posted
I am a lyme sufferer trying to get information on LDisease and abuses to patients. Not just by IDSA, but some of the insane things we have gone through. I will be doing a series of surveys to back up research.
CALDA's survey and the attack on Betty G made me want to get some of the information out there.
Please answer honestly. Please only do the survey once and leave your sign in name or something that helps us validate results.
I have been thinking how Wormser called this web forum "Lymenut". I want to be able to publish, good, honest, data on our side eventually, backed up with fact. If you have any suggestions also add them.
posted
Ok, you're going to have to excuse my stupidity...
I went to the site, and there was a poll "what was the worst diagnosis you recieved prior to seeing an LLMD" (or something like that)
There was no way so sign my name...and no other questions.
Is that the survey? If so, how do I leave my name (I was the first person to do it, so all the answers currently there are mine, if that helps).
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
| IP: Logged |
bettyg
Unregistered
posted
bubba,
i agree with nicole; took your survey; you have NO designated area where we need to leave our names.
it's just the MULTIPLE choices of the comments you made.
also, could your other surveys just be added to your site now, and we could do ALL of them at the same time we are there? food for thought ok
so you might want to edit what you posted on top since there is NO NAME area designated ok my friend.
IP: Logged |
I am new at this. Basically we haven't thought of all of the surveys we should do.
I am quite in the thick of illness so it takes me a long time to work things out. I will kep track of your member names through lymenet now, but by this weekend will figure out how to make it better.
But I am good a record keeping and thank you for helping. I also want a small data base on their to keep a quackwatch aka doctors that don't treat lyme. They keep a quackwatch just for llmds so I thought fight fire with fie.
Don't worry I am a quick learner. I will repost our next two surveys and get on this asap.
Nicole, I am from Calgary, daughter born and raised.
Posts: 128 | From Raleigh, NC | Registered: Apr 2007
| IP: Logged |
posted
Bubba- I am in Calgary right now. I was born and raised here as well (except for a brieg hiatus in BC).
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
| IP: Logged |
posted
Where do you think you got lyme. I think I got mine young in Calgary. Maybe on one of our trips to banff or camping.
My 22 year old has it.
My 3 year old has it.
We have babesia Duncani which is more prevalent on West coast.
I want to use that blog to tell people what docs NOT to go to. They are always attacking our docs. I want to get so much information and send it to everyone anyone who will listen. I want to study how to do proper surveys and really find out what is happening. Although I know. I want to be able to hand anyone from Oprah to Obama to IDSA proof.
Posts: 128 | From Raleigh, NC | Registered: Apr 2007
| IP: Logged |
posted
I think I got it in the Calgary are (maybe hiking by Bragg Creek), but it is possible I could have got it in BC, because I also spend a lot of time there.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic