"Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, chronic Lyme disease, lupus, multiple sclerosis, fibromyalgia, primary sleep disorders, severe obesity and major depressive disorders. Medications can also cause side effects that mimic the symptoms of CFS."
"Because CFS can resemble many other disorders, it's important not to self-diagnose CFS. It's not uncommon for people to mistakenly assume they have chronic fatigue syndrome when they have another illness that needs to be treated."
Posts: 621 | From US | Registered: Jun 2006
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"Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, chronic Lyme disease...."
"Because CFS can resemble many other disorders, it's important not to self-diagnose CFS. It's not uncommon for people to mistakenly assume they have chronic fatigue syndrome when they have another illness that needs to be treated."
CDC position #2: Chronic Lyme IS NOT an Exclusionary Condition:
"Conditions that do not Exclude a Diagnosis of CFS:
...Any condition, such as Lyme disease or syphillis[sic], that was treated with definitive therapy before development of chronic symptoms."
Translation:
If the IDSA says you've had adequate treatment, welcome to the CFS club.
And now the CDC wants you to wear the 'chronic fatigue syndrome' label with pride. They no longer consider it psychosomatic, and there's a new CDC public awareness campaign to get more people diagnosed with CFS.
"[b]Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, chronic Lyme disease"
I like it. I'm not looking for blame. certian folks are finding out we have cures for previous thought incurable diseases. recognize the problem. treat it. the rest be damned.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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bettyg
Unregistered
posted
fighter; FANTASTIC FIND! Way to go for surfing around to find the LATEST CFS/lyme news.
I saw on CBS tonight the CFS special they apparently had on NBC last night and hung onto every word said! Thanks for posting GOOD news from the CDC sight for a change. Bettyg
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posted
Here is the reason they are not contradictory, in the second statment, the CDC includes the word BEFORE.
Now, they are still wrong, because people also still develop Chronic Lyme after definitive therapy before Chronic symptoms appear.
The questions are numerious.
What defines curative therapy?
What is Lyme Disease?
What is the exact definition of Chronic?
Can chronic, as a word, mean different things depending on the age group, sex, race, or national origin?
The CDC, though seemingly tricky, still fails because, there are so many different and varied definitions, which remain undefined. Therefore, anything based upon an undefined perameter, in this case, I just listed several, is also unknown.
We can conclude therefore, almost nothing with absolute certainty until the above questions have adaquete scientifically based and numerically languaged answers.
Posts: 559 | From Cary, NC | Registered: May 2006
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posted
What is really ridiculous about their entire statements is that for 13 years, I was diagnosed as having CFS.
Guess what? When I was so sick I couldn't move two years ago, I had to look into the possibility of going on disability. SS DON'T RECOGNIZE CFS AS A DISABILITY OR A REAL DISEASE!
That's why when I was correctly diagnosed with lyme a year ago, I was thrilled. At least I has a "real" disease that I could get disability on if I continued to fail. HA!
Now I know they don't recognize chronic lyme as a "real disease".
OK CDC and SS, THEN WHAT DO I HAVE THAT HAS STOLEN MY LIFE AND MADE ME AS ILL AS SOMEONE GOING THROUGH CHEMO EVERY DAY?
Sorry for the rant...these agencies play with people's lives as if we're all just faking. When I contacted a disability lawyer, he told me that in order to get SSD, I'd have to have a doc diagnose me with DEPRESSION and even that would be a fight!!!
ARRRGGGHHHHH!! Posts: 867 | From PA | Registered: Jan 2006
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posted
Lymescience, I agree that the questions you raise should be problematic for the CDC -- unfortunately I think we all know what the CDC's position is on every one.
quote: Here is the reason they are not contradictory, in the second statment, the CDC includes the word BEFORE.
It's still contradictory when you consider that "chronic Lyme disease" includes people who received "definitive" therapy, did fine for a while and then relapsed with chronic symptoms.
Do those people have an "exclusionary" condition for CFS or not? CDC says both.
quote:What defines curative therapy?
What is Lyme Disease?
What is the exact definition of Chronic?
Yes, these are questions as far as "truth" is concerned. But not as far as the CDC is concerned. To them, these questions are answered by the IDSA (link to new IDSA guidelines is everywhere throughout the CDC's Lyme pages, along with warnings against long-term abx). If true:
IDSA defines "curative therapy" for Lyme.
Lyme disease is defined as the CDC surveillance definition.
"Chronic lyme" is defined as equivalent to "Post-lyme syndrome" according to IDSA guidelines - it has nothing to do with persistent infection.
This is why the first CDC position above (which says chronic Lyme exists & excludes CFS) is so striking to me. My guess is that the CDC just hasn't gotten around to removing it. The second position above is totally in line with IDSA.
CDC has the power to define these parameters for themselves (regardless of science) which is all that matters in this context. Just my .02.
Posts: 621 | From US | Registered: Jun 2006
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quote:I read the treatmet link for CFS on the CDC and ...yep...no known treatment.
