doubts about YOU representing all of us, but you gave a great presentation.
you answered well on Q/A also ... referring to blumenthal.
thx lymelearned for posting this here; hadn't seen it anywhere!
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I missed your speech but hope to watch it via the archives somewhere someplace.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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bettyg
Unregistered
posted
kam,
tina's speech is posted somewhere ...
i think it might be in ACTIVISM; dilly started a post with ALL various things happening with 7-30 idsa/ilads dc lyme conference yesterday; MIGHT be there i saw it.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks Betty
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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