LymeNet Flash: Help with Disability?

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»	LymeNet Flash » Questions and Discussion » Activism » Help with Disability?

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Author

Topic: Help with Disability?

icebox
Junior Member
Member # 46443

posted

I am looking for help in appealing my disability claim for Chronic Lyme/ PTLIS

are there any advocacy groups for this?

I am looking for advice/references to help in acquiring SS Disability benefits. My initial claim has been denied, which I expected, but now I'm appealing it with a SSD Lawyer.

I'm looking for any Medical articles/ Peer reviewed Medical Journals etc, that focus on chronic lyme - esp if they are focusing on patients WITHOUT a positive Lyme test result.

Thank you and good luck to you too!

Posts: 3 | From Maine | Registered: Aug 2015 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Be sure to go with an attorney who is very much "lyme literate" - if they are not, they can't really help you.

Talk to your area lyme support groups for some references.

Without a positive test, there is little to no chance lyme would be the diagnosis accepted.

What is PTLIS - if you mean "post treatment" symptoms, that really is a made up term by the IDSA to deny the existence of chronic / persistent lyme. I would not perpetuate use of that term.

However, you still have your symptoms and how they impact you. THAT is what matters. What you can or cannot do. Much more about that here.

SSDI and SSI for Lyme Disease - each thread is different:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/24420?

http://www.disabilitysecrets.com/social-security-disability-lyme-disease.html

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/110107

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/13935
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[ 08-12-2015, 03:03 AM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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http://www.lyme-aware.org/component/content/article/2-site-information/439-maine-lyme-support-groups.html

MAINE - Lyme Support Groups

Make sure any group you connect with is ILADS "aware" & "minded" - not IDSA

http://www.ilads.org/

ILADS

https://www.lymedisease.org/get-involved/take-action/find-your-state-group/

LymeDisease.org -- Great detail here. See their on line state support links, too.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Maybe something here at my Help For You page can help. Sure hope so!

https://sites.google.com/site/marylandlyme/help-for-you/disability-issues

Here is an excellent article by Dr. L that speaks to seronegative results. It is used quite often to make our points. The date on it- like the date on the last article by dim wit Dattwyler below- shows they've known about seronegative Lyme for decades.

https://sites.google.com/site/marylandlyme/chronic-lyme-disease/sensible-pursuit-of-answers

Here are "persistence articles" to prove chronic Lyme.

https://sites.google.com/site/marylandlyme/chronic-lyme-disease/persistence-articles--bibliography

Here are some of Tom Grier's articles on seronegative Lyme- always excellent work he does.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/32074?

If you want to use the Idiots stuff against them- and I highly recommend you do cause they can't dispute their own stuff....

Here is dim wit Dattwyler's article on Seronegative Lyme. (I'd put this one on the top of your pile and circle the date.)

http://www.nejm.org/doi/full/10.1056/NEJM198812013192203

If you need more, please let me know.

Also, I am sending a link to this post to someone, a LymeNet member (ConnieMac), who assists patients with SS disability. (I think she still does, not 100% positive.)

If she can help I am sure she will.

Good luck!!!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Just heard back. She will check out some places to see if there is anyone who may be able to assist. If she finds someone she will come here to you and advise you.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

posted

Looks like you are already represented so won't research LL disability reps unless you request it.

Posts: 2275 | From NC | Registered: Oct 2000 | IP: Logged |

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