posted
Why are Fallon and others not speaking out? If we sit quietly and allow this to go off the radar, we may not get another chance to capture the public's attention. I'm puzzled by this.
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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posted
I agree, I think we need to pay careful attention to all opportunities that present themselves. I have said before let's counter attack or better yet beat them to the punch.
-------------------- If you keep doing nothing...nothing changes!
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I was wondering the same thing. Shapiro, Wormser, et al, have certainly voiced their opinion where every they could. I think at this point the opportunity has been missed.
The only journalist who wrote a pro- lyme article about the incident is here:
Many have left him comments. May be he will pursue the subject further. I recognize several from Lymenet who have posted and other groups.
Please add your comments, if you feel so inclined. At least he understands the illness.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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bettyg
Unregistered
posted
kris,
i attempted to read both of your blogs on UOS site, but with your using quotes, it is LIGHT colored, and not visible for my low vision, lyme effected eyesight. so i had to stop.
any chance you could show " " and NORMAL print which is legible vs. italysis?
just a suggestion from a chronic lyme neuro patient with 39 yrs. chronic lyme; 34.5 yrs. misdiagnosed by 40-50 drs.
thanks for your consideration kris! xox
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posted
ABX, below is what i just posted on HUNTINGTON post; there is 250 WORD MAXIMUM, and i first surpassed it by 857 words since i showed ALL the lyme symptoms!!
abox, LDFoundation is also the IDSA of lyme; fyi!! so please use ILADS links of info for your future posts ok. we thank you. xox
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Betty thanks for posting. I hope more people do.
I know those word limits can drive you nuts. We
have so much to say. It took me several attempts,
too.
The American Lyme Disease Foundation is the IDSA
of Lyme not the LDF. The ALDF is where all the
ducks are. Check out the scientific advisers
of the Lyme Disease Foundation and
will you will see many Lyme friendly
names. I may be wrong but having been a part of
the Lyme community since l999 this has always
been my understanding. Their symptom list very
clearly illustrated my point.
[ 03-13-2009, 09:39 AM: Message edited by: Abxnomore ]
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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bettyg
Unregistered
posted
abx, thanks for your additional comments! would you believe i woke up early this am after a late am here.
so i went to read more of pj's THE BAKER'S DOZEN/IDSA book, and just reached THAT info this morning where she outlined all the ducks on board of ALDF; i didn't realize they were 2 different entities.
haven't gotten to her ldf info yet; i struggle reading since it's SMALL PRINT and no double spacing between paragraphs ... not good for a LOW vision, neuro patient like me.
thanks for educating ME; i thank you!! xox
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bettyg
Unregistered
posted
loco's link ... i copied below for neuro lyme patients like me... breaking it up as necessary for neuros so we can comprehend/read since we can not read long, solid block text! bettyg
Am J Psychiatry 1994; 151:1571-1583
Copyright � 1994 by American Psychiatric Association
SPECIAL ARTICLES
Lyme disease: a neuropsychiatric illness
BA Fallon and JA Nields Department of Psychiatry, College of Physicians and Surgeons, Columbia University, New York.
OBJECTIVE:
Lyme disease is a multisystemic illness that can affect the central nervous system (CNS), causing neurologic and psychiatric symptoms.
The goal of this article is to familiarize psychiatrists with this spirochetal illness.
METHOD:
Relevant books, articles, and abstracts from academic conferences were perused, and additional articles were located through computerized searches and reference sections from published articles.
RESULTS:
Up to 40% of patients with Lyme disease develop neurologic involvement of either the peripheral or central nervous system.
Dissemination to the CNS can occur within the first few weeks after skin infection.
Like syphilis, Lyme disease may have a latency period of months to years before symptoms of late infection emerge.
Early signs include *******************
meningitis, encephalitis, cranial neuritis, and radiculoneuropathies.
Later, encephalomyelitis and encephalopathy may occur.
A broad range of psychiatric reactions have been associated with Lyme disease including
paranoia, dementia, schizophrenia, bipolar disorder, panic attacks, major depression, anorexia nervosa, and obsessive-compulsive disorder.
Depressive states among patients with late Lyme disease are fairly common, ranging across studies from 26% to 66%.
The microbiology of Borrelia burgdorferi sheds light on why Lyme disease can be relapsing and remitting and why it can be refractory to normal immune surveillance and standard antibiotic regimens.
CONCLUSIONS:
Psychiatrists who work in endemic areas need to include Lyme disease in the differential diagnosis of any atypical psychiatric disorder.
Further research is needed to identify better laboratory tests and to determine the appropriate manner (intravenous or oral) and length (weeks or months) of treatment among patients with neuropsychiatric involvement.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
sounds like a good read Betty. I get a lot of things mixed up but not that duck organization...LOL Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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