Now does anyone think that we will have 75% of this group agreeing to make changes in the IDSA guidelines after they have reviewed the medical literature?
Furthermore, some of these are known to be proponents of the IDSA guidelines, have been quoted in newspaper articles, interviewed on radio programs. At least one is known to be violently anti-chronic lyme and has a complaint filed against him by a lyme patient. Another is known as a prime reason for many undiagnosed lyme cases in that region of the country.
If there could be a more biased panel selected, I am having trouble imagining it. The "ethicist" at the outset said his role would be limited, and he was not kidding. The role of ethics in this panel selection is almost nonexistent. He eliminated all the lyme docs on the grounds of financial conflicts of interest, leaving panelists who are stooges of the IDSA and who do not treat lyme disease.
Posts: 8430 | From Not available | Registered: Oct 2000
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I hope our voices will soon be heard by the right people. Until then, we can't stop talking, sending letters, signing petitions, and sharing our struggles so that other's won't have to endure the same.
Unfortunately lyme will probably hit home to some of these IDSA's at some point. Maybe then they'll have a change in heart.
-------------------- -Love and Gratitude Posts: 69 | From another planet far far away | Registered: Oct 2008
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posted
Highlights, paraphrased, from the Parsonnet(represented with an * here) radio interview:
* a single dose of doxy is highly effective, if given within a couple days of the tick bite.
My question: has a single dose of doxy EVER stopped Lyme disease in anyone? Never heard that it has.
* have to look at the whole symptoms picture. A lot of the time, we don't think people have Lyme, and we don't have any other explanation.
My comment: sounds like a cop-out to say they "don't think" someone has Lyme. What's the good of that? Thinking is not a test. "Thinking" cannot rule out a disease!
* it will be clear in the majority of people that they have Lyme.
No, it is not a majority. Probably a minority who have really clear symptoms and clear positive test results to back up their symptoms.
* it's dangerous to find someone who will treat you for something you don't have.
Well, the opposite argument is that it's dangerous not to treat for an infection you may have.
* the side effects of antibiotics include resistant bacteria.
What's the scientific evidence on this? Has this happened in Lyme patients?
My opinion about this issue: it's also possible to treat Lyme with herbs and other nonantibiotic treatments.
* 25% of those on long-term abx develop side effects and have to stop.
Lyme patient's response on the program: she went from invalid to functional being treated with antibiotics - ie, she'd take the chance to get better
* see your family doctor first, who knows you the best.
My comment: all of my several family practitioners here never recognized the symptoms of Lyme disease in me. Then they send you to an infectious disease doctor for evaluation, all of whom tried to undiagnose my positive test results!
* it's a curable infection, with a finite course of antibiotics, and not multiple courses. Maybe a month of IV, some weeks of orals at most.
MY SUMMARY: Dr Parsonnet is clearly biased towards the IDSA point of view.
How can we have a panel pre-judiced towards the IDSA viewpoint on Lyme disease looking at the IDSA guidelines? What's the point?
[ 02-10-2009, 06:08 AM: Message edited by: Robin123 ]
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