LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter



Tax deductible

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Cured of ME/cfs on antiretrovirals

 - UBBFriend: Email this page to someone!    
Author Topic: Cured of ME/cfs on antiretrovirals
Lalkay
Junior Member
Member # 50146

Icon 1 posted      Profile for Lalkay     Send New Private Message       Edit/Delete Post   Reply With Quote 
After 20 years of ME I am now cured.
My 4th year on antiretrovirals viread and raltegravir. I don't have lyme.
Mikovits guided my physicians and got me better.
I got sick after measles rubella and polio booster 20 years ago as a teenager.
Never had lyme. Was tested extensively.
Mine was pure ME/cfs.

Posts: 8 | From Europe | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 
-
So glad to hear of your recovery. I know Mikovits has done some exemplary work in retroviral research for the ME community.

Glad to hear of her consultation with your doctor.

Were you found to have XMRV? Still, there are various retroviruses that can cause big trouble and most doctors have no clue about what all can be done.

Thanks for the names of the Rx that were part of your plan. I've studied many herbs that have antiretroviral properties and wonder if you used any of those. Still, your success with the Rx rather says those worked.

Did you also have herbal / nutrient support on board?
-

Posts: 47990 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 
-
For those who may want to learn a little about the main guiding expert, her work can be found starting with a Google search for:

Mikovits, retrovirus
-

Posts: 47990 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am so happy to hear you are well! What a blessing! Thanks for sharing your story!
Posts: 853 