posted
Hi Melanie, Has your friend spoken with anyone at www.roadback.org .There are a number of scleroderma patients over there that have put their disease in remission with minocycline.Some of them who were close to death doing well now.
There is a post there now by some one named Michele I believe who had a serious case and has been well for 4 years but insurance wont refill her brand only minocycline that scleroderma patients have to have.The generic is not as effective.
I believe you are onto something in that I truely believe alot of these diseases may have a microbial base.Mino from what I hear also inhibits collagen production as well .I wish you and your friend well as scleroderma is particularly cruel.God Bless,RG
Posts: 140 | From Texas | Registered: May 2006
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
THANK YOU so much Radiogirl for finding another avenue to explore!
My friend has been off-line for several weeks now, but I am in phone contact with her, and am saving all information for when she can get back up and running again.
It IS wonderfully coincidental that another drug of the penicilin family is helping their Scleroderma...
Once again... thank you so very much!!!!
Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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