posted
Looks like more garbage will be spread at this year's annual IDSA meeting in San Diego, California.
Get those green signs ready!
Lyme Disease: When Symptoms Don't Improve
Friday, October 5, 7 a.m. - 8:15 a.m. Saturday, October 6, 7 a.m. - 8:15 a.m.
Objectives: - Lyme arthritis: What determinants play a role in unresponsiveness to antibiotic therapy and what are the best treatment options in these patients?
- Understand the pathophysiology, diagnosis, and treatment of persisting, subjective symptoms in Lyme disease after antibiotic therapy
- Are coinfections with Babesia or Ehrlichia common, and how are they best diagnosed and treated?
Speakers: ALLEN C. STEERE, MD; Massachusetts General Hospital, Harvard Medical School, Boston, MA GARY P. WORMSER, MD, FIDSA; New York Medical College, Valhalla, NY
Posts: 339 | From nowhere | Registered: May 2007
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Why do these IDiots keep calling our symptoms subjective?
I personally have white matter lesions, many abnormal labs, documented EEG change, positive Babinski reflex indicating upper motor neuron damage, CDC positive ++++ Western Blot, unequal pupils, unequal reflexes, abnl EMG, abnormal cognitive and memory exams, etc etc etc.
I would seriously like an explanation of what the heck they feel is objective VS subjective.
Idiots.
Posts: 339 | From nowhere | Registered: May 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I guess it's too much to think they may be realizing they are wrong and going to find a way to make ammends to all their insanity. Ok, perhaps lyme has made me delutional. It was a nice thought though.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
If anyone on this list from California is not on CaliforniaLyme and has not heard of the event taking place during the IDSA conference, please contact CALDA VP Barb Barsocchini at for details.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
I'm planning to hop a train to San Diego for this event. Lots of convenient times to travel and a pleasant train ride with ocean views if you take the coast route. Details at www.amtrak.com or call 1-800- USA RAIL Does anyone know whether the trolley from the train station goes anywhere near the site of the walk?
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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Basically the train is going to put you 5 blocks from Seaport Village. If you take the trolley, it might save you a couple of blocks of walking. I have a map with directions. I haven't figured out yet how to post attachments on this forum. For the time being, you can send me a pm with your e-mail address and I'll be happy to forward it to you.
Looking forward to seeing you there!
Posts: 984 | From San Diego | Registered: Nov 2006
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
whoops I meant to supply Barb's email which is [email protected] or does this site erase email addresses? If so here is is again, lymebarb at aol dot com.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
Thanks for the info, Parisa. Sounds as if taking the train will be really convenient! And for those who want to save their energy for the walk, taking the trolley from the train station would save walking a few blocks.
I'm planning to arrive in San Diego by late morning, because delays ***do*** happen on Amtrak and I wouldn't want to miss the walk.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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posted
If you do get there early, Seaport Village is very pleasant with cute shops and restaurants so you will have a nice place to hang out.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
Thanks for the tip, Parisa. It's always satisfying to discover a way to turn a task into a small treat.
I understand that October days on the Southern CA coast can be especially nice and clear.
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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When I went on clindamycin, my ankle swelling -- ie, swollen Achilles heel tendon and area, which also showed as such on an MRI -- shrunk back down to a normal size. Thst's not subjective.
Any more of these kinds of objective treatment results we could list here for rebuttal purposes?
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
the denial is rampant. I was hospitalized in 2004 with heart failure, pericarditis, meningitis, and my labs pretty much showed multi-organ failure, including kidneys. (they said it was "a virus" so they wouldn't have to put me on antibiotics. I had gained 20 pounds of fluid retention in 2 weeks. while in the hospital for 4 days, i lost 14 pounds while on IV lasix. the ID I went to now looks back on those records and says the pericarditis was "presumptive"
Posts: 615 | From maryland | Registered: Oct 2007
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posted
With all h*** breaking out with the current statements by IDSA ducks, I think there needs to be some form of protest at the IDSA convention, with protest signs, etc.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Ok -- just had a chat with someone and heard the permit is for a walk, not a protest. So I wish everyone well at the Lyme walk.
Posts: 13116 | From San Francisco | Registered: May 2006
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