Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeNet Family >>>>>,
Good to get back in, Thanks Lymetoo,and any other Moderators who may have helped, and Tech Support folk too!!
We still don't have internet at the new to us place we're moving to. They also changed our phone number w/o warning. We can't get into net at the former place we're moving from either.
Have been out, needed a break, so on net here at motel. Going back to pack more tomorrow, and hopefully get the internet and phone mess straightened out before the weekend.
It has been a bit of confusion,and we have a trip coming in the middle of everything, before we can finish our move.
TrekC' and I will be greatly relieved when it is all done. As I surprisingly,still qualify for Medicaid, we are trying to get into a couple of Drs. my Dr. referred us too.
Difficult to do, w/o our internet, many groups don't answer phones as they should...and right now, cannot call us even if we could get thru to them... Aarrgh...OwOwoooWoo whats a Silverwolfi to do.
So that's where we're at,will be trying to check back in when they get the situation resolved w/our ISP group. Meanwhile we'll check back in here, in a few hours,if we can.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I wish you could just "fast forward" to a month from now when everything is better!!!
You have my phone number if you need it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
I'll be glad when that month has passed,and hopefully everything is moved,and done w/ and phones and net are on proper.
Headed back to new to us home,and hoping to pack more at the old place we were renting.We are hoping to have the ISP mess resolved very.
Thank you so much!!!
Will let you,and all LymeNet Family know when the ISP matter is resolved. Praying it is soon!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Jus' Silverwolfi here,
Hi <<<<< Lymetoo,and all our LymeNet family >>>>>,
Finally, we got everything all figured out,and the ISP corrected their mistake so we have Net capability,and proper phone again!
We are at new place, haven't hooked my Laptop up yet, but we have a filter if there are any issues, it should stop any problems.
Now If I could get my eyes area, and other things to cooperate,I'd be happy!
The rash where I sit,is finally calming down, the eyes not so much, eyelids dry and crack,and pull lower lid back from eye[mostly the left eye]. It gets uncomfortable, still no word from dermatology.
Perhaps they are to busy for a Medicaid patient[yep still on Medicaid,much to our surprise].
I do have a Cardio' appt. early next week,to see if we can determine the cause of chest and jaw pain. It has been happening randomly, making it hard to breathe,and painful at times.
Hopefully we'll have some info' and good news,after the appointment. Perhaps something simple can be done, to find the problem and ease it.
Talked to my Doc' a little while back about problem.After TrekC's heart issues, we don't need more. I've put this in the Lords hands, and we'll see how it all goes.
Having to do this a whole lot lately, I know stress,can cause issues, so maybe it is mostly stress and allergy?!
But it is good to be able to be back on line,and check in w/ LymeNet Family!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Good to see you here and know that you are moved and all set up. At least I hope you are!!
Also very happy that your skin condition is better. Now if the stress can let up, you should be in good shape.
The heart issues do sound very worrisome! MCAS can also cause chest pain .. just letting you know.
I don't think it usually comes with jaw pain .. so I hope they will run some good cardiology tests on you.
Hang in there, you two!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
We'll be doing the major moving over the next month, but at least we have our proper phone back,and we have TrekC's laptop up!
My Cardio' appt. is tomorrow ,so hopefully they can help us figure out what is up. Scheduling tests may take a bit?! I am hoping whatever it is is a simple fix, praying about this one,as always.
Trying not to be to nervous,and just to relax and give it to the Lord.Most of my family,at least on Moms side had heart issues. So we'll see what we can find out,and hope it is nothing to serious.
I've wondered about MCAS/MCAD too, don't know how many Doctors here are familiar with it. And I am suspicious that allergies are playing a part in all this.
Hopefully, I can report back in after the appointment tomorrow,and will have some news what is or isn't going on.
The jaw pain, was puzzling to me,and since it has kept happening, I knew I needed to have matters checked. I've had chostacondritis, painful,and hard to breathe,but this is different yet again.
We'll see how it all goes. Maybe it is something simple? I am not sure how thorough they'll be, much of my medicaid experience has left me questioning things.
I'll check back in when I am able! Thanks so much for keeping us in tho't and pray . Don't know what we'd do with out you and LymeNet Family!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there,
Updating:
<<<<< Lymetoo and all LymeNet Family >>>>>,
Just returning from Cardio' Doc', they didn't find anything of significance in the EKG, which is good. However, Doc didn't like, how the pain is acting up in the chest and jaw area.
He said the main concern is blood flow, and could there be a blockage. So we will wait while they find out which tests Medicaid/Amerigroup will pay for. He'd like to do the Ultrasound and the stress test.
Have to wait while Madicaid sorts out what tests they'll pay for. Meanwhile, light work only, no heavy lifting,and a Children's Aspirin once a day. More if the pain hits,
if it is longer than a 15 min. set too, without decrease in pain go to ER,especially since I have breathing issues w/ these set toos.
Will update as we find out more...
Jus' Silverwolfi winded in the windstorms
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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