posted
Well, was I feeling stupid today! Found out that the 3 weeks on / off of Flagyl was supposed to be INSTEAD of my Doryx and Ceftin, NOT in ADDITION to! oops! LOL!
So I have been really dosing myself the abx! He said that's ok but he prefers to give me a break from the Doryx and Ceftin while switching to the Flagyl and kind of take the
spirochetes by surprise! This week is supposed to start my Flagyl 3 week break but now he's changed my Flagy to Tinidazole because I have neuroborreliosis.
In addition to changing flagyl to Tinidazole, he also added Rifampin to my protocol. He suspects that I also have Bart ... which I was expecting him to conclude as well!
I had quite a few "bad" labs so I am also to add DHEA, CoEnzyme B complex, Vitamin D-3, and something called MaxGXL that alone will be $80.00 per month! *sigh*
He did say that we would wait and see how I do over the next 6 weeks and could
possibly look into a PICC in the future if my symptoms don't improve. So that's pretty much it for this visit.
EDIT TO ADD: Oh, he also confirmed that my Igenex Lyme test was VERY positive. He said that the Bb specific bands are 18, 31, 34, & 66 and I have them all.
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Kim it's so good to hear from you on the forums! I know it's easy to misunderstand & misinterpret directions when in this "state" of mind, but it's okay. You are a fighter & will get through this. A year from now, when you are feeling better, you'll look back & say "Did I really go through all that?" You will get better!!!!
I'm already getting to that stage. I am feeling 10 times better. I can complete my Curves workouts with only tiny limitations, no prolonged fatigue, & building my stamina!!! I'm going back to work next week. I have more energy than I've had since May....thank God.
You were talking about Flagyl.....I'll be taking it to it's full dosage by the end of September. That's when I'll be cautious & watch for Herxing. Did it make you feel sick? So far, I haven't had any bad effects from it, but I'm slowly increasing it weekly.
I'd also like to mention to you that my doc prescribed me a vitamin that is supposed to help with memory. I can't remember the name of it but he said it "sprays your brain with....whatever he called it". Maybe you could ask about it too, if brain fog is boggling you down.
Keep up the good fight of faith, as the Apostle Paul said! We will stomp the illness into hell where it belongs!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
"my doc prescribed me a vitamin that is supposed to help with memory. I can't remember the name of it"
Are you sure it works? haha.
Kim, I have misunderstood my doctor's instructions before, or completely overlooked some papers with general instructions that he gave me. I try to take lots of notes in a notebook and go through all the papers he gives me as soon as I get home, and repeat to him what I'm supposed to do before I leave his office.
That doesn't always work either. But it does help.
If you have brain fog or feel bombarded with too much information at your appointments, maybe you could take another person with you to listen and take notes and then compare impressions with you and see if you both heard the same instructions.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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