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» LymeNet Flash » Questions and Discussion » Activism » UPDATED: URGENT ACTION NEEDED IN NEW YORK!!

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Author Topic: UPDATED: URGENT ACTION NEEDED IN NEW YORK!!
KarlaL
LymeNet Contributor
Member # 29631

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Dear Friends,

We need your assistance to ensure that sick patients receive the individualized treatments that they need for Lyme and any Tick Borne Diseases they may have. NYS Senate Bill S5520-B and Assembly Bill A7558-A will protect the patients' rights to work with the doctor of their choice to decide the best treatment plans for Lyme & other tick-borne diseases without the physicians fearing reprisal.

The Assembly has already passed this bill, thanks to the skill and dedication of Assemblywoman Didi Barrett. We now need your help to "encourage" the Senate to pass the identical bill now before them. It is currently stalled in the Health Committee, where previous versions have been left to expire.

If you are a NYS resident, the following link will take you a page where you can take ACTION!

https://www.votervoice.net/NYSCOALITION/Campaigns/36090/Respond

Once you are on the votervoice site, please scroll to the boxes at the bottom of the page.

1. Enter your reasons for wanting this bill passed, such as: "I was sick for 5 years before I received proper diagnosis", or "my child has been sick for 3 years", " I want the freedom to choose my doctor and my treatment,” etc. Adding a personal note is important because your letter will have much more value to your legislator.

2. Next, enter your email and zip code

3. Click "Continue"

4. Fill in the remaining info.

The Senate session ends June 20. We don't have much time. Every effort you can make will help.

Thank you for helping us to help YOU! We're all in this together!

PLEASE DO THIS NOW: TOGETHER WE ARE POWERFUL!

Additionally, PLEASE share this with everyone you know in NYS who may be supportive. Legislators want of be re-elected, when they hear from many of us, they will act!

Poughkeepsie Journal Editorial: State must help doctors in Lyme fight:

http://www.poughkeepsiejournal.com/story/opinion/editorials/2014/05/29/editorial-lyme-new-york-senate-assembly/9741383/

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
ellenluba
LymeNet Contributor
Member # 1707

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THanks so much, Karla for posting this.

The situation in NYS is very serious. Most of the LLMD's are being investigated by the medical disciplinary board (The Office of Professional Medical Conduct, the OPMC).

We have less than three weeks to get the Senate to pass a bill that will protect these doctors so that we don't lose our access to effective medical care. The Assembly, which has always been more on our side than the Senate, has already passed the bill.

THe fight in the Senate to pass bill S 5520 B which will protect doctors who treat with long term antibiotics will be difficult because the head of the Senate Health committee will not easily let the bill come up for a vote. It is, therefore, necessary that we generate thousands of letters in the next few days so that there is sufficient pressure on him to do so.

If everyone from NYS writes and sends a request to friends and family to do the same, we can do this.

PLEASE USE THE LETTER SENDING PROGRAM AT :
https://www.votervoice.net/NYSCOALITION/Campaigns/36090/Respond

THis is an automated system that does include a form letter. HOWEVER, by filling in a personal statement in the box labeled
"additional comments" the letter will be considered a personal letter by the legislature. PLEASE remember to fill in at least a sentence or two about your own situation and why you want the bill.
Thanks,
Ellen

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
WakeUp
LymeNet Contributor
Member # 9977

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I added the following in the letter portion:

The Borrelia Burgdorferi spirochete (Lyme Disease) is a type of relapsing fever that can persist in the body over many years-- as its "cousin" syphilis is well known to do.

Spirochetes as a group have been researched extensively by the biological weapons communities in America, Germany, Japan and Russia for their potential as "disabling" weapons because they have the ability to persist in a variety of other forms known as "dormant cysts," "intracellular L forms," and "blebs."

Recently the US Government apologized to the families of prisoners in Tuskegee Alabama who were subject to illegal biological weapons testing with the syphilis spirochete by the US military.

The Lyme disease spirochete is currently incurable in a large percentage of genetically susceptible individuals, a fact that is well known to biological weapons researchers.

Treatment with doxycycline prompts the motile spirochete to encyst itself, resulting in an increase in dormant round bodies (or cyst forms) of the disease in those treated with doxycycline, as proven by Dr. Eva Sapi of New Haven University.

Antibiotic resistant dormant cysts are viable for up to 18 months or more, according to the Drs. Brorson and Brorsons' extensive published research. A vast quantity of scientific research shows that Lyme disease can be persistent and chronic.

The IDSA and the CDC are becoming a laughing stock in the scientific community for their failure to acknowledge scientific research proving the persistence of Lyme disease spirochetes and cyst forms in the human body, and the reality of the disfiguring coinfection known as Morgellons, or Bovine Digital Dermatopathy, yet another spirochete.

The American public now no longer trusts the medical establishment because of its poor performance, pseudo science, negligence and misinformation-- especially when it comes to known biological weapons.

These captured organizations are destroying the credibility of American medicine, and have lost the trust of hundreds of thousands of citizens.

Its up to you to restore our trust. Thank you

Posts: 696 | From New York | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
poppy
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UP
Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
ellenluba
LymeNet Contributor
Member # 1707

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Thanks so much for keeping this urgent issue in front of Lyme patients to act upon.

As for the letters to the editor, there are a couple of newspapers to which it's important to send letters.

One is Newsday, because the key Senators for passage of this bill are Hannon and Skelos , both representing districts that are covered by Newsday.

http://www.newsday.com/opinion/submit-your-letter-1.2516352

THe other newspaper is the Albany Times, which will be read by all legislative offices. Guidelines for writing letters can be found at http://www.timesunion.com/lettertoeditor/
and emails can be mailed to [email protected]

Let them know the need for the bill which is currently stuck in the Senate Health committee by Senator Hannon. Please, please be polite as ranting (as we might like to do) will backfire.
Ellen

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
poppy
Frequent Contributor (1K+ posts)
Member # 5355

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up

please keep these NY posts on top

Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

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