A wonderful editorial in the Journal of the Federation of American Societies for Experimental Biology (FASEB) this month highlights a recurring problem in modern health care: the interference of secondary gain with good science in patient treatment. Gerald Weissmann, ``Chronic Lyme'' and other medically unexplained syndromes, 21 FASEB J. 299 (2007).
Infectious disease specialists carefully considered Lyme disease and came up with treatment guidelines, which have been endorsed by the CDC. They discourage long-term antibiotic therapy, because symptoms claimed for the condition called ``chronic Lyme disease'' seem more like normal background complaints unrelated to a specific disease. The experts noted that:
In many patients, post-treatment symptoms appear to be more related to the aches and pains of daily living rather than to either Lyme disease or a tickborne coinfection. Put simply, there is a relatively high frequency of the same kinds of symptoms in ``healthy'' people.
But in response to outcries from the Lyme advocacy community, the attorney general of Connecticut reportedly has invoked the antitrust laws against the Infectious Disease Society of America. Seems there's money at stake, because insurers might decide, based on the guidelines, not to pay for long-term antibiotics. The attorney general's approach is reminiscent of earlier private litigation in Dallas, in which clinical ecologists challenged medical authorities for allegedly failing to recognize their protocols.
Weissmann points out that amplification of normal aches and pains into a ``disease'' is a practice with a long history. The 19th century had ``railway spine,'' ``chronic appendicitis,'' and ``female hysteria.'' Modern disease advocates have produced ``chronic fatigue syndrome,'' "myalgic encephalitis,'' and ``total chemical allergy.'' People who have vague, unexplained symptoms have long sought the :''dignity'' that a specific disease diagnosis confers.
Physicians practicing valid science may become exasperated with patients who insist they are afflicted, and if only the doctor is more persistent or creative, he or she could find the true agent of disease. Such patients may go from provider to provider until they find someone willing to name the illness, be it as far-fetched as ``chronic Lyme disease.'' The cost for society in all this may be more than fiscal, if the patients undertake dangerous and unnecessary therapies, as discussed in a previous post on Lyme disease..
Posts: 194 | Registered: Jul 2005
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bettyg
Unregistered
posted
HOG WASH
WEISSMAN is a wisea$$
yes, if this doesn't ruffle our fethers, nothing will!
so many MALICIOUS statements, fabrications, etc!
is there an email we can send to? i think it needs addressing!
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
In many patients, post-treatment symptoms appear to be more related to the aches and pains of daily living rather than to either Lyme disease or a tickborne coinfection.
Put simply, there is a relatively high frequency of the same kinds of symptoms in ``healthy'' people.
DO healthy people have a fever of 102 for 6 months? Do they take 10 meds a day? This makes me so mad=
Idiots
Maybe this should be posted in medical so it can get the attention it deserves??
Melissa
Posts: 3905 | From USA | Registered: May 2007
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Thanks for bringing this additional piece of biased writing to this forum's attention!
This is another example of media control and bias when there is a coverup and financial issue at stake.
Just follow the Lyme biowarfare and insurance money, and you'll discover why there is a cover up. They're desperate to keep this information from the American public.
Just GOOGLE Operation Mockingbird for detailed information on the extent of government control in our media-- especially when the issue relates to big financial interests or to national security.
Read Lab 257 by Michael Carroll to find out the facts behind tick biowarfare research on Plum Island.
LOOK at the participation of the majority of Lyme researchers in lucrative biowarfare labs-- to the tune of $44 BILLION since 9/11-- and you will understand why the media covers up the extent of this epidemic.
Yes of course you should comment!
Neither you nor I need ANYONE'S permission to be activists... we -- each one of us-- needs to bring forth change and truth as we see it -- and not wait for permission from others or hope that others will create the change for us.
Our health and lives are at at stake..... andwe are being actively LIED to by the media and by an entrenched cabal of financially interested scientists....
ALL of us need to do little things every day that put forth our position. The medical industrial complex is enrenched in corruption..
There is a revolving door between the grant receiving scientists at universities and the FDA, NIH and the CDC... We will never get justice or valid science out of these organizations because of the corruption.
WE DON'T NEED ANYONE'S PERMISSION TO WRITE LETTERS EXPOSING THE TRUTH AS WE SEE IT!!
DON'T HESITATE!!
Posts: 696 | From New York | Registered: Aug 2006
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posted
Well that's the best under exaggeration if I've ever seen one! The "aches and pains of daily living"! You mean we're all fighting to get help for nothing but a teeny tiny itty bitty inconvenience? Well sheesh, I guess my bed bound mother, who might as well be a quadriplegic, should just quit playing around and get out of bed already and do something productive!
It appears that the group of patients they're looking at are not the norm when it comes to those suffering from chronic Lyme. Oh that's right, most studies don't take patients who are as compromised as my mother. They'd take one look at her and run the other way.
They also only take those who are CDC positive, which excludes the majority of you here.
