posted
According to the lab I am positive for IgM Western Blot, 31kda, 34 kda,41 kda. According to an organization and another sstate I am NEGATIVE?. The test also states this can be a false positive if you are infected with Epstein Bar Virus, among a few others. My PCP ran blood and I did test positive for EBV, just like I did years ago. This is confusing! Anyway we faxed the results to my Rheumatolgist, I s aw him once and he put me on Lyrica for the fibromyalgia, and he wanted to see the Lyme results, he has the Bartonella results, and told me I was at one time infected with Bart. Im seeing him in a week. Anyway my nutritionist told me to keep taking the 400 mg of Doxy, and as far as he is concerned I have Lyme too.
The Lyme IgG and full panel for Babesia came back negative, at least that's good.
Your thoughts are appreciated. P
Posts: 9 | From NNJ | Registered: Jan 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What LAB?
IgM positive indicates chronic lyme. With symptoms ("fibromyalgia"), it's very telling information, indeed.
This is not likely a "false" positive for lyme. However, the negative for Babesia may not show the whole picture.
You are likely wasting your time by going back to the Rheumatologist. Don't give him the original test rests, only a copy. But, I would just not go back.
He is not well enough educated. He discounted bartonella and accepts the lame diagnosis of "fibromyalgia" and forced you to seek answers elsewhere. Why pay him for ignorance and another chance to derail you with his incompetence?
Find a Lyme Literate MD - an ILADS-educated LLMD. ASAP. -
[ 08-29-2010, 07:54 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From previous posts of yours, you wrote:
(3 January, 2010) I have never re called seeing any rash or tic bites on my body. I am a 46 yo male. I was diagnosed with CFS, FMS 20 years ago. I also suffer from GAD, Panic Disorder, etc.
I was on SSRI's for years. Have been off of them and connot tolerate them. I take xanax as needed. Recently, my eyes have become sensitive to light, severe stiffness in neck and face,nausea, etc. I have had blood tests for Lyme, but negative. My concentration has diminished, have confused and foggy episodes.
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(20 July, 2010) BABESIA LABS: "My results for both were 1:16 and 1:20, right on the numbers on the test. suggested re test in 10 to 14 days. Has anyone had these readings?"
You wrote in another post: "I tested positive for Bartonella,"
All these pieces, together with symptoms and the lyme test would suggest there is nothing "false positive" about it. I hope you can find a good LLMD. I see you you have added to a thread in "Seeking a Doctor" but have not place one yourself.
I hope you find the top quality care you need. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
From Marnie: a good "primer" (easy to understand) for newcomers.
============================
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
You can copy and paste this set of links to a working / research file on your desktop. These should help serve as the most basic reference links for you to get started.
Good luck & be sure to take really good care of yourself. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You said above: " . . . my nutritionist told me to keep taking the 400 mg of Doxy, and as far as he is concerned I have Lyme too. . . ."
So, who is actually prescribing the doxy? Do you have a LL doctor on board who can (or will) prescribe according to ILADS guidelines?
I hope your nutritionist instructed you to take PROBIOTICS and also good LIVER SUPPORT - and ADRENAL SUPPORT.
Has your nutritionist told you to take MAGNESIUM & a good FISH OIL ?
Is your nutritionist a member of ILADS, perhaps? That would be so good. But you need someone who is LL and can prescribe things that the nutritionist cannot. And, you also will need a LL nutritionist so I do hope the one you have will still work out for you - or find another (or a LL ND - naturopathic doctor). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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