posted
Yesterday was my 46th birthday and I was awoken by a call from my LLMD's office.
My 1st appt. was scheduled for July 30th but they had a last minute cancellation! So, what a birthday gift to get to see my LLMD for the 1st time and two weeks earlier!
The visit went well. He said that I definitely have an autoimmune inflammatory process going on in my body where my body is attacking itself.
He also said that I have signs of early onset arthritis. This was no surprise given the large node that has appeared on my finger joint.
Although he didn't come out and say that I definitely have Lyme, he started me on the protocol for Lyme.
They took many vials of blood ... I thought I would be "empty" before it was over!
The blood will be sent to IGENEX in California ... I had to prepay $260.00 for that.
I was given 5 prescriptions for meds as well as 4 supplements to take daily. The cost of the supplements ALONE was $177.20. THIS IS AN EXPENSIVE ILLNESS!!!
So now, I start taking my meds ... oh, and I am to eat NO GLUTEN and NO DAIRY and he said something else which I couldn't understand the word.
Does anyone here know? Maybe it was another word for dairy? He said GLUTEN and this "word" then later he said dairy.
I need to know what all has GLUTEN and how specific is the "no dairy"? Can I eat eggs at least???
I'm already limited by my diabetes from carbs and sugar so now if it's no dairy or gluten ... what is left?
I think I will start grazing in the yard ... well, only if there are no ticks! :ohmy:
Here are the meds / supplements I am now taking ... if anyone has any input on how and when to take them, please share!
Doryx - 100 mg - twice daily Ceftin - 500 mg - twice daily Nystatin - 1 tab 3x daily Diflucan - as needed for yeast EPA-DHA 6:1 - one daily Cat's Claw - 500 mg. - once daily Transfer Factor LymPlus - once daily Flora 20-14 ultrastrength - once daily
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Well, Happy Birthday. Glad you are on your way to a better year.
You should call the office manager and ask for that other word. It could have been any number of things.
In addition to no gluten and no dairy, he may have said: soy, corn, casein, aspartame, MSG, artificial sweeteners, dyes, additives. He may want you off eggs (but probably not - or if so, as a test).
He may have said: Nightshades (tomatoes, peppers, potatoes, eggplant - google for further details).
Alcohol is to be totally avoided. Caffeine is to be avoided (other than in Green Tea).
There is plenty to eat, plenty. Lists below. Cookbooks to follow.
Yes, you can eat EGGS as they are not really dairy. Eggs are a fantastic food - eat the whole thing, enjoy and let it nourish you.
However, you might want to drop those for week or so just to see if you might be allergic. Then add back one and wait a couple days to eat one again. See how it goes from there to eat up to five days a week. Always take a couple days off any food and a week now and then.
Gluten is in: wheat, spelt, rye, barley, teff, kamut.
You can still eat (in moderation): Millet, Quinoa, Red Quinoa, Brown Rice, Red Rice, Black Rice, Wild Rice, Buckwheat (really a legume), Amaranth.
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTION . . . - 20 pages
Anura V. Kurpad - Institute of Population Health & Clinical Research, Bangalore, India 129. Indian J Med Res 124, August 2006, pp 129-148.
Excerpt:
" . . . In general, the amount of EXTRA protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . ."
- Full article at link (or google the title if it does not go through). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Here are some good cookbooks - adaptations can be easily made with these. ----------------------
CHRISTINA COOKS - Natural health advocate/ chef, Christina Pirello offers her comprehensive guide to living the well life.
Vegan, with a Mediterranean flair. Organic.
She was dx with terminal leukemia in her mid-twenties. Doctors said there was nothing more they could do. Among other things, she learned about complementary medicine and she learned how to cook whole foods. She recovered her health and is now a chef and professor of culinary arts.
She has program on the PBS network "Create" a couple times week. Check your PBS schedule.
To adapt: in the rare dishes where she uses wheat flour, it can just be left out for a fruit medley, etc. Brown Rice Pasta can be substituted (Tinkyada or Trader Joe's).
Regarding her use of brown rice syrup, just leave it out and add a touch of stevia at the end.
From Nina Simonds, the best-selling authority on Asian cooking, comes a ground-breaking cookbook based on the Asian philosophy of food as health-giving. The 200 delectable recipes she offers you not only taste superb but also have specific healing . . . .
. . . With an emphasis on the health-giving properties of herbs and spices, this book gives the latest scientific research as well as references to their tonic properties according to Traditional Chinese Medicine and Ayurveda, the traditional Indian philosophy of medicine. . . .
THE CURE IS IN THE KITCHEN, by Sherry A. Rogers M.D., is the first book to ever spell out in detail what all those people ate day to day who cleared their incurable diseases . . .
look up the site for LUNDBERG FARMS - for other rices that are dark and rich, such as Japonica or Christmas Rice. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Almond Breeze makes a very nice Almond Milk. If you can, get in the refrigerated carton as the shelf boxes are usually lined with at plastic teflon-like substance that may contain the chemical, BPA, best to avoid all plastics.
Almond Breeze - be sure to get the unsweetened (which is not to be confused with the Original (what my shopper mistakenly brought me yesterday, loaded with evaporated cane juice, sigh!)
You can also make your own nut milk if you have a good blender. Walnuts and Pecans, just rinse and add to water, strain and use the grinds for to add to foods.
Almonds, soak overnight in fridge, rinse, add to water, blend and strain.
Be sure to wear ear plugs or protective muffs when around a blender. Everyone should.
Know that being on antibiotics lowers the decibel level at which noise can damage ears. This is very important to know.
LIVER SUPPORT can help. Milk Thistle is best. I was surprised not to see liver support on your supplement list. NAC is also a good one.
Take care, now. -----------------
Oh . . . Some people with certain herpes viruses need to avoid nuts. Some do okay. As with any food, just don't eat all day, every day. But, if you sense any mouth sores, it may be best to take a break from nuts. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Regarding SELF-CARE and explaining certain processes (like a herx) and what can help (liver support). Diet suggestions are in the book, too. ------------------------
** Nutritional Supplements in Disseminated Lyme Disease **
J.J. Burrascano, Jr., MD (2008) - Four pages
====================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
posted
Well, I guess this was a birthday present of sorts - at least sending you off for a better health year. Hope you didn't start on a gluten-free day and skip birthday cake - no, birthdays are for enjoying...
Posts: 13116 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Pamela's makes an excellent gluten-free cake mix. It's still just loaded with sugar, though. I add equal amount of buckwheat flour (with added baking powder and baking soda) to lessen the sugar.
It's still pretty simple sugars but for very special occasions a couple times a year, it can be nice - and everyone can eat it, as you'd never know the difference from other cakes. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Yes, this sure isn't cheap is it? It's total craziness that this is a REAL disease and yet insurance refuses to treat it the way these LLMD's need to treat it (from what I'm reading anyway).
I told my husband, at this point I don't care what I have to pay, I want to be well again!
Here's to you and your starting the process!
Nell
Posts: 256 | From Texas | Registered: Jun 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Keebler, you are amazing!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
You can use almond flour to make biscuits, chocolate cake, cookies, pancakes, pizza dough, etc. Look for specific recipes, though, because almond flour does not absorb water like regular flour and may need something to hold it together.
Liquid stevia is a great sweetener for cocoa, lemonade, the above mentioned cake/cookies, coffee, etc. I found one that doesn't have a bitter aftertaste and mixes in easily.
For regular food, meat and nonstarchy vegetables are fine. Many herbs, garlic, onion, etc. not only add flavor to food but have infection-fighting properties.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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