heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
hi all,
just wondering if by any chance one or more of you lovely people will be at the 'Under Our Skin' screening at the tribeca film festival on sunday night? i'm so excited and i would love to meet other lymenet folks there!!
we had thought about going on Sunday...but its a bit to late for my husband...he has the normal life of going to work on Monday......
also....I gotta go when I feel ok....so I'm goin'. ...a friend of mine lives in the city so we may stay over......she is coming with us.....
let me know how you make out on Sunday... mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thank you Amy Tan and all those involved with getting this documentary this far.
Congratulations.
Thank you also for those who will be attending.
Looking forward to hearing how it goes.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
You lucky folks who will be able to attend the debut of this groundbreaking film! Congratulations to the film crew, everyone in it and presenters - we'll be thinking of you all this weekend!
Posts: 13171 | From San Francisco | Registered: May 2006
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
You lucky folks who will be able to attend the debut of this groundbreaking film! Congratulations to the film crew, everyone in it and presenters - we'll be thinking of you all this weekend!
DITTO to everything robin said so well! we envy you all seeing the FINAL RESULTS of what we have been discussing for 2-3 years now!
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...........and thats why Betty we are going..... to support all of you that have been waiting for this for 2-3 years...... I know it means a lot to so many....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
I bought tickets to the UNDER OUR SKIN 'coming out party' (not sure what to call it now since it was picked up by Tribeca) on May 12th. Wish I could do both.....eitherway, I'm so excited to be part of it.
Those of you going to the film festival, please be sure to give the rest of us the details in terms of turnout, discussion panel, etc.
I'll do the same for the May 12th event (which is sold out I think so that's good).
Posts: 561 | From mass | Registered: Jul 2007
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I haven't posted in a looong time, but I've been lurking here and there. I'll be at BOTH the Saturday premiere and the Sunday discussion (I know, I'm spoiled - I live in NYC). I'll be the short blond handing out flyers in case anyone wants to say hi! See you all there.
Posts: 194 | Registered: Jul 2005
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would like to met up with you Heilwalove, Onthemend, and BorreilaBrain, anyone else who is going and would like to say hello. Will look for the flyers, and large blue necklace.
I will have on light green stripped pants and green shirt, have short red brown hair. my niece has blond hair and we look alike.(other then the hair!!)
posted
My cousin and I will be at Theater 6 on Thursday, May 1 for a 2pm showing. I believe the theater is on 2nd Ave in between 11th and 12th if any of you want to join me!
Gena
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i would like to meet up with you guys too. you can click on my myspace link to get an idea of what i look like, but basically, i'm short (5'3'' or so), skinny, have short curly red hair, and glasses. i'm not sure what i'm wearing tomorrow, but i always wear my lime green awareness bracelet around my left wrist.
posted
I went to the 7PM show last night in the Village and all I can say is that this film is excellent. The theater seemed completely full and I think the show made a very good impression.
For those of you who are going to see it, you are in for a really amazing show.
-David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks for letting us know David. Looking forward to those who attended the showing with the panel reporting in too.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
You all should wear a piece of green ribbon, badge, or some sort of idenifier...or some acorns painted green (LymeNet nut). How about a green necklace out of acorns?
Have fun, wish I could join you all!
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
My wife and I will be there as well tonight. It is so great to finally see a serious attempt at creating awareness around this.
Posts: 48 | From New Jersey | Registered: Aug 2007
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We went to see the film last night in the village..... The theater was full...... Not sure how to explain my feelings but I'll try.....first off......Wow....what a great job they did in making it......it went through everything I could think of and more....
It was a roller coaster of emotions........through out the film...... At times I had to hold back the tears.....as I'm sure a lot of people in the theater did.... I think it had even more of an impact on my husband and my close friend .......at least a different impact... If any of you do live close and are going, I really recommend you bring your spouses or anyone close to you......
The director Andy A. Wilson opened the film in thanking all who came........ ...and at the end of the film he spoke. again and. he seemed very humbled by the out come. As he was thanking all who were involved in the film .....we were surprised that some were there in the audience...Kris Newby......Mandy and her husband...(the main girl in the film)..a few other Lyme victims that were in it and a few doctors...including Dr. Richard Howorwitz...(he will be in the discussion to night)......my husband had to go shake his hand for all the time and dedication he has done for our Lyme community.....
All I can say is that if you do live close by......go see it.....really....go see it......it really was something to see on the big screen......
For all who have been waiting for several years for this to finally make it......it was worth the wait...... I have had Lyme for over 20 years...I'm sure many of you have even had it longer ..... to sit there in that theatre was so overwhelmingly comforting...and that we have survived this hideous disease with such strength and dignity..........
At the end of the film there was a standing ovation....filled with an abundance of clapping.....as I stood to stand......I not only felt that I was standing for the success of the film....but for all who have survived...all who did not survive and all who are trying to survive this life with Lyme......
..it was to me a standing ovation to all of us......I felt that....I felt all of you with me....and I'm so grateful that I have LymeNet and all of you........... We are truly warriors and we fight everyday for our lives with this disease that is ``under our skin''.
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Thank you for sharing your experience....you almost made me cry as I can totally relate!!
Kristin
Posts: 561 | From mass | Registered: Jul 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Tissue please
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Does anyone know when I can buy a DVD of it?
Even if it comes to my city, I am unable to go out. I would like to get the DVD and share with doctors and family. My guess is it has to make it's appearance first in theaters, though.
So glad this is finally out. I hope it does well.
In addition to every doctor and nurse, every teacher, every politician should see it, too.
posted
I'm sure DVD will be forthcoming, but in the meantime, why don't you send an inquiry to Turn the Corner Foundation? They might be able to direct you or let you know when a DVD will be available.
