posted
I was diagnosed a month ago by my primary care doctor. I'm "official" I guess.
I've always been a worry-wart my nature, so you can imagine what this Lyme is doing to me.
I have so many "what-ifs" going through my mind. Like:
What if my insurance doesn't reimburse me for office visits w/LLMDs? How are we going to afford treatment?
Am I going to have to "fight" with every other doctor I see because of the Lyme?
Am I going to have to fight with pharmacists to fill my Rx? (one has already questioned)
What if my husband changes jobs? Will I be excluded from insurance because of a pre-existing condition? (we want badly to move home to MI)
What if I don't get rid of this?
I'm not a fighter by nature but I'm afraid I'm going to have to fight to get what I need. I HATE confrontation. I'm also afraid of going broke and putting my family into hardship.
I really (expletive) hate this. I just want someone to tell me that everything is going to be OK...that I'm going to be OK, but nobody can.
I don't mean to be a downer. Just needed to get this out.
Posts: 181 | From Midwest girl gone home | Registered: Oct 2011
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I think any of us could have written this post.
I had all of these concerns. They almost prevented me from treating, I was so scared of all the "possibilities."
Some of the things you mentioned have happened. Some haven't. Some even worse things have happened.
But I'm still in treatment and still getting well.
Life just goes on.
And fighting for yourself with grace and determination is a life skill you'll never regret being forced to learn!
Glad you found the venting forum! (OK. It's not always venting...)
Find a GOOOD LLMD that you really trust and that you feel is on YOUR side
Make a list of what you want to talk about before your appt-- take list with you and set it on the table so the Dr can see it, and bring up each item.
As for insurance and money, try to conserve as much as you can, BUT take it one at a time, you cannot tackle problems that don't exist yet
This SUCKS, it doesnt make sense, so don't try to make it make sense. Just take one day at a time, dont worry about long-term, because you have no way of knowing if and when you'll get better. (this is the hardest one)
Posts: 844 | From CA | Registered: Apr 2010
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posted
Moving to MI isn't a great idea for someone with Lyme disease. Just have to give you a heads up. Sorry, I know you want and need positive right now. And this is not what you want to hear.
But, MI has only a couple of LLMD's. And only one that only treats lyme. And from what I have heard it is a very long wait to see him, and he does not accept any insurance.
If you are really wanting to move to MI, It would be better if you could seek lyme care outside of the state.
My advise is to take things one day at a time as Whitney suggested, try to stay where you are while you establish a relationship with a good LLMD, and get a good start on treatment.
Know that we are all here for you. This site is an amazing wealth of knowledge. It greatly helped me when I was first diagnosed. Keep your head up.
Hugs
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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posted
Hello, I am new to this board - in the last month or so. Also recently diagnosed. Some days I wish I could just turn my internal "lyme" switch to off. I totally understand the worrying, constant crying, anxiety, guilt, all of it. It is the worst feeling to feel out of control and not be able to fix things. I have been reading comments on the board and everyone is so supportive, and everyone has a common understanding which helps, even though we all have different symptoms, infections, etc. Here's a thought- when the good days come, you will feel hope. Then a bad day comes, and you have to figure out how to not let it all define who you are - it's hard and I haven't been able to do it yet. You have to take one day at a time and live in the moment, otherwise you drive yourself into a state of perpetual panic and things get worse. Keep going and know that it's ok to be upset and scared. I have been told that it takes quite a bit of time to get well and differs with every person. Wish I had a magic pill or answer. Try to relax and fine some peace. I need to take my own advice tonight! Best wishes.
----------------- Bitten ? 10+ years ago Lyme, Babesia, Ehrlichia, Bartonella Henselae
Posts: 31 | From New jersey | Registered: Aug 2011
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