map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
In Louisville, KY today we celebrated our 1st Lyme Support meeting. Those in attendance were Rene, myself, Sick Tick and LightAtTheEnd. We're sorry that Pinelady and Mel couldn't make it.
It is really cool when you can put a face with someone named Sick Tick. It was really nice that we were able to convince Rene to stay and chat with us for awhile. Inside joke there on Rene.
One must attend our meetings to understand our jokes. It was fun. More meetings to be announced. We are looking at sometime in the middle of May.
May is Lyme Awareness Month. The four of us will be doing everything we can do to reach out to people in this KY/IN area to let others know about our support group.
Plans were made to have the Lymenet support group site updated with group information. We will be seeking help from others on this board that are part of a lyme support group in other areas of the country.
In my 10+ yrs online in this support group I've ran across hundreds of people in this area who have/had no where to turn. LLMDs hundreds of miles away? Doctors here that refused to treat them?
We hope this is the beginning of something that can help others and ourselves deal with the TRUTH about Lyme and company.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
It sure made my day. We laughed a lot and had a great time. We tossed around some interesting ideas for the future.
It was fun to meet in person with people I had only known in cyberspace before.
I hope others who are interested will come to our next event.
Light
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Good for you guys! It's hard for people outside of the "main" Lyme tick infested areas to get any kind of grasp on Lyme. Even in the highly endemic areas - people just don't know enough about it.
When I first moved to SC there was a "big" rally right out in front of the capital building here in support of Lyme awareness. I couldn't believe it. In NJ (where I used to live) - I would have never seen anything like that.
One good thing that Gov. Sanford supported. They made a big thing about his infidelity but not about the fact that he supported a Lyme rally right outside the capital...
I don't go one way or the other for politics, usually. I do think small beginnings can make a difference. Keep up the good work!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Congratulations to you all!!!
How wonderful that you can continue to help each other and many others I'm sure!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
I would encourage any of you out there thinking of starting a group to go ahead and try. Map and I both have been sick for sometime and both of us have considered starting groups in the past. So we got together and finally just did it!! The meeting went well and hopefully we're on our way.
Posts: 366 | From Louisville KY. | Registered: Nov 2003
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
I wish i could have been there,maybe next time.
I can't drive when I am so tired.
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Maddog work on finding some Cincy/Dayton folk that can meet up on I71 and drive down together for our next meeting. Someone that doesn't sleep and drive would be better.
I will let you know what date we pick for May meeting. Would love to meet you after all these years.
I used to worry so much about you and your sick job and what was happening after you quit working. It was a sigh of relief when SS kicked in.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I don't know where I would have been without support groups! I will be taking my new found knowledge to my Fibro Group so they too can start looking in a new direction!!!!
Posts: 238 | From Jackson, TN | Registered: Mar 2010
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hm - a face for Sick Tick - how about gender identification?!
Tn, I had a fibro label, so when I came in with Lyme, I contacted as many of the old fibro people I could find. The ones I found knew by then they had Lyme and co's, and I got someone diagnosed!
You can tell your group that - that all fibro people I found, including me, really have Lyme.
Posts: 13116 | From San Francisco | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Sick Tick is a female. I guess she won't mind if I give that info?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Sounds fun, congrats on getting the group started! I think the Louisville group should have a field trip to Kings Island so the Cincy/Dayton people can meet up with you. Roller coasters work on the lymphatic system pretty well .... haha!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Oh, I don't mind at all! Or, I could have answered that question about menopause and such in another thread...that surely would have given me away!
Six, I LOVE your idea!! Field trip!!!!!
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
All of you should join your online state group so you can meet others in your states and we can get more powerful!
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Thank you pm for the KyLyme site info. I've joined and will introduce myself and our group soon.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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Good job!!!![[Big Grin]](biggrin.gif)
![[Wink]](wink.gif)
Roller coasters work on the lymphatic system pretty well .... haha!
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