posted
It seems to be at one pain level one day, another pain level another day, and so on, you cant bank on it for the same level of pain, you may feel like crap, or feel pretty good!
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I was recently diagnosed with Rheumatoid Arthritis and the LLMD says this results from Lyme and should go away when the Lyme goes. I sure hope so.
In the meantime, I have been reading up on RA and possible causes. Leaky Gut Syndrome is one possibility and there are many studies to support this. Two causes of Leaky Gut are longterm NSAID use (5 mths Advil for me) and Candida (yeast) infections. I have been chronic.
A change of diet seems to help some people and the diet possibilities were all over the place. I chose a vegan diet (no meat, dairy, sugar) as it made the most sense. The diet had an immediate improvement on my joint pain. Through trial and error, I have also learned that wheat and brown rice trigger my pain. Oatmeal for breakfast almost guarantees a painfree day.
I have read where this diet also significantly reduces the herx reaction RA patients experience when they use antibiotics to treat their RA. (Another theory of cause of RA is an Infection Connection. Mycoplasma is highest suspect) The way to treat it is with low dose antibiotics which in most RA victims causes a herx reaction.
A vegan diet is supposed to be the least inflamatory diet you can eat. It sure seems to be working for me.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Hi Rob - I just want to throw this out there to you b.c it was my experience on tetra...
I took it for 2 years on and off from a MA LLMD.. Before tetra I was on Bicillan and doing failry well as far as making progress....
Then I switched LLMD's due to financial reasons and was put on the tetra... I immediately got worse... and worse and worse...
I was told over and over to hang in and it was a good thing and a herx....
2 years later I was worse than before I was diagnosed with Lyme and had to start all over again with treatment.....
I am not writting this to scare you b.c it was my personal experience with tetra... But from that experience I fel that it could cause some people to become too toxic,,,, not so much a herx.....
maybe a little of both.
I know many people are helped from tetra clas of drugs so I dont want this to come across as a scary "blanket" statement. But I feel that herxing is absolutely a nessesary evil BUT, and big BUT, it should not debilitate you for weeks and weeks making you worse and worse...
There has to be balance....you should be able to function to some extent and see sme imporvement along the way....
if not I wonder if its too much toxic build up since that was the case for me....
anyway, I hope you feel better and cna get some relief soon.
Posts: 437 | Registered: Sep 2004
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Hi Rob,
I just wanted to agree with what Christine wrote above.
I got worse and worse on the Tetra, and kept thinking I was just Herxing worse and worse (and thus getting better).
Turned out I had developed Leaky Gut and food sensitivities (gluten, dairy, etc) and other problems from the prolonged use of Tetra without other immune support.
It may be worth backing off the treatment for a little while to see exactly where you are.
I too don't want to make a "scary blanket" statement, but I am wishing now that I had supported my immune system and taken better and more frequent probiotics, and other things to flush out the toxins that are created when the Lyme bugs are zapped by the Tetra.
Please be careful, ok?
Want you to be well, Warmest wishes to everyone to feel better soon!
Posts: 1066 | From East Coast | Registered: Dec 2000
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bettyg
Unregistered
posted
this list is from NAN, 10-9-06
Musculoskeletal System *********************
Joint pain or swelling Stiffness of joints, back, neck Muscle pain or cramps Creaking, cracking joints Heel pain Spinal sensitivity Movement of pain or swelling to different joints
Neurologic System *******************
Headache - persistent/severe Bell's Palsy (facial paralysis) Burning or stabbing pains Tremors or unexplained shaking Numbness in body and/or extremities, tingling, pinpricks Weakness or partial paralysis Pressure in the head Lightheadedness, wooziness Poor balance, dizziness, difficulty walking Increased motion sickness Seizures, stroke symptoms Restless legs
Mental Capability *****************
Memory loss (short or long term) Confusion, difficulty in thinking Forgetting how to perform simple tasks Speech difficulty (slurred or slow) Stammering, stuttering speech Going to the wrong place
Mood swings, irritability Unusual depression Panic-anxiety attacks Overemotional reactions, crying easily Aggression, rage Too much sleep, insomnia Difficulty falling or staying asleep Obsessive-compulsive behavior Suicidal thoughts Paranoia Disorientation (getting or feeling lost)
Head, Face, Neck ***************
Stiff or painful neck Headache, mild or severe Twitching of facial or other muscles Jaw pain or stiffness Sore throat Unexplained hair loss Scalp rash
Eyes, Vision ************
Floaters Double or blurry vision Pain in eyes, or swelling around eyes Light sensitivity Flashing lights Tearing and/or dry Vision loss/Blindness Ears/Hearing Decreased hearing in one or both ears Buzzing or ringing in ears (tinnitus) Pain in ears Sound sensitivity
Digestive and Excretory System *******************************
Respiratory/Circulatory System *******************************
Shortness of breath Chest pain or rib soreness Night sweats or unexplained chills Heart palpitations or extra beats Heart block, heart attack Valve prolapse, murmurs
Reproductive *************
Loss of sex drive Sexual dysfunction Unexplained menstrual pain, irregularity Unexplained breast pain, discharge Testicular or pelvic pain
General Well-being *******************
Extreme fatigue Symptoms change, come and go Pain moves to different body parts Unexplained weight gain or loss Malaise Chills All types of rashes on the body and /or scalp Swollen glands Unexplained fevers (high or low grade) Itching Continual infections (sinus, kidney, yeast, bladder, etc.) Increased sensitivity to allergens Exaggerated response to alcohol or sweets Nodules under the skin Early on, experienced a flu-like illness, after which you have not felt well since.
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi Rob,
It's always good to see you back here on the board checking in and saying hi.
I saw from some of your recent posts that you are trying to implement a candida diet. I don't know if you've already started, but the die-off from candida can feel a lot like a herx.
Years before I had Lyme, I had candida and that was the first time I had ever learned of the term die-off.
So even though it sounds like it's definitely the Tetra that is causing your herxing, I was just wondering if you're doing anything for candida that acutally might be making that die-off a little more uncomfortable.
I've gotten herx-like headaches and spaciness from supplements such as garlic and olive leaf extract and oregano oil that could either be working on the Lyme or the yeast - who knows.
I've never been on Tetra so I can't speak to it. I did get a toxic build-up to Doxy after about nine months, so I guess you can max out on any medication after a while.
Anyway, good luck!
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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BostonLyme2005
Unregistered
posted
Hi Jill,
Hon, I am now and have been for some time taking Biaxin-Plaq, good combo...I have not always been dedicated to the yeast diet, many times I have messed up, coke, fast foods, sugars, name it!
I then paid the price, dearly! I am now taking Nystatin, Pro-biotics too.
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hey Rob,
I just replied to your PM. I didn't realize you were on the Biaxin-Plaq combo. Haven't been on that yet, but it sounds like you're killing those critters big-time. And you are being a good Lymie and having your eyes checked while on Plaquenil, aren't you?
I've been religious about taking probiotics and they've really helped. In addition to probiotics, I also take saccharomyces boullardii, which is supposed to help reduce yeast, keep the intestines in better shape, and most importantly, try to prevent a C. Diff. infection.
One of my local Lyme pals had C. Diff.from antibiotics even before she had Lyme, so that's how I learned about s.boulardii supplements.
Oh, crud, the TV news is reporting on e.coli. in lettuce from California. Just ate some a couple of nights ago. I also ate spinach the night before the recall.
Thank goodness for being on Bicillin. I figure I could cure the entire Tainted Spinach outbreak with my personal stock of Lyme meds.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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-------------------- "Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero Posts: 254 | From new jersey | Registered: Jul 2009
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