They also don't take into consideration co-infections.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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posted
If you really want a treat read the entire editorial that this article was referring to.
quote:Originally posted by BorreliaBrain: A wonderful editorial in the Journal of the Federation of American Societies for Experimental Biology (FASEB) this month highlights a recurring problem in modern health care: the interference of secondary gain with good science in patient treatment. Gerald Weissmann, ``Chronic Lyme'' and other medically unexplained syndromes, 21 FASEB J. 299 (2007).
***** But a few self-proclaimed experts and a vociferous group of Lyme disease advocacy groups argued that medical science has it wrong and that the establishment is denying treatment to desperate patients.
The advocates insisted that only vigorous, intravenous antibiotic therapy can relieve "Lyme victims" of their chronic pain, fatigue, and neurologic complaints.****
**** There is, of course, no way for a California lab to have made the diagnosis of Lyme disease on the basis of a blood test 22 years after a flu-like syndrome, even when provided with a "history of my symptoms." No tickee, no washee as they used to say before Ixodes dammini or Borrelia burgdorferi were on the map.****
**** The victim of chronic Lyme disease is in very real pain--but of the mind--and the mind chooses symptoms that will be taken as evidence of physical disease and that will win the patient an appropriate response. ****
-------------------- ~Ro~
Don't wait for someone to take you under their wing. Find a good wing and climb up underneath it~ Frank C. Bucaro Posts: 80 | From Desert Southwest | Registered: Nov 2006
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posted
Oh I just read the article - thanks for the link. (I couldn't find it originally - just a link where I could pay for the article - as if I would pay to read that load of crap).
Wow. That was utterly disgusting. I actually feel nauseous after reading that. That is clear evidence of how "modern" psychiatry can still be so primitive and abusive.
Yuck. I feel sick.
We have simply got to step up this fight somehow so that articles like that one don't get accepted in reputable journals. Blech.
Posts: 194 | Registered: Jul 2005
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posted
DISGUSTING! Same symptoms in "healthy" people? I'm 31yrs old and feel like i'm 91 , not suppose to hurt as bad as i do and forget like i do at 31 so this guy can kiss my lyme a--
Posts: 33 | From kentucky | Registered: Mar 2007
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posted
I certainly would never wish this on anyone. BUT...I think the writer of this could certainly handle a little of the "aches and pains of daily living" with Lyme. I don't even have it--my husband does...and I can certainly say he's not (and no one one this board from what I've read) making this up to have a named "illness". If he weren't having such awful herx's from his flagyl right now, I'd have him read this. I think he'd through the computer out the window. Wait, he can't even LIFT his blanket off him because of the pain, nevermind lifting up a computer, or walking to the computer..Geez. What right does this writer have making those claims?
Posts: 6 | From Springfield, MO | Registered: Jul 2007
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Try to realize, this type of writing is disinformation. Most of the authors of these articles/letters know **very well** that we are in real pain (and NOT of the mind, except where it comes to banging our heads against walls trying to make sense of garbage like that!)
Snapcrackle has it dead on -- this is a campaign to discredit our disease and our very real suffering. I know it is tempting to take it personally and try to defend against it ( and don't get me wrong, I do, too) -- but realize that big, big interests (monetary, governmental, academic, etc.) are being served here. I'm not saying that any of this is OK -- far from it, it is a heinous crime against us, and thus against humanity as a whole! -- but it isn't about not believing us.... it is about purposely discrediting us.
Just ask some of the CFIDS sufferers...they've been through the same wringer as we have, and continue to go through it now.
What blows my mind is how gullible the mainstream doctors are to buying this kind of spin.... just utterly mindblowing.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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Yes..all the signs of an "old boy network in overdrive" are plainly apparent--- for those who will only just open their eyes and get educatedabout the deception.
The pattern of deception is the same for Chronic Fatigue, Lyme, Morgellons, and Gulf War Syndrome.... (Hey... beta-testing humans with vaccines and insect vectors is a lot cheaper than time consuming trials...)
The old worn out techniques used by the medical industrial complex are as follows:
deny, deny, deny..
persecute physicians and activists with lawsuits and harassment....
call sufferers crazy, psycho, whackos to humiliate them psychologically and beat them into submission...
infiltrate online forums with fake sufferers that sneakily create disruption, doubt and conflict among real sufferers....
it goes on and on... these black op techniques are old, proven to work, and they they are taken directly out of the COINTELPRO and other Psy Op playbooks...
You wonder why we sheeple continue to put up with their lies about no chronic infection ---and with their abuse? WE PAY THEIR SALARIES TO GET THIS???!!!
Folks--- get educated and do your homework to find out what is really going on!!! Google COINTELPRO Google Operation MOCKINGBIRD Google Operation PAPERCLIP Google RELAPSING FEVER Google LAB 257 Google BAYER FACTOR 8 Google Simian Virus 40 Vaccines Google BIOPORT ANTHRAX VACCINE Google Microbiologist deaths Google DAVID KELLY MURDER PORTON DOWN Google TRANSHUMANISM
Posts: 696 | From New York | Registered: Aug 2006
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