posted
I get nausea if my C2 vertebra is out. I am also noticing that if I take more magnesium, the neck muscles relax more and symptoms can go down.
Don't know if you know the cause of your nausea, or whether any of the above might play a factor in your nausea or not.
Posts: 13116 | From San Francisco | Registered: May 2006
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Have you ruled out celiac? Not just ordinary gluten intolerance, which many Lyme patients do have, but actual auto-immune celiac?
Probably the most cost-effective way to rule out celiac is to do the simple $149 genetic cheek swab test for celiac through Enterolab. No doctor's signed lab order is required because you can collect the sample yourself in the privacy of your own home, and the results are e-mailed directly to you, thereby protecting your medical privacy. In other words, celiac will not be entered into your medical records unless you yourself reveal it.
The advantage of guarding your medical privacy regarding celiac is that it can cause you insurance rates to go up unless you are on a large group policy. Also, some celiac patients find that they cannot get life insurance either, I've heard, so that's worth considering from the standpoint of protecting your medical privacy.
The main difference between ordinary gluten intolerance vs. celiac is that celiac patients must be absolutely 100% strict ALL of the time, without any slip-ups. That's a whole lot harder to achieve than it would seem because of the problems of "hidden gluten" and of "cross-contamination" with gluten.
For example, someone who is merely gluten sensitive can pick a crouton out of the salad in a restaurant and set it aside, but a celiac patient must send the contaminated salad back to the kitchen and request that the manager assure that the chef prepare a fresh salad without any cross-contamination with even a single crouton.
Celiac patients have been known to have to go to the ER for IV fluids because of accidental gluten contamination when eating out in restaurants where there isn't a safe gluten free menu offered, such as smaller mom-and-pop restaurants or ethnic cuisines where they don't speak good English so that it is harder to communicate about gluten.
To learn about "hidden gluten" and/or "cross contamination" a few good Google searches would be a good starting point. Also, there are many, many good celiac websites now.
One forewarning about doing a trial gluten free (GF) diet though: It is nearly impossible to test accurately for celiac later, after a person has been gluten free for a long enough period of time, so it's better to wait until after being tested first before starting a GF diet if you suspect either celiac or gluten intolerance.
Many/Most LLMDs are recommending GF diets to their Lyme patients now because of the "leaky gut" thing and because they have observed that their Lyme patients who follow a GF diet do better than those who don't.
However, that is a major disservice to true celiac patients because then it can be next to impossible to get an accurate test result later to confirm a celiac diagnosis -- either a blood test or the more invasive endoscopy. I won't go into why because that answer is available on celiac websites, and this message is too long already. (I guess I got carried away, didn't I?)
PS -- I'm editing to add one more important point. If you are already on a fairly strict GF diet, then your nausea could be because your body is reacting more strongly to small amounts of "hidden gluten" or "cross contamination" with unsuspected gluten.
That's because a true celiac patient becomes much more sensitive to gluten and reacts much more strongly to small amounts of accidental gluten after having been gluten free for a few weeks or longer. It's an immunological reaction thing which I won't try to explain. Just take my word for it please.
Posts: 4563 | From TX | Registered: Sep 2002
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posted
Thanks everyone. I have been diagnosed with gastroparesis (my vagus nerve doesn't tell my stomach to pump), so food sort of just sits in my stomach until it decides to work again.
It comes and goes just like everything else with lyme.
I've tried ginger chews! I'm going to try the peppermint tea. That sounds lovely.
Yes, I've been tested for celiac. and NOPE.
I"m going to check into the c2 vertabrate. and I already take tons of magnesium (wonder how much is too much)
Thanks for caring everyone. I just needed a place to vent . . .
onward we go!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Zofran!
Posts: 2057 | From Florida | Registered: Feb 2015
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