pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Dear Lyme Leaders, Advocates and Activists, actual or aspiring!
We are very excited about CALDA's Lyme Action Program, which will take place Thursday, October 16 in San Francisco, but so far only seven people have signed up! Because of all the upheavals in the Mervine household this summer, with trips to the ER and fires and all, I have not sent out enough reminders. But we have tried to put together a great program and we hope you will sign up for it! Sign up soon! You get a price break if you sign up before Sept. 16. After that date, the price will go up to $65. Still, it will barely cover our expenses - we have tried to keep costs low to encourage you to come.
Here's the program, we are starting at 8:00am with registration, which should be ok for jet-lagged easterners and I hope not too early for local folks.
Inspiration in Action with Pat Smith, President, Lyme Disease Association
Nuts and Bolts of Activism with CALDA CEO Lorraine Johnson, JD, MBA
Telling Your Story: Framing the Lyme Message for the Media with Isobel White, co-founder of Spark Action, a communications consulting firm, and editor of the SPIN Project's publication, ``Whose Media? Our Media! A Strategic Communications Toolkit to Reform, Reclaim, or Revolutionize the Media.''
Lunch with ``Celebrities'' (ILADS Board Members, CALDA Board Mem-bers, Lyme spirochete discoverer Willy Burgdorfer, Author Pam Weintraub, and others)
Event Planning - Panel discussion and Q&A with Marisa Battilana (CALDA), Diane Blanchard (Time for Lyme), Stephanie Spar (Turn the Corner Foundation) and maybe a few others
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Anyone doing advocacy work should come to this workshop if at all possible. Your work is essential and vital to our community! This is your chance to hone your skills and learn how to be more effective. Even if there were no workshop, getting together is so much fun and a reward for all your hard work in your communities.
Enrollment is creeping up. We now have 17 registrants. The state breakdown is
California 8 Connecticut 2 Georgia 1 Massachusetts 1 New Jersey 1 Pennsylvania 1 Texas 3
Welcome - Phyllis Mervine, President, California Lyme Disease Association
Inspiration in Action with Pat Smith, President, Lyme Disease Association
Nuts and Bolts of Activism with CALDA CEO Lorraine Johnson, JD, MBA
Break
Telling Your Story: Framing the Lyme Message for the Media with Isobel White, co-founder of Spark Action, a communications consulting firm, and editor of the SPIN Project's publication, ``Whose Media? Our Media! A Strategic Communications Toolkit to Reform, Reclaim, or Revolutionize the Media.''
Event Planning - Panel discussion and Q&A with Marisa Battilana (CALDA), Diane Blanchard (Time for Lyme), Stephanie Spar (Turn the Corner Foundation)
Please sign up soon. It is going to be AMAZING!!
ps I am trying to get a reduction of the ILADS fee for Workshop attendees. I will let you know if I am successful. --
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
GRANTS ONLY 3 GRANTS LEFT!! CALDA will reimburse up to $800.00 out-of-pocket expenses for any actively practicing MD, DO, ND, NP or PA in any state to attend the LDA and ILADS annual conferences. CALDA grants are limited and are only available to qualifying professionals attending the conferences for the first time. Preference will be given to persons currently engaged in treating tick-borne infections and who plan to attend both conferences.
CALDA 17 PEOPLE HAVE ALREADY APPLIED! Lyme Action Workshop for activists, support group leaders, patient advocates, friends and family who wish to become more effective advocates for the rights of people with Lyme and other tick-borne diseases. Thursday, October 16, 2008 Cost $45 before Sept. 16, $65 after Sept. 16, includes break and Celebrity Lunch Buffet Register at http://www.lymedisease.org/activism/lyme_events.html
ILADS Saturday-Sunday, October 18-19, 2008 Cost - ILADS is offering a one day registration for support group leaders who just want to attend one day. The fee is $200. Register online http://www.ilads.org/REG2008/1.html Go to www.ilads.org to preregister.
Sometimes you can get cheap rates at priceline.com To get a really cheap price you can't select the exact hotel you want but you can select the Cathedral Hill area and bid on a room. They tell you if they accept the price you offer. --
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
We are up to 25 registrants today for CALDA's Lyme Action Program, most from California with a sprinkling of other states.
If you are still debating, I really understand the issues - mostly the expense - but also the time and effort involved. I just hope you can find a way because the work you do is so important to patients across the USA.
I always look forward to the LDA/ILADS conferences because it is the one time a year I get to meet all the people I work with. There is nothing like it. It is so inspiring and energizing. I do hope many of you who want to, will be able to come. It would be so wonderful to meet you, not to mention that we think the program will help us all be more effective advocates.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
I hope as many of you as possible will choose to come to the workshop because I think it will just be exciting to meet each other finally instead of just looking at a rectangular screen all the time!
And since I understand this is the first time a Lyme activist workshop is being offered at an LDN/ILADS conference, who knows what creative ideas and networking may come out of it? So just know that all of us may be able to begin to make a powerful difference out there and that's why y'all should come!
Posts: 13116 | From San Francisco | Registered: May 2006
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
So far, 30 people have applied to attend.
I just called the LDA/ILADS conference hotel. Front desk: 415-776-8200 Toll-Free Reservations: 800-622-0855
They have no available standard $119 conference-rate rooms. However they still do have FIFTEEN (15) "superior" rooms which can be had for $134. These rooms can be shared if you have someone to share with, for no extra charge. (Some have one bed, some two.)
Sometimes you can get cheap rates at priceline.com To get a really cheap price you can't select the exact hotel you want but you can select the Cathedral Hill area and bid on a room. You will be within walking distance if you are in reasonable physical condition. They tell you if they accept the price you offer.
To attend the CALDA Thursday workshop, you may want to reserve the night before (Wednesday Oct. 15.)
posted
Just saw it mentioned under General Support that the cheaper workshop rate is being extended through the end of the month. So I hope more will choose to sign up! Whoever signs up in the next five minutes gets free tickets to the next Stevie Ticks or Metalli-co's shindig...
Posts: 13116 | From San Francisco | Registered: May 2006
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
48 people have signed up, 31 from California, 2 from CT, 1 from Georgia, 3 from Massachusetts, 2 from New Jersey, 1 from NY, 2 from Penn, 4 from Texas and one from the Netherlands. This is going to be a great program!
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
UP Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
We have over 60 people signed up. We have a couple of people willing to take notes so will be letting you know what transpires.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Looking forward to those notes.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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