posted
I am just now able to sit up (10 days after procedure). Worst headache ever. I want to kick all of my Docs square in the nuts (only, some are female).
They said this website was full of crap and not to listen to your horror stories.
I certainly trust this site more now than ANY Doctor!!
Thanks for trying to stop me - those who did, Kevin
Posts: 22 | From Texas | Registered: May 2007
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quote:Originally posted by Kevin Hamblin: I certainly trust this site more now than ANY Doctor!!
Me too!! Thanks for the vote of confidence!
Did you post this in medical too?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
oh poor you. Lesson lrarned, i too will NEVER allow a LP. Maybe if I'm in a coma...naw, not even then.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sorry sweetie, but what did you have? i honestly can;t remember. lyme brain ya know.
whatever, please listen to this board. they know more than any llmd, well, except a few.
no matter what i ask, somebody has already had it and been there before...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I am sorry and they do SUCK BAD. Never again!!
Posts: 3905 | From USA | Registered: May 2007
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quote:Originally posted by Kevin Hamblin: I am just now able to sit up (10 days after procedure). Worst headache ever. I want to kick all of my Docs square in the nuts (only, some are female).
They said this website was full of crap and not to listen to your horror stories.
I certainly trust this site more now than ANY Doctor!!
Thanks for trying to stop me - those who did, Kevin
Was the opening pressure high?
My kids have pseudo-tumor cerebri and LPs are the only thing that helps them.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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bettyg
Unregistered
posted
kevin,
sorry to read this! yes, this board is lyme savvy; so listen to them and take the printed copies of EVIDENCE BASED stuff mds want in order to believe you are creditble!
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posted
They said this website was full of crap and not to listen to your horror stories.
Well, that statement right there ought to let you know where those docs were coming from. Sorry you had such a horrendous experience with the LP.
Elle
Posts: 217 | From New Jersey | Registered: Apr 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter had a spinal tap before she was diagnosed with bart/babs. It was, of course, normal.
The next day her head hurt so bad I had to taker her back to the ER. They gave her demoral. She said that was the closest to heaven she has ever been.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Hey, I was going to do this... I think I should seriously re-consider. Thanks so much for sharing.
Posts: 390 | From Oakland, CA | Registered: May 2007
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Never again will I have a lumbar puncture. I got the worst headache and have to have the blood patch to get rid of it. The doc doing th blood patch said if docs who did lumbar punctures would use the proper needle there would be no headaches, but they use a larger needle to get the fluid out faster. I don't understand why they just don't do a blood patch and insert blood to cover the hole the made routinely. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8887 | From Illinois | Registered: Aug 2004
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posted
My daughter had 2 spinal taps within 7 months. Both taps showed high opening pressure, but the idiots at the hospitals did nothing. First pressure was 250, second was 230. We were told 230 may be her normal pressure, "Take her home and get her back to a normal life." It's a mystery, we may never figure it out. Samantha stopped vomiting after 2nd tap and when we got home from hospital I researched what would cause increased cranial pressure and saw that lyme can cause that. Found the symptom checklist and got her to an LLMD as quick as possible. If she starts vomiting again we will have to take her for another one. Have been using diamox for pressure, just have to keep an eye on her blood pressure and she can not take anything like doxycycline.
Posts: 41 | From Warfordsburg,PA | Registered: May 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
When they do the LP is it routine to check the pressure? I was too sick to remember. They didnt say anything about it...Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
I with you Merrygirl. I have had many lp's and nobody has ever told me what my pressure was.
Maybe it depends on why you have the lp to begin with.
Sorry Kevin you had a bad experience. I have had it both ways. Only of a couple times with the bad pain and needing the blood patch though.
The last few that I have had have actually made me feel better.. hmmm???
Maybe I need to research the pseudo-tumor cerebri myself. Is this common with LYME??
Posts: 73 | From phoenix, az | Registered: May 2005
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I don't know what the starting pressure was. I was hoping it started a little high, so my head would feel better (because I had headaches before the LP).
The good news is, my Commander and ID want to send me to an LLMD and have the military pay the bill!!! I might actually get some progress!!!
Kevin
Posts: 22 | From Texas | Registered: May 2007
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It's amazing that the AF would even consider an LLMD! But it sounds like your Commander is open minded and not full of him/herself! That's awesome news!
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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