Yup, that's what makes the campaign title "Get informed. Get diagnosed. Get help" so ridiculous, IMO. You get diagnosed... and where's the help? Antidepressants and cognitive behavioral therapy?
When Lyme is the kind of thing that really does require early diagnosis and treatment.
Posts: 621 | From US | Registered: Jun 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I think they mention CFIDS in regaurds to it can "resemble" Chronic Lyme-
It's cheaper for the gov to slap a CFIDS label on. Dirt cheap to treat. Throw some supps & anti-depressants at them.
They have found an eternal loop hole for "chronic lyme" in CFIDS.
No real tests or treatment for CFIDS. I believe this is why they even used the word "chronic lyme"...Just my 2 cents.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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quote:Originally posted by tabers: Looks like we are all going to have to find our own cure or buy antibiotics underground
Which we have. The Lymenuts figured it out .
We have some good experts on board. Essential oils, ascorbic acid, detox, metal toxicity, silver. Borrelia infection is very curable imo. The CDC cannot state these are cures because of FDA restriction. (please say no to CODEX!)
As for the CDC...jmho but they were forced to lie simply because abx cannot treat the masses who have a borrelia infection.(which is already a pandemic). By doing so they would create a even bigger monster. tricky situation to be in.
Lots of lives have been destroyed and will continue to be destroyed. I suppose it's up to us to tell everyone who has a possible borrelia infection. (CFS, Alzheimer's, ALS, etc...the list is large) that cures are indeed available.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
Another report speaking of chronic Bb:
B. burgdorferi and B. garinii infections also induce the chronic central nervous system manifestations of neuroborreliosis
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
I just like seeing that the CDC acknowledges that there IS such a thing as Chronic Lyme disease!
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Right, since chronic Lyme no longer exists by CDC standards, something has to be done with all these complainers. Labelling them as CFS seems to be apparently a good idea.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
[QUOTE]Originally posted by cave76: [QB] How the CFS clinic at UCSF *excluded* Lyme disease as a possibility: Simple. They used the ELISA! At their lab. ********************************************8
BINGO!!!
Have we heard that before?? !!!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
20 years ago, it was CFS that was the "yuppy flu," and patients were being labeled as nut jobs or lazy. The CDC was using the narrowest possible definition to count patients, and ignoring many of the most debilitating late-stage symptoms.
Sound familiar?
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
The CFS people all mobilized and approached the CDC and various other parties to obtain the recognition they needed. Go to immunesupport.com. They are one of the bigger organizations associated with all the recent publicity you have seen in the news. They are even trying to rename the disease/syndrome to be more definitive. We should take lessons from them. It took them a long time, but ultimately, they have been successful.
Posts: 2276 | From NC | Registered: Oct 2000
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posted
Does anyone really belive in autoimmune anymore? All diseases such as MS, ALS, CFS are simply a classification of symptoms to a chronic type infection.(like borrelia).
I don't believe in the tooth fairy anymore and it appears the CDC is beginning to state what I'm sure they already know.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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posted
Lyme disease is a vector borne infectious disease, which the CDC is MANDATED to protect us from. Since they have FAILED MISERABLY at that, they are now making the move to bring us mis/undiagnosed lymies under the umbrella of CFS/CFIDS, which, according to them is a diseased state with no known cause and no definitive therapy.
Makes them look a WHOLE LOT BETTER, wouldn't you say!!!
Fcukers!!! pardon my French Connection UK. Posts: 294 | From nevada | Registered: Sep 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Excuse me,
They refer to "Chronic Lyme"? Isn't IDSA denying it's actual existance?
This is absolutely perplexing.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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* B. burgdorferi...infections induce chronic neuroborreliosis.
* Short term ("standard") antibiotic treatments cure neuroborreliosis.
* IF neuroborreliosis reemerges "post-cure" it is not to be considered as an ongoing infection, but rather as "post-Lyme" (auto-immune) syndrome.
* Post Lyme patients must not receive long term antibiotics, which do not help autoimmune syndromes such as Chronic neuroborreliosis.
*Ignore the small man on the box speaking into the microphone.
------
But in the real world, ongoing antibiotic therapy has helped those labeled "Post Lyme."
So even if (for the sake of argument) we assume that short term antibiotics may morph an infection into an autoimmune syndrome, if ongoing antibiotics alleviate the syndrome why not offer them?
In what other situation would a physician fail to consider that ongoing benefit from antibiotics just might be due to an ongoing infection?
-------------------- Neil Posts: 697 | From Tucson, AZ USA | Registered: Apr 2002
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Oh....
so "chronic Lyme disease" = an "auto-immune syndrome"
but if the spirochetes are still in there......
still
This is all they have to offer for "Chronic Disease"?
Adopting healthy behaviors such as eating nutritious foods, being physically active, and avoiding tobacco use can prevent or control the devastating effects of these diseases.
I still say we should put ticks in their beds!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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