Folks I need all of you to share this document. This is where change will come from. If you have Lyme or not share this please. If you have Lyme and you desire change it's your duty to share this and partake in the events . Read and follow it it's entirety .
Operation Storm The IDSA If you want to make a difference…here is your chance! We need all Lyme patients to participate. This year, The Mayday Project as well as Lyme patients plan to storm the IDSA with every ounce of strength we can muster. Below you will find instructions for those of you who are unable to make it and would still like to participate.
We are going to tackle them from every imaginable angle. Their building will be surrounded with Lyme patients, billboard trucks and supporters for two days. Over the next two days we will flood their phones, emails, fax machines, and social media sites with truth…an evidence based document providing a concrete case for chronic Lyme disease, the likes of which has yet to be presented to them.
We are demanding they overturn the incorrect guidelines that are causing suffering to hundreds of thousands and even death. The changing of the guidelines and the acceptance of Chronic Lyme is our goal on these two days. We are demanding better treatment, research, and a cure. The whole world will be watching as we take this entire event to the internet via live stream.
twitter page, using the hash tag #revisetheguidelines https://www.twitter.com/IDSAInfo Throughout the two days, we also want people to call (703) 299-0200 demanding a change to the outdated guidelines.
Call them from all over the country and world. When you call, use every single option on the menu, talking to everyone you can. Keep calling them! Fax “Scientific Proof of Chronic Lyme Disease” to the IDSA at (703)-299-0204.
Use their website contact page and flood as many of your stories of Chronic Lyme as you can. Let them know how you have followed their protocol for antibiotic therapy and are still sick and bedridden. http://www.idsociety.org/Contact_Us.aspx Here is a list of people we will call and ask them to review our evidence and respond accordingly. If they tell you that they can't help you, ask them to put you in contact with someone that can.
Do not take no for an answer! Vice President of Communications: Diana Olson (703) 299-0201 Communications and Public Affairs Officer: Jennifer Ford (703) 299-0412 Sky Opilia (312) 558-1770 If anybody has any other contact information for the IDSA, please inbox Josh Cutler or Amber Limbaugh.
Stay vigilant and keep pressing them! We have the evidence, now let's force them to see it and start the process of Lyme disease being accepted as a persistent ongoing infection. Be prepared to make history May 22 – 23, 2014! All relevant information regarding the event will be at www.themaydayproject.org #CureTheCDC ~Josh Cutler"
Posts: 2087 | From NY | Registered: Oct 2011
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
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Wooohooo!! Sharing on my FB. Wish I coul be there!!!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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In the SF Bay Area, it will be covered today at 5pm PST (8pm EST), online at www.kpfa.org, Flashpoints program. It will be archived at www.kpfa.org/flashpointsPosts: 13116 | From San Francisco | Registered: May 2006
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Please give us a brief account of the protest and how it went! Wish we could be there.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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I'd say it looked like a pretty successful event - lots of people showed up, with good signs, made lots of noise, talked with people passing by.
We can watch videos of the event at www.livestream.com - type in Mayday Protest 2014. A press guy showed up to interview participants. He tried to get into the IDSA building but they called the police and had him escorted out - so much for talking with the IDSA!
There's a Lyme quilt there too, made up of lots of little squares -
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I love it! Good way to get the press on your side! What a bunch of IDSiATs.
Thanks for the update.
I think CDC should be next because if CDC breaks ranks, the whole thing starts to collapse.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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