Pam, the author of "Cure Unknown" and Kris, producer of the movie "Under Our Skin" have a discussion and debate issues with Shapiro on a San Francisco Radio Station. TAKE A LISTEN
We are sooooo fortunate to have people like Pam and Kris on the frontline for this disease.
Posts: 641 | From So. CA | Registered: May 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
but when and where and how to listen? i'm on the east coast and can't find it on schedule or anything-thanks
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
this is disgusting.
shapiro is a bumbling idiot who i bet has lyme himself, he cant even talk right.
he states there is no evidence that long term abx help. where are they getting the data????
what about me, you, and all of us on here who are getting well from them?
its just so sickening! i hope they all get hung out to dry
then he has the balls to say there is no evidence that many of us have lyme, but isnt that because the testing is BS? i mean its so ridiculous, a small child could pick this apart! the people who are in charge of writing treatment guidelines for treating an illness as devastating as this have a mental capacity of a three year old?
there is no evidence because the means to obtain the evidence doesnt exist! how hard is that to understand. blows me away.
wait til i finish school and start treating this. im going to call out these bullies out and its going to be a hay day.
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Joseph J. Burrascano said it best: "There is a core group of university-based Lyme
disease researchers and physicians whose
opinions carry a great deal of weight.
Unfortunately, many of them act unscientifically
and unethically....They adhere to outdated, self-
serving views and attempt to personally
discredit those whose opinions differ from their
own. They exert strong, ethically questionable
influence on medical journals, which enables
them to publish and promote articles that are
badly flawed. They work with government
agencies to bias the agenda of consensus
meetings, and have worked to exclude from these
meetings and scientific seminars those with
alternate opinions. They behave this way for
reasons of personal gain, and are involved in
obvious conflicts of interest....Some of them
are known to have received large consulting fees
from insurance companies to advise them to
curtail coverage for any antibiotic
therapy...even if the patient will suffer. This
is despite the fact that additional therapy may
be beneficial, and despite the fact that such
practices never occur in treating other
diseases."
(Before the Senate committe on Aug. 5, 1993)
If you want to know how really "flawed" their tests were - read Pamela Weintraub's book "Cure Unknown".
Posts: 641 | From So. CA | Registered: May 2008
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Angelica
Unregistered
posted
shazdancer had a note worthy comment on Shapiro
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
peedie-thanks for your pm and help
hard to believe dr B said that 15 years ago and we are still dealing with this-stuff sure does move slow...huh?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks. Tried to listen to it this am but the brain is not up to it. Will try again later gator.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Angelica
Unregistered
posted
underourskin.com Blog
Film producer is interviewed by NPR's San Francisco affiliate (KQED)
Posted: 22 Oct 2008 01:28 PM CDT
Last week I was interviewed by KQED Forum host Dave Iverson on the physiological effects of Lyme disease, and on the controversy surrounding its diagnosis and treatment. Joining me was Pam Weintraub, author of the book, ``Cure Unknown: Inside the Lyme Epidemic.''
During this hour-long radio show, we were able to discuss these important points about Lyme disease:
-Lyme disease is often difficult to diagnose because of inaccurate testing, hard-to-measure neurological symptoms, and a complex clinical picture when a patient is infected with other tick-borne co-infections.
-There are over 100 strains of Lyme disease bacteria, and the standard tests don't detect all of them, resulting in the misdiagnosis of many Lyme sufferers.
-There is a growing body of scientific evidence that demonstrates that the Lyme disease bacteria can survive a four week course of antibiotics and go on to cause chronic Lyme disease.
Pam discussed one recent study that could explain why some patients relapse after a short course of antibiotics (published by UC Davis researcher Stephen Barthold).
In this study, Dr. Barthold found that Lyme bacteria exposed to antibiotics often go into a dormant state inside tissue, then once antibiotics are halted, the organisms convert back into motile Lyme spirochetes.
She also summarized the flaws in the NEJM ``Klempner Study,'' which is often used by insurance companies to deny long-term antibiotic treatments to chronic Lyme patients. Most important, this study was flawed in its selection of test subjects:
Seventy-five percent of patients enrolled had failed treatment for early Lyme disease, so these very sick patients weren't representative of a typical response rate.
KQED Forum also featured a surprise caller, Eugene Shapiro, MD, a Yale pediatrician and one of the 14 authors of the contested IDSA Lyme diagnosis and treatment guidelines.
We were delighted that Dr. Shapiro had a chance to weigh in on the Lyme controversy, but we were disappointed that he failed to mention that he supplements his university salary by reviewing Lyme patient disabilities claims for Metropolitan Life.
He has also testified against two Lyme-literate physicians who treat chronic Lyme patients with long-term antibiotics.
Both Pam and I emphasized the need for more Lyme disease research, and I heartily agreed when she said, ``We're going to have to turn our backs on the fight and look at the science to get down to the bottom of this.''
You can listen to an archive of this radio show on the KQED website. We also encourage you to weigh in on this issue by sending comments to [email protected]
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