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» LymeNet Flash » Questions and Discussion » General Support » Article: poor outcome for Lyme patients put on steroids

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Author Topic: Article: poor outcome for Lyme patients put on steroids
me
Frequent Contributor (1K+ posts)
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http://www.news-medical.net/news/20160907/Study-shows-link-between-steroid-use-and-poor-outcomes-in-Lyme-disease-associated-facial-paralysis.aspx

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Just sharing my experiences, opinions, and what I've read and learned. Not medical advice.

Posts: 1431 | From USA | Registered: Mar 2015  |  IP: Logged | Report this post to a Moderator
WPinVA
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Yup.
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Lymetoo
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We need to keep this one handy.

Steroids are the first thing doctors hand out when a patient presents with bells palsy.

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--Lymetutu--
Opinions, not medical advice!

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Keebler
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"me" - thanks for this very current article.

How irresponsible of them, though, to not already have known this? Did they all go to "hiding under a rock medical college?"

from other articles over the years, it's been connected that some outcomes have been fatal. One particular one with a little boy, though, the steroids were given when they didn't know what was wrong. Then they found out it was lyme but the steroids had done too much damage by then. Yet, the dots had not been connected. Sigh.

My life was sure ruined from taking them when the doctors found no other reason for my syptoms and thought a few steroid packs, and then prednisone would set me right. Disaster ensued instead.

For anyone new to lyme and TBD, or with any kind of chronic stealth infection:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/100984?#000000

Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
me
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Thank you, WPinVA, Lymetoo and Keebler.

There is so much to learn about Lyme, and I feel like it is so important for new sufferers to be aware of such pitfalls.

The doctor that diagnosed me with Lyme turned out to have some big issues. I was so relieved to have a diagnosis that I felt was finally correct, that I probably would have taken steroids that day if she said it would help.

Thank goodness I started educating myself and other people have been helping to educate me. There is so much to learn. And then learn again if you forget. Repeat. Haha. I'm making myself giggle at things that used to drive me completely bonkers. Okay, who am I kidding, some things still drive me completely bonkers.

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Just sharing my experiences, opinions, and what I've read and learned. Not medical advice.

Posts: 1431 | From USA | Registered: Mar 2015  |  IP: Logged | Report this post to a Moderator
   

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