I was wondering if people doing Buhner's or Zhang's protocol have experienced any sun sensitivity on the herbs.
I've been on antibiotics for three years. They've helped some, but I'd say I haven't made much progress over the past year. Since starting the antibiotics I've had severe sun sensitivity. I get burnt unless it is pitch dark outside. No light sensitivity, like regular lights hurting my eyes, but what feels like a sun burn.
I'm thinking of switching to an herbal protocol-- probably Buhners, although I've also been looking into Zhang's--in hopes of seeing the sun again some day.
--Feeling like a vampire
Posts: 30 | From CA | Registered: Oct 2006
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bettyg
Unregistered
posted
Welcome, I'm sending you a private message, pm, of newbie links/advise.
Not on herbal supplements, so I can't answer you.
DOXY really affected me eyesight and made me burn outside driving to LLMD appts. Wear long sleeves, cotton gloves, long pants in car covering yourself well.
I wear a floppy hat that covers my checks and forehead too. Bettyg
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Below is a list of drugs associated with sun sensitivity. The worst offenders, in my experience, are the tetracyclines (including doxycycline, minocycline, doryx) although I became photosensitive with others.
I had no luck at all with the Zhang protocol as of 2002. I'm using the Buhner protocol now, as a follow on to longterm abx treatment for LD/Co. The abx may have done the job, so I dunno if I can ever evaluate the effectiveness of the B. stuff, but I feel safer on it. Herbs can cause photosensitivity (St. John's Wort is notorious for it) so check carefully. I've had no photosensitivity on the core B. protocol. for LD.
Drugs Associated with Photosensitivity Reactions (NOT a comprehensive list)
Antibiotics Doxycycline (Vibramycin and others) Floxin Minocycline Tetracycline Trimethoprim (Sulfur -- addition from another list)
hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
I don't think herbs cause problem with sun like some abx. Never read that, that I remember (at least Buhner's herbs and most common herbs used for lyme).
I had light sensitivity (light caused me pain in the eyes or sometimes extreme bad feeling, like fatigue) and got better with herbs (Buhner plus others), I think I'm down to zero sensitivity for the moment.
I can take sun, the only thing that makes me stop being under the sun is excessive heat. But that's exactly like before lyme.
Hope this helps.
Posts: 1086 | From Switzerland | Registered: Oct 2005
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posted
I have sun sensitivity while taking doxycycline and minocycline, and no sensitivity while on Buhner's protocol.
Posts: 449 | From Vermont | Registered: Nov 2004
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Same for me as SweetPea. Sensitivity on ABX...... no sensitivity on Buhner Core Protocol.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
Thanks for the information, everyone! That's encouraging to hear, Sweetpea and Robi.
It doesn't seem to matter what Abx I take, I burn. I cover up EVERYTHING. I wear a hat and face mask and I still burn. I get burnt through windows. Doxy and Zithromax did seem the worst, though.
Thanks again!
Posts: 30 | From CA | Registered: Oct 2006
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