daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
My Lyme literate doctor checks many out for Baker's cysts which he says are indicative of Lyme Disease. Because this is may be an objective sign of lyme, it might be worth checking out to see if you have them....especially if a diagnosis is in question. I never knew anything about them till a year or so ago.
The back of your knee is supposed to dent inward. Check to see if when standing with legs straight, if you can feel or notice a rounded lump in the back of your knee(s)
I have never really had problems with my knees...my lyme was mostly neuro but I was surprised to see that I do have baker's cysts.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Sure its not bartonella?
Bakers cyst
Thats about the only thing I havent had
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
for two years i have asked my doctor, physio, homeopath and everyone else why i had a huge lump on the inside part of my knee..facing the other leg. I have very thin legs so it is very noticable....no one could tell me what it was...
it looks just like the picture....thanks for the info...i am printing it off and bringing to my doc today!!
lesley
Posts: 120 | From NB Canada | Registered: Jan 2006
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daystar1952
Frequent Contributor (1K+ posts)
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posted
Tree Patrol......Thanks so much for the pictures. Why are you thinking Bartonella might cause it? That's interesting
treepatrol
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posted
Bartonella can cause these bumps also stripes like weight loss and its one of the top coinfections.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Wow!!! I have seen those lumps on my wife and they went away after 14 months of chemo for breast cancer... I didn't think anything about it...
She is lyme free ( all symptons are gone ) now and the cancer is gone...
Just my opinion, but I believe the chemo killed the lyme bugs as well as the cancer....
I have seen the lumps on my wife's relatives. They and she are from Wisconsin... I have always suspected they had Lyme from their medical problems but, when I mention it they laugh at me.
Thanks for fantistic information Daystar!!!
God Bless all Tj
Posts: 192 | From Phoenix, AZ | Registered: Apr 2005
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daystar1952
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posted
No, my cysts behind the knee don't hurt. In fact I didn't even know I had them till the doc drew my attention to them. They don't really look that abnormal...you just might think the backs of my knees were chubby :-)
Posts: 1176 | Registered: Oct 2002
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posted
Yes, I have them behind both knees. Showed up when the joint problems were actually getting better, which was puzzling. And still there after several years.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Me too..behind my right knee..showed up when I was a month into abx (three years ago now) It seems to be getting a little smaller with tx...
Posts: 740 | From BC Canada | Registered: Mar 2003
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posted
I have one, too! Behind my right knee on the inside. My massage therapist noticed it last year. My PCP had no idea what it was. Thanks for bringing it up!
posted
Ann Med Interne (Paris). 1995;146(3):208-9.
[Rupture of popliteal cyst with belated disclosure of Lyme disease]
[Article in French]
Mouly S, Van Reeth C, Bergmann JF, Segrestaa JM.
Publication Types:
* Case Reports * Letter
PMID: 7653934 [PubMed - indexed for MEDLINE]
Posts: 8430 | From Not available | Registered: Oct 2000
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treepatrol
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posted
Something just hit between the eyes Lou. After reading your ruptured baker cysts headline Those tendons I tore 2 while on levaquin and 1 just lyme before levaquin Now I wonder if these bakers cysts burst and caused to much stress and when I pressured the tendon is why they tore?
And not the levaquin after all? and 1 tore while I was just on a normal abx. Levaquin penitrates deeply maybe thats whats going on?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
pq Frequent Contributor Member # 6886
posted 27 June, 2006 11:14 PM -------------------------------------------------------------------------------- Someone inquired about this in a different thread. courtesy of georgia(the real one) on sci.med...lyme J Clin Rheumatol. 2006 Jun;12(3):160-2.
Lyme disease presenting with sequential episodes of ruptured baker cysts.
Bhambhani N, Disla E, Cuppari G.
Cabrini Medical Center, Mount Sinai School of Medicine, New York, NY.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I have bakers cysts - my LLMD told me at my last appointment that is the only swelling left anywhere. Previously I was a swelling machine. She thinks they will go away eventually and I had problems with a knee tendon too when I was on Tini and Zith.
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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posted
Gee I was just looking for what might be causing tiny very itchy red bumbs on my arm when I stumbled across this post.
LLMd asked me if I had Bakers cysts on my first visit, I said no. Figured I would know if I had them. I had no clue as to what they were when I answered. Anyway I have them on both knees.
The back of my knees hurt so bad for a couple of weeks before I started antibiotic. Was thinking tendonitis. That went away, the reverse knees are still here..
Posts: 465 | From New York, NY | Registered: Aug 2005
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posted
Arm pit picture. Was that a person with bartonella or was it a baker's cyst? Can you get baker's in your pits? They are just below a joint.
???? I have lumps in both arm pits. They are much smaller then the picture. (maybe 1/4th the size)but in that same spot. My regular PC said they were polycystic breast tissue. But I am wondering.....
Posts: 258 | From Washington State | Registered: Nov 2005
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posted
Sigh -- this is what I'm going through -- and what I want to know is, how do we know whether it's a lipoma or a cyst?
I had surgery on a growing lump in my thigh and it was an unencapsulated lipoma. Now it's spreading again and causing 24/7 knee pain. I am using an icepack 24/7, alternating with waving a red light machine over swollen areas. Other pain relieving tips?
