posted
Is there anything going on in the world that offers us hope for improved treatment, insurance coverage, a cure? Anything that might suggest the CDC or IDSA might get their act together? Feeling frustrated!
Posts: 143 | From Pittsburgh | Registered: Jan 2014
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
The CDC is always a few decades away. You need the World Lyme Protest or these Movie stars to kick things into high gear.
There is hope for better testing though & maybe then they can see how sky high the number are.
beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
I see NOTHING changing any time soon. And I'm an optimist!
The only thing we can do to effect change is to keep hammering away individually and join groups whose goal is the same.
Movie stars aren't necessarily the answer either. How many do we know who've been afflicted? MANY. And they've not been able to effect change whatsoever.
Change comes from little guys like those here who just keep chipping away, year after year, chip after chip.
I do not understand the mentality by many here who think someone famous will change our lives.
Change begins with each one of us DOING something SOMEHOW in SOME WAY to make change happen.
Posts: 1885 | From here | Registered: Jul 2012
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
The CDC has known damn well for years how high the numbers are for LD. They only recently set off all the alarms notifying everyone of the incredibly high new cases of LD each year to prep the public for the brand spanking new LD vaccine.
And like I said, I'm an optimist.
Posts: 1885 | From here | Registered: Jul 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I've been dealing with this a long time and I hae seen change
Eva
Alan
The H book
My first llmd tried but gave me wrong doeses and instructions
Second llmd didway. Better but fogot or didn't k now about bart or cysts
Third llmd covered all that but didn't use herbs
Back then they did the bext they could with what they knew and they were learni g with us
They formed ilads to share what they lezrned
All thoze llmds I had went on to be great
They have to be more intelligent than the average doc, really careabout solving the puzle of lyme, and not Iinto screwinb us over financially
All llmds are not like this but the good ones are and they give me hope
Also-a lot of helpful science is there but can't be used...there are political problems and I have no idea how to fight that
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
For hope read tincups recent post and do what she says
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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