posted
I received the following info about the next hearings. I'll be driving from Boston on the 18th and can fit a few more people. hats _________________________________ As you may know, the next two sessions of Dr. Jones' case before the Connecticut Medical Board (CMB) have been scheduled for Thursday, January 18 and Thursday, January 25. Here are the details:
1. Hearing session scheduled for Thursday, January 18th: This will begin at 9:00 a.m. at the Dept. of Public Health Complex, 410 Capitol Avenue, Hartford, CT, Conference Room C in Building 470. The room holds 100 people (note that this is a different location than where the last several have been held, but is nearby);
2. Hearing session scheduled for Thursday January 25th: This session also will begin at 9:00 a.m. Location to be determined. We should know this by mid-week. Please watch for more information.
CRITICAL DEVELOPMENTS IN DR. JONES' CASE:
The Connecticut Medical Board has stepped up its assault on Dr. Jones: they have dug up additional cases which involve divorced or estranged parents fighting over their kids' medical care, and want to add them at this late date to the current charges. The Board also is bringing the father in from Nevada, in the hopes of discrediting his ex-wife, who is the mother of the two children in the current case. It is likely he will try to paint a Munchausen-type picture of her, to negate the powerful testimony that she gave during her appearance at the hearing.
In response to these developments, it is time for the Lyme community to mount a powerful, visible, vocal, yet respectful response. The Connecticut Medical Board (and the Department of Public Health) must hear that Dr. Jones has been a highly valued practitioner whose dedication and expertise with pediatric Lyme disease has been a blessing and a lifesaver to thousands of children and their families.
It is critically important to support Dr. Jones not only because of his direct contributions to children with tick-borne disease and their families. If the CMB is allowed to prevail, it will pave the way for similar charges to be brought against other physicians who treat Lyme comprehensively in Connecticut and, ultimately, elsewhere. This situation, together with the recent publication of the newly revised, draconian IDSA guidelines, poses another direct threat to availability of appropriate care and patients' right to informed consent in the area of tick-borne disease. The Lyme community must express a unified, coherent and powerful message regarding our presence and determination with regard to these issues.
WHAT TO DO:
1. Attend one or both of the upcoming sessions: Offer rides and organize carpools. Bring your family and friends, as well as your children. Some of us who have helped to publicize the previous sessions are going to be away on one or more of the next two hearing dates. This, together with the uncertainty of winter weather conditions, increases our concern about ensuring strong attendance at these next two sessions.
2. Media Coverage: We are now seeking as much media coverage as possible for these hearings - newspapers, TV, etc. Is this an arena that you or anyone you know could help with? Please come forward if you do. Your ideas and contacts are vital!
3. Help to spread the word: Please do what you can to support Dr. Jones and to get the word out that attendance is more crucial than ever, etc.
4. Formal Protest: Some of us are investigating the possibility of a formal, indoor demonstration at one or both of the hearings. This is complicated and time is short, however. We are awaiting word regarding the legal requirements, including a permit. In the meantime, please plan to attend the hearings themselves - if we pack the room and overflow into the hallway, this will serve as an informal, de facto demonstration. Wear comfortable shoes, bring chairs and healthy snacks, just in case.
5. Donations to Dr. Jones' Legal Defense Fund: The cost of Dr. Jones' legal defense has been astronomical. We are lucky that Dr. Jones has promised that he won't quit, and is determined to defend both his license and the right to treat Lyme comprehensively. This could entail a lengthy appeal process and even wind up in civil court. If we want him to prevail, we must remember that his fight is our fight: this is about much more than one physician's medical license.
i'll copy this link and send to my personal LYME LIST of folks as a reminder, and to those just joining my list!
my heart supports dr. jones/ALL OF YOU ABLE TO ATTEND 1 of both hearings. i'm unable to since my hip is bone on bone. trying to move up my jan. 30 hip surgeon consult so i can get surgery scheduled/OVER! i can't stand this unbearable pain 24/7.
for those who can NOT afford to send money for his defense fund nor attend, you can afford this:
FREE PRAYERS for dr. jones that conn. health dept. will find him innocent and these charges be dropped one and for all!
i'm sure the above links has dr. jones address; i know he'd love a postcard or letter or card telling him HE IS IN THOUGHTS/PRAYERS/how much he helped get your child's health back.
