posted
I've been so strong for 2 years, but today..it just all got te me. I feel like every time I walk into my pcp's office, I'm holding my breath to see if she's willing to continue supporting my process long distance. And, I feel like I'm walking on eggshells just praying she doesn't bail cuz then I'm screwed.
It just all got to me today...2 years of having health care provicers all around me focusing on whether they might get in trouble if they help me. Meanwhile, my life hangs in the balance.
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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James1979
Unregistered
posted
Have you educated your PCP enough so that she understands the Lyme controversy?
I had the same kind of difficulty with my PCP, and at first he started treating me according to IDSA guidelines. I felt like I was stuck in a trap. But slowly I started introducing him to more information, and also eventually he did a little studying on his own, and now finally I feel very comfortable with him treating me according to ILADS guidelines. I now know that he'll do anything to make me get better.
I think it's very important for them to be educated about the controversy, but I know this is difficult to do sometimes.
There are ways that the doctors can help you without getting into trouble, but unfortunately those ways usually involve not having insurance. I'm SO happy that I don't have insurance now, because otherwise my doctor and I would be having Big Brother breathing down our necks.
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