I also have had lumps growing everywhere in my calves and behind my knees. The Ultra mangosteen juice has successfully softened all the new lumps but not the oldest lipoma one.
I don't have a clue about the lipoma issue. Why does the body start making lipomas, either capsulated or unencapsulated? I don't think there's any science on it.
And how do we tell if we have Lyme arthritis? I don't have anyone medical to go to to tell me what's going on.
Basically, there are painful ripples spreading around my left knee. What kind of a symptom is this? How could we begin to find out what's happening? Any suggestions appreciated! Thx.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Okay, I'm confused. By the pics I imagine a nickel sized lump that you can palpate and more to one side.
What I have is on the back of both knees where
peoples' usually are concave, my skin swells out
(Convex)like it is swollen. It is about a 2" in
diameter circular or more oval I guess like an egg.
But I always thought
the lymph glands there were just filled with
more fluid (backed up) or something. I thought it
seemed less swollen after MDL - Manual Lymphatic
Drainage. Myself and
3 Dr's think I have Bartonella. Only test
positive thru EDS, ART and by symptoms when on a
Quinolone. No positive test and haven't started
Rifampin yet.
So what is your opinion do I have Baker's Cysts?
Thanks, lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
Stop guessing & go get un-confused- go have an Xray. Mine was the size of a baseball. Had it for several year- but It completely went away. Barb
Posts: 1875 | From VT | Registered: Oct 2002
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posted
I also have a bakers cyst behind my right knee. I just finished 28 days iv rosephrin and it is still there. Chrio. relieved my severve headache last mon. As a last resort I went to him as pain med. was not working at all, even after they gave me something stronger. I am sooo relieved and looking foward to meeting my lyme md next sat. How long do I need to be off abx before I can send my blood to igenex? Thanks
Posts: 9 | From martha's vineyard. ma | Registered: Nov 2006
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posted
A Baker's Cyst was my first indication of something wrong in my body.
Do they hurt? Oh Yeah! At least mine did - it was nauseating pain until I finally got a cortisone injection and they drained the cyst. It tested negative for Lyme, but they didn't test for co-infections. And since it was early on and I hadn't yet researched tick-borne illnesses, I didn't know to ask.
Karen
Posts: 154 | From Medford, NJ | Registered: Jun 2006
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treepatrol
Honored Contributor (10K+ posts)
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posted
I have a cyst now it on my thumb little but I can shove it around dosent hurt.
I think its what I have now is Ganglion cyst not bakers cyst.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I have a strong suspicion bakers cysts are caused by brucellosis.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Have any of you actually had the fluid drained from one of these cysts? If it doesn't contain fluid then it's probably a gumma.
Posts: 975 | From California | Registered: Apr 2007
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daystar1952
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posted
In my original post I mentioned that the baker's cysts behind my knees were not causing me any problems but now it appears as if fluid from the cyst in my left knee may have seeped out around the knee joint?
It is now difficult to walk and bend my knee without pain. Just trying to see if others think the two things are connected. I had this happen once before and after a few weeks it got better and the knee pain went away. As long as I can hope it will go away....I can deal with it
Posts: 1176 | Registered: Oct 2002
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glm1111
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posted
Burgdorfer found Filarial Worms in the ticks and as an aside found the spirochetes.
All of the attention has gone to treating borrellia and the fact that Filarial Worms could be an even bigger problem has been virtually ignored. Why?
Microfilarial worms live in the lymphatic ducts and can progress to elephantiasis. They can obstruct the vessels causing the surrounding tissue to become enlarged.
Possibly bakers cysts? I think this could be a real possibility.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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feelfit
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posted
Want to tell you that my Bakers Cysts of 17 years went completley away after about week 4 on IV Rocephin. It has been a year and they have not returned.
For me, definately caused by Lyme. Bb loves synovial fluid.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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daystar1952
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Thanks for your responses! I wonder if antibiotics kill these worms. Another researcher has told me they are finding these worms in ticks. Hmmmm
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bpeck
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posted
Bakers cysts are swellings inside the knee - and yes they can be from Lyme. They're also called popliteal cysts if you want to research it.
I had one for a long time in my right knee.. and it totally resolved and that kee is fine.......now with my Lyme relapse I have one in my left knee ( Have I said Lyme sucks?).. I'm on DOxy now to see if it resolves.
posted
I have one in my knee. Can't see it visually, only on MRI.
Posts: 688 | From CT | Registered: Jan 2003
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treepatrol
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up
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
feelfit
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posted
My bi-lateral Baker's Cysts have returned 2 1/2 years after they had resolved with IV rocephin.
Pereviously I had had them for 17 years and after 4 weeks on IV rocephin they were gone....not very encouraging that they're back now..
Has anyone had the fluid aspirated and tested for spirochetes?
feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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karenl
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posted
I had one behind the knee.
My grandfather got a big one on his arm at 95. he also got suddenly blind on both eyes and got then parkinson. Except for this he never was sick in his life or took any medicine.But he did a footbath every week with salt only.
Posts: 1834 | From US | Registered: Oct 2008
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