Topic: Send the Guideline Authors Something Personal
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
No, not your panties you silly girls...
For those who can't deal with the 303 pages of the new guidelines draft written by the IDSA, American Academy of Neurology, and the American College of Rheumatology, to be able to respond scientifically...
You can at least tell them something personal, like how you feel about those who suffer and those we've lost.
Some of the panel members have no clue what Lyme is on a personal note, so they really don't see the damage it does.
Suggestion..
Pick a person who has passed away to remember.
As with some of my family members who are no longer with us, I know they would want their voices heard.
You can pick someone you know or someone off this list or from any other source.
Keep it simple by stating a couple of lines, then share the obituary or an article about them that they will have to read.
Make Lyme a HUMAN THING.
You are allowed up to 20 responses, so do what you can, please, to bring this to a personal level for them.
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