LymeNet Flash: SURVEY- Lyme- IDSA Guidelines- NOW!

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»	LymeNet Flash » Questions and Discussion » Activism » SURVEY- Lyme- IDSA Guidelines- NOW!

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Topic: SURVEY- Lyme- IDSA Guidelines- NOW!

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

It is time for YOU to have a voice in YOUR diagnosis and treatment of Lyme and tick borne diseases.

Please complete this short survey from CALDA (the ones who have done an excellent job in the past with conducting and reporting on surveys, with your help of course), and share it with others so they have a chance to make their wishes known.

NOW is the time to speak up!

[Big Grin]

CALDA News, Events & Blogs

LYMEPOLICYWONK: Speak Up Now! The IDSA Is Revising Its Lyme Guidelines And Patient Viewpoints Matter

04 Oct

The treatment guidelines of Infectious Diseases Society of America (IDSA) are more than 5 years old. That means they will be taken off the National Guidelines Clearinghouse in January.

It also means that the IDSA is now revising those guidelines. According to the Institute of Medicine, guideline developers must consider patient values and preferences to be considered trustworthy.

Our last survey found that 80% of patients would not choose to be treated under the IDSA guidelines. So patient trust in IDSA Lyme treatment guidelines a big issue.

But when was the last time the IDSA asked you what you valued or what you preferred in the treatment of Lyme disease?

The answer is: NEVER. It's time we do something about that. We are conducting a survey to find out what you think is important about treatment options, choices, risks and benefits.

Our last survey drew over 4,000 responses. Let's do it again and remind the IDSA that patient values are central to treatment guidelines!

Link to article where survey can be found...

http://www.lymedisease.org/news/lymepolicywonk/831.html

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

abby-do
Member
Member # 25440

posted

Great survey, thanks for posting Tincup, hope everyone reads this and takes it.

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I am not a Doctor and I never played one on TV, I'm just a lab rat with Lyme trying to rid myself of this horrible disease.

Posts: 88 | From Florida | Registered: Apr 2010 | IP: Logged |

hereigoagain
Member
Member # 17663

posted

Done - please, everyone, fill it out!

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-01/11 IGeneX Test:IgM 30+,31IND,34++,39IND,41+,45++,58++
IgG 18+,31+++,34+,41++
- 07/10 RMSF+
- 05/09 CDC positive WB IgM 39 & 41, IgG 41
- 07/08 EBV+
- 11/07 CMV & Parvo +
- 11/01 CDC positive WB IgM 39&41m IgG18

Posts: 64 | From NJ | Registered: Oct 2008 | IP: Logged |

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