dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
This was emailed to me from someone who had helped the CT Attorney General intiate the IDSA investigation.
"Please do not call the CT AG OFFICE. They are aware of the outcome of the IDSA panel and don't need 500 calls to remind them.
From the AG press release: ' ``We will carefully and comprehensively assess the final report and the review process leading to that report to determine whether the IDSA fulfilled the requirements of our settlement.'
Why do we want to beat on the State Government office that has tried to help us. Do not bog them down with phone calls. They are not the enemy.
The CT AG is a State Attorney General. He has no Federal power. When the CDC acepted the IDSA guidelines a few years ago, the guidelines became FEDERAL property.
Thus, taking any legal action out of the hands of any State AG from any of the 50 states.
The IDSA didn't have to hold a hearing but the IDSA found this out AFTER they agreed to the hearing.
If we want to make a change we need to start a petition in every state, (CT already is on board). Hand the petition over to the Attorney Generals in the other 49 states.
These AG's can then contact the US Attorney General or any other office who has federal power, and demand an investagion.
You can't investigate a federal office with a State Attorney.
To flood the CT AG with phone calls and overloading the fax machine is a waste of time for everybody."
This is from me, dmc:
Momofthree posted info regarding a Congressional investigating the CDC
Let's help that gain momentum.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey dmc...
Not sure who wrote what you posted, as I am familiar and in contact with those who were there throughout the AG process, and as far as I know that is not the word going out.
But I am checking and will confirm with you as soon as I hear back, so we can all be sure.
Just so you know some of the thoughts behind the immediate actions that were taken....
The AG's office could have read the final report and simply closed the book on it immediately, especially if no one had raised concerns. He could have easily said "job done, let's all go home".
And it would have been over then and there.
However, with the world watching and caring and raising concerns about the process, it stopped that possibility from happening.
Hope that helps to explain that action.
Also not familiar with this petition you mentioned. I know there have been a few floating around lately... but don't know any that have been started by the CT groups. Do you have more information on it?
As Attorney General, I've always listened to people and fought for what's right. My goal has been to help the people of Connecticut with
problems -- large or small. My service has been about you! Today I launched a new section on my website, dedicated to you. Have you ever come to
me or my office for help? Do you ha...ve a story to tell? Please share it with me on my website's "share your story" page. I look forward to
hearing from all of you!
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Heard back.... and the "do call" information was correct. The explanation I provided earlier was also correct.
Any questions, please let me know and I will try to respond.
Attorney General Statement On IDSA Guidelines Review Panel Report
April 22, 2010
``My office is reviewing the IDSA's reassessment of its 2006 Lyme disease guidelines mandated by its agreement with my office.
The IDSA agreed to review its Lyme disease guidelines after my office uncovered credible evidence of undisclosed conflicts of interest and other significant flaws in the process that produced the guidelines.
``We will carefully and comprehensively assess the final report and the review process leading to that report to determine whether the IDSA fulfilled the requirements of our settlement.''
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I guess I should have come here first....I fired off an email to the address provided for me to the AG of Conecticutt's office.
I'll look around for a copy of the IDSA's report to the AG.
I would more likely believe the tincup as I have known that person on this net alot longer and my trust goes with the cup in most matters. Including this one. zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey dmc...
HA! Your not being a pill. Not at all. In fact, I'll be sure to say so if you are!
My guess is the urgency to make the calls and faxes are calming down. T I'm sure they got the message by now ... so if folks don't want to call now, that should be no problem.
Mission accomplished... but more reinforcement wouldn't hurt... so Tony Z... glad you made your voice heard too. It is never a waste.
I checked with those involved in the AG actions and no one that initiated it or worked through the process with the AG sent that email ... so my guess is it is someone else's personal opinion. (?)
That's all fine and dandy (we all have opinions)... just sad to think someone would be doing something (purposely or not?) to undermine the ongoing efforts.
And like Tony Zzzzzzzzzz.... I have to go with doing what is best for our community and get my input from those actually involved with the process ... those with legal minds, long-standing organizations, doctors, etc.
Then I hash their information over, check facts and 99% of the time they are on the money.
quote: As Attorney General, I've always listened to people and fought for what's right.
My goal has been to help the people of Connecticut with problems -- large or small.
My service has been about you! Today I launched a new section on my website, dedicated to you.
Have you ever come to me or my office for help? Do you have a story to tell? Please share it with me on my website's "share your story" page. I look forward to hearing from all of you!
Thats my say...do what you want.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey dmc...
You said.. "do you think the CT lyme people would have let the guidelines review panel held accountable on procedure regarding the settlement requirements."
No, and that is why they wanted patients who were concerned to take action and make the contacts.... which is what happened.
You said.. "I think NOT. CALDA, LDA, also wouldn't have let their own hard work just lay dormant either."
RIGHT! And they were the ones that asked for help from the public so their work wouldn't "lay dormant".
I think we agree so not sure where the problem lies?
You said... "Apparently we think we need to keep beating our distrust the IDSA into the CT Attorney General office."
Did you actually read the reason posted above for the action? If not, please do. Maybe you would then understand why CT residents, LDA, CALDA and others took action and asked all of us to do the same.
You said... "Remember the CT Attorney General first & foremost works for CT residents."
Thank goodness he also listens to groups and individuals from NJ and CA .... or none of the actions against the IDSA would have been initiated or been possible.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[lol]](graemlins/lol.gif)
Printer-friendly view of this topic