posted
I can feel normal for about 2-3 hours and suddenly get very fatigue and weak for about few hours and back normal again...
My husband think Im crazy coz no doctor knows whats wrong with me..
Posts: 158 | From pittsburgh | Registered: Aug 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My daughter does that too. Have you been tested for Lyme and company??
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Can help your husband understand Lyme & other tick diseases (co-infections).
It can help you to organize your symptoms for more comprehensive LLMD appointment.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- feelbetter,
your test came back as negative but you had positive bands on both IgG and IgM. You could have lyme. No test can rule it out. Lyme is a clinical diagnosis and the symptoms you describe at your various threads are classic.
Adrenal support can help but if you have infection, it needs to be addressed. A LLMD can assess you with history, symptoms and a clinical diagnosis.
No doctor knows what is wrong with you because none of the doctors you've seen are expert at lyme. They are few and far between but your life is worth finding one. Many links in other threads for you - so that you can get this figured out.
For others, so that they have details for the best reply:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This article explains why no doctor you see can "see" anything. They just don't have the knowledge. This explains WHY you need an ILADS-educated or ILADS-member LLMD: -------------
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - By Virginia Savely, RN, FNP-C May 18, 2007
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
Meet the players
The opponents in the battle over the diagnosis and treatment of Lyme disease are the Infectious Diseases Society of America (IDSA), the largest national organization of general infectious disease specialists, (and)
and the International Lyme and Associated Diseases Society (ILADS), an organization made up of physicians from many specialties. ( www.ilads.org )
ILADS, by contrast, asserts that the illness is much more common than reported, underdiagnosed, easier to contract than previously believed, difficult to diagnose through commercial blood tests, and difficult to treat, (especially)
especially when treatment is delayed because of commonly encountered diagnostic difficulties ( http://www.ilads.org/guidelines.html - Accessed April 6, 2007).
. . .
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
. . .
- Full article at link above, containing MUCH more detailed information. Coinfections also need to be considered. There are many tick-borne infections that travel together.
- see links for "Articles & Presentations" and "Treatment Guidelines" -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This book, by an ILADS member LLMD, holds great information about treatments options and support measures, including those to help adrenal/endocrine function:
posted
I read the description ( I think somewhere on here ) that if you have all these strange symtoms that come and go seemingly by the hour and you start to wonder if you are "losing it" you should continue exploring the lyme angle, especially with a history of tick exposure or a W.B. showing some positive bands.
I have not been "diagnosed" yet but think I may have it and have 2 positive bands.
I have strange symtoms that come and go sometimes on an hourly basis.
Posts: 448 | From minnesota | Registered: Feb 2010
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massman
Unregistered
posted
Clinical diagnosis = history + symptoms.
Lab tests can all show negative at the time + you can still have lyme. It plays hide + seek really well.
Somewhere in Dr. Burrascano's work is a good symptom survey that I have found useful. Keebler may know the link to it.
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