There may be some time delay, but I am sure the ultimate intent is for the film to be generally available as an awareness/teaching tool. I also wouldn't be surprised to see it show up on HBO/PBS/IFC or Sundance, or something similar.
So often I have felt a complete inability to express what I've felt and what this whole experience has been like for me. I am really hoping that this film will do a lot of it for me. I cannot wait.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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posted
they said that they are hoping to get the DVD's asap.......I was hoping that they were going to be avaliable last night. I think others did too. they would have made a killing...
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
I put in a request at the above web site for Netflix to carry it.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Thanks for sharing that. Very emotional for me just reading your account. I really wish I could have gone tonight. I am not to far away but going out is difficult, but hearing your review makes me want to go no matter how difficult to do so.
Thanks for sharing. If anyone hears about the DVD I'd like to know.
Does anyone know if/how a local theatre would get this movie?
Posts: 262 | From nj | Registered: Dec 2007
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Thanks for sharing that. Very emotional for me just reading your account. I really wish I could have gone tonight.
Very emotional for me too!! Thanks for what you said, mtree. We all need this film!!
I can't wait to see it!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I have to assume that the DVD is going to be available atleast at the time when they are having the showing next month since the V.I.P. seats for $100 are suppose to include the DVD in a goodie bag.
Perhaps it will be available before then, but since it's being promoted that way, I would think it will be no later than that time.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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let me know what you thought tonight and how the discussion went........
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
I went tonight with my wife. It was absolutely excellent. Having had lyme for years without a diagnosis and feeling like the walking wounded it was great to see and hear other accounts of people like us. I found it very emotional at times and there was some light humor. Though it seemed that the humor is very subtle for those of us with lyme that can get it. Overall I think this film will help get the message out about what lyme really is. Hopefully we will eventually get the proper recognition for our illness instead of being treated like it is no big deal. I am so tired of having to hide my ongoing symptoms as i continue treatment.
Anyone that can go please do, you won't regret it and it will be very important in getting the film the additional exposure it needs if the theaters are all full.
I am so thankful to the director, producer, and everyone involved...
Posts: 48 | From New Jersey | Registered: Aug 2007
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posted
It was great. I went with my husband. It was very helpful to him. It's always been a struggle - I don't want my identity to become that of an invalid and/or complainer to him, yet I really want him to understand what I am going through. This movie accomplished that in 100 minutes better than I have been able to over the last three years.
Bigger Picture, I think it will have a huge impact on the whole TBD situation. The woman next to me was attending strictly as a film buff. I heard her gasping and tskking during the film, utterly shocked and horrified at the state of the Lyme world. I think her reaction will be typical. I hope it's the start of a new day.
Best to all of us -
otm
Posts: 314 | From east coast | Registered: Oct 2007
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quote:Originally posted by magaro: Anyone that can go please do, you won't regret it and it will be very important in getting the film the additional exposure it needs if the theaters are all full.
YES!!! Thanks for going for all of us!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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quote:Originally posted by onthemend: Bigger Picture, I think it will have a huge impact on the whole TBD situation. The woman next to me was attending strictly as a film buff. I heard her gasping and tskking during the film, utterly shocked and horrified at the state of the Lyme world. I think her reaction will be typical. I hope it's the start of a new day.
Me too!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
it was amazing. i nearly started bawling.. then cried the whole way home on the subway.
i didn't want to leave that theatre. what a beautiful relief to be surrounded by strangers who in many ways are more like family than my own blood.
i can't wait until this film gets out there. i'm ecstatic it's showing at the tribeca festival (that's a Really Big Deal in the film world, i think); it's just a matter of time until the masses see this documentary.
much love to all of you. i am so proud to be part of such an incredible, inspiring group of survivors.
posted
Wow, so happy to hear it was so good. I remember watching the 30min showing, and it was very emotional for me as well.
So, did it get much into the politics and controversy? Any discussion on the IDSA?
Anneke
Posts: 364 | From California | Registered: Sep 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
LOTS about the politics and controversy, lots on the IDSA. the film even has several short clips of the worst-of-the-worst (wormser and shapiro). but worry not, they look and sound like the idiots they are.
quote:Originally posted by onthemend: The woman next to me was attending strictly as a film buff. I heard her gasping and tskking during the film, utterly shocked and horrified at the state of the Lyme world. I think her reaction will be typical.
I am sure this will be the reaction of many. no one really understands what we go through, not even those closest to us. hopefully this film will bring it home emotionally.
Posts: 615 | From maryland | Registered: Oct 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Ripped DVD copy? Give me!
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I was there till about 9:30PM I had to leave so I wouldn't miss my bus back to Jersey. Felt bad leaving during such a good discussion.
Posts: 526 | From NJ | Registered: May 2007
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posted
They showed a group of photos of the 15 member committee that wrote the new IDSA guidelines - kind of like Wanted poster idea!!
The stories of the kids were just heartbreaking. It's ALL heartbreaking, but the kids were just the worst. And when Jordan Fisher Smith said if not for his children he might not have carried on. My husband was just staring at me. I'm nodding.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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posted
Those of you who attended last night - were there representatives from any media there? Journalists?
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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posted
Definitely press in attendance. But a lot of it seemed to relate more to covering the festival & movie recs & ratings - it is an 'industry' event.
A woman on the other side of my husband was taking a lot of notes and I saw that she had headed her piece 'Good Morning America'. I guess I should have spoken to her to get the scoop but I was feeling nervous about the movie and also wasn't functioning that great.
As we waited outside in line, a group of 'press' showed up. Again, I had the impression they were film industry press more than people there to hear specifically about the Lyme situation/controversy. But I am sure there was general press there too.
otm
Posts: 314 | From east coast | Registered: Oct 2007
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