posted
My husband was diagnosed with Lyme 8 mos ago after my research and our daughter's suggestion. I found him a great LLMD. I have given my all to get him well. I questioned my own health and decided to get tested in June. Not surprisingly, I have Lyme! I get no support. He doesn't even acknowledge that I have it, nor does he speak of it with friends. I am gaining weight, I have no energy, I have arthritis. But all I get is "wow, you are bigger than ever". Really???? Thanks to Lymenet, I know I am not alone!
Posts: 182 | From North Carolina | Registered: Apr 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
no you're not hon. i've heard much worse than that.
if it weren't for lymenet i'd be a starking raving lunatic....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Amen!!! Not only is the support here but also a lot of valuable information. I have mentioned this site to so many people that I feel need help and possible answers to their own health issues.
I know my situation is nothing compared to others that are on here.
Thank God for each one of you!!!!!
Posts: 182 | From North Carolina | Registered: Apr 2011
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I totally understand. My family/friends think I have a drug problem..Haven't been around in a year or so. I guess I do, I'm over 30 some pills and supplements a day. They don't understand why I can't drink or hang out w/ them. This place is a savior sometimes.
posted
You'd think somebody who has dealt with Lyme would have some empathy. I am sorry you feelike this IMT and are being treated like this.
Droid, I know the feeling, my mother compares me to a heroin addict...I don't take anything that comes close to heroin. She also told me once, when a friend of hers had to have shoulder surgery and was in pain, that I would never be able to handle "that kind of pain". She doesn't get that the kind of pain I "handle" daily would push most people over the edge, literally.
It's true we do really only have each other here at LN and if we are lucky one other person in our "real" life.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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posted
I can't believe that someone would be like that, especially after having it themselves? That is just horrible and I'm sorry you have to deal with it.
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Lymenet has been a lifesaver for many of us - some in the literal sense.
Come here anytime and someone will come along to cheer you up.
Will keep you in my thoughts and prayers.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yes..ive been thru so much of that stuff..keep trying to figure a way to accept it...and then get knocked down again
i really dont know what i would do without all my LN friends
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Yes, it really hurts when we have given our all to help others, and then when we are suffering, they dismiss us from their lives.
This selfishness has really amazed me and made me realize that in our relationships, most people are more interested in what they can get from us than what they can give.
I am sorry you husband is behaving this way. Was he already like this, or just since he became ill? Maybe it is in his brain. Or maybe his self esteem is gone, and this is how he builds himself up. Maybe it is the Lyme causing extreme irritability.
Just try not to be a doormat. That is hard to do when you have brain fog.
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Also, when this stuff gets in your brain, it can cause personality changes.
It happened to me, but I discovered Japanese Knotweed which has helped me so much. Maybe it would help your husband.
Posts: 1358 | From Midwest | Registered: Apr 2009
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
It is a hard place to be in.....but you need to find a way to "support" yourself. Knowing you have Lyme, knowing what it is like - you have to validate yourself and remind yourself this isn't a cake walk.
Most of my friends disappeared over time, but I have 3 great friends that I wouldn't trade for all the tea in china.
Start building your network of support - your first great start was here! We understand....
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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quote:Originally posted by Rivendell: Yes, it really hurts when we have given our all to help others, and then when we are suffering, they dismiss us from their lives.
This selfishness has really amazed me and made me realize that in our relationships, most people are more interested in what they can get from us than what they can give.
So true. I feel the same way. Although I don't post on here a ton, I do read many of the posts and feel the same way that so many of you do. Going though this is such hell, and it adds insult to injury when those around us don't try to understand or make ignorant comments. It sucks.
Try to hang in there, that's all we can do.
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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posted
Thank you so much for all the kind words. I do believe that his Lyme is making him have outbursts of anger. Christmas Eve was a nightmare. But Christmas day was wonderful. I love you guys!
Happy New Year!!!
Posts: 182 | From North Carolina | Registered: Apr 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
If he's never been treated for Bartonella, then that may explain the anger.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
WOW, not alone in this??????
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Feel free to join us on over at www.lymefriends.org too, kind of the offspring of Lymenet, but with more pictures and social networking aspects.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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