posted
Have I said something that rubbed you the wrong way, or have you just been busy?
I've got reading the parasite info. you posted on my "to do" list, and will get to it one day. What day is impossible to predict, but one day.
GVS
Posts: 242 | From durham, nc | Registered: Oct 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
No no no! All is ok with us.
I was just waiting to hear back from you about the info I've already shared.
No sense going further into the research until we know if any of the original info will be of help. Once that is ruled in or out, then we can move forward.
Sorry I didn't explain that better! A toad I be, he he he.
posted
TC -- got it. Copied it to a microsoft word file on my computer, my "strategy file" where I can write things down.
Your points were on target and helpful. I use hot/cold packs, take LDN. On days pain doesn't blow me away, setting aside time to think constructively means I can stop spinning the Rubik's cube in my brain and stop fretting incessantly and unconstructively.
Pain overwhelming most of past 7 consecutive days. Hard to motivate myself to do anything other than die. My screwed up digestion profoundly limits my treatment options. Even when something works for a while, I eventually sensitize to it.
Long-term goal: not healing with oral agents, gut too messed up. Will never work. Instead, transfer primary immune support to Bodihealth machine, gives Lymies 80% improvement using only electrical microcurrents. No oral agents to navigate gut. Have to get to a stable enough place I can tolerate dieoff during initial months of treatment.
Trying to get to a stable place seems impossible today. The best I can do today is stay here.
I see a therapist, hadn't considered using him as a strategist. My holistic doc is fantastic at basic immune support, useless with Lyme. I stick with her because what she does she does so well.
Do you know if Mepron can be used long-term for intestinal parasites/protozoa?
Immediate crisis: losing veins, losing vitamin C IVs, DEFCON 4. Without IVs, I die.
Hope your holidays with family were happy. Sorry to hear you are one of the people struggling with hurricane aftermath. Can't imagine not having a safe place to live.
GVS
Posts: 242 | From durham, nc | Registered: Oct 2016
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
up.
I'm worried about TC. There is snow and cold in Florida! I haven't seen an update in quite a while, but I don't believe that she has a roof yet, or even the possibility of one yet. (Is that too much information for writing on LN??).
I pray that she has a warm, dry place to stay, and a way to keep the snow/rain out of her place.
But we don't need her to spend time that she needs to use to take care of herself to write us. Although, it would be good to know.
Anyone who has the original link that we can't post here, please go to it, as more funds are needed. (Again, don't know what is ok to post here). Those links can be forwarded to people who could help, as more help is needed, I see when I went to the site.
Posts: 3771 | From around | Registered: Mar 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I emailed her and heard back from her. It's pretty darned cold in her place---according to me. Up to 50 degrees in her bedroom (yikes!!) and 68 in her living room/kitchen.
I don't believe she has a roof yet (not sure, but pretty sure). She needs more wiring, too.
Although it turns out that the financial goal was met, in my opinion, more $$ would help. It's all pretty close to the bone, again IMO, but I believe I am right (ha!).
I wish I could be an angel and swoop in and help. Heck, we all could use that, BUT her need has been great. She has been there for all of us for so, so long without thought for herself. She's the angel for all of us!
xoxo to Tincup!
Posts: 3771 | From around | Registered: Mar 2008
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