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Thank-you, H&S!
Does anyone know the weather update for Thursday yet in the Ct./NY area?
TIA!
Posts: 4258 | From over there | Registered: Jul 2001
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www.google.com to find CT newspapers, CT tv stations etc.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Thank-you, FightFireWithWater!
Posts: 4258 | From over there | Registered: Jul 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Very decent weather forecast for this Thursday's hearing: mostly sunny, 38 degrees high, zero chance of precipitation!
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Good news Fight.. thanks!
Shame on MY weather man!!! All of January has been VERY nice compared to normal. In the 60's, and even 70's a few days. A lot of rain.. but it sure beats the "s" word.
BUT.. MY weather man just said the big "s" word.. and added on ice too. And only for the area where i live and the area I have to drive to/from to get to the train station!!!
Grrrrrrrrrrrrrrrrrrrrrr....
So it looks like I'm grounded. BUT...
I will be focusing on press and such.. all this week!
posted 16-01-2007 03:23 PM -------------------------------------------------------------------------------- I got about a dozen or more newspapers contacted last night before dropping off the chair.. sound asleep!
Can you drop some of them a note? The more the merrier.
Here is one of the letters I wrote.. not all were the same. I am writing to ask them to cover the events up there... NOT a letter to the editor to be published.
A doctor representing the Infectious Disease Society of America's way of treating Lyme Disease has testified against a wonderful CT doctor, Dr. Charles Ray Jones, who has successfully treated over 10,000 children suffering from chronic Lyme and other tick borne diseases.
Mothers, fathers, children and outraged chronically ill patients will be coming, once again, from across the country to protest this witch hunt.
The case involves a mother with two children who Dr. Jones made better.. NOT worse. And he is being punished for it. If he doesn't get help and if the medical board doesn't stop this nightmare they are putting us all through.. a good man will be made to suffer more... and the kids he loves will be destroyed.
A new "twist" - Just recently the CT Attorney General announced he has launched an investigation into the Infectious Disease Society of America's LYME DISEASE TREATMENT GUIDELINES! They are investigating possible antitrust violations, monopolization, and exclusionary conduct related to the development of these guidelines!
These are the guidelines the Medical Board expects Dr. Jones to follow. These guidelines have been destroying peoples lives for YEARS.. perhaps one reason he won't restrict treatment for "his kids" and adhere to them?
His oath was to "first, do no harm". He treats children to make them better and try to cure them... and won't leave them to suffer because a HIGHLY questionable medical group has vested interests which are compromised or threatened by what he is doing.
MANY children will loose the ONLY doctor who is willing to help them if he goes down. He "fixes" these kids after they have suffered at the hands of doctors who followed the IDSA guidelines or doctors who just weren't smart enough to properly diagnose and treat these children.
I am a volunteer who has worked for 20 years trying to help chronically ill Lyme patients. I've sent several thousand of these sick children to Dr. Jones myself. NEVER have I had a complaint about him or his staff.. EVER! The kids adore him! His motto is, "No child is turned away". If they can't afford treatment, he pays for the lab tests and donations cover the cost of medicine.
Will you.. CAN you... be there to present an unbiased view of this story? I have come on a 3 day train trip (one day up, stay a day, and one day back) to be there 6 times already for these hearings in support of Dr. Jones. Can you PLEASE help him?
I am chronically ill and totally disabled myself because I wasn't lucky enough to have a "Dr. Jones" helping me... and with the cold weather, dark days (legally blind from the Lyme disease) and my Lyme flare.. I may not be able to get there this time.
The hearing session is scheduled for Thursday, January 18th. It will begin at 9:00 a.m. at the Dept. of Public Health Complex, 410 Capitol Avenue, Hartford, CT, Conference Room C in Building 470.
I hope you will be the one to make a difference. I will volunteer to provide any documentation you may need to do the story. I have over 3,500 Lyme disease files here.. and I am at your service! If you are unable to be there.. please find someone who can help. And bless your heart.
Thank you!
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BUT.. a simple question to them with facts would be all that is necessary.... such as-
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Are you covering the Dr. Jones hearing Thursday?
Thursday, January 18th, 9:00 a.m. at the Dept. of Public Health Complex, 410 Capitol Avenue, Hartford, CT, Conference Room C in Building 470.
posted 17-01-2007 12:18 PM -------------------------------------------------------------------------------- here are the newspapers i sent tincup's short blurb to early am; i've shown the ones i did in the COMPLETE LIST OF NEWSPAPERS AT BOTTOM.
I'LL ADD YOUR CITY/NEWSPAPER TO MY LIST HERE SO WE CAN SEE WHO STILL NEEDS TO SEND TO:
NEW HAVEN: *********
Business Times Register Yale daily news yale herald
HARTFORD - hartford courant
MANCHESTER - journal inquiries
besides tincup, who else have sent these to WHAT SPECIFIC CITIES & NEWSPAPERS?
WOULD YOU SHOW WHO YOU SENT TO
OR GOING TO SEND TODAY TO on THIS POST? *********************************************
this way we can hopefully split up the rest so ALL NEWSPAPERS are sent this info from tincup.
tincup, thanks for making it easy for us showing all the newspaper links.
some were very hard to find the CONTACT US link; we've got to be creative on some of them!
i'll come back later and see what newspaper hHave been sent this info before i start again.
here's the list of newspapers tincup supplied:
Connecticut Newspapers
The Advocate [Stamford] Bloomfield Journal [Bristol] The Branford Review [Guilford] The Bristol Press [Bristol] The Brookfield Journal [New Milford]
DONE --- Business Times [New Haven]
The Chronicle [Willimantic]
Clinton Recorder [Guilford]
The Commercial Record [South Windsor]
Connecticut Jewish Ledger [West Hartford]
Connecticut Post [Bridgeport]
The Day [New London]
East Hartford Gazette [East Hartford]
East Haven Advertiser [Milford]
Fairfield Citizen-News [Fairfield]
Fairfield County Weekly [Stamford]
Fairfield Minuteman [Fairfield]
Greenwich Time [Greenwich]
Hartford Advocate [Hartford ]
Hartford Business Journal [Hartford ]
DONE -- Hartford Courant [Hartford ]
Hometown Publications [Moodus]
The Hour [Norwalk]
Journal Inquirer [Manchester]
Kent Dispatch [Kent]
Litchfield Enquirer [Litchfield]
The Middletown Press [Middletown]
New Britain Herald [New Britain]
betty note: i could NOT find any contact us link for this one! New Haven Advocate [New Haven]
posted
Tin, Sorry to hear about the unfriendly weather forecast in your neck of the woods. Stay safe. Ice is treacherous for sure. So glad that you are devoting your time to contacting the media.
BTW, I was told by a newspaper editor that they would be interested in running a story on the hearing, but through the eyes of local Lyme patients. Contact your local paper, CTites!
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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posted
A message for Dr. Jones: Please know that I will be holding you in my heart tomorrow, as always. Thank you for being who you are. It is a privilege to have you in my life as a shining exemplar of integrity and courage and compassion and skill.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
The hearing for Dr. Jones tomorrow (January 18, 2007) has been CANCELLED!!!
DO NOT GO!
Attorney sick... and they just let us know!!!
PLEASE wake folks up NOW if you know they are going so no one makes the trip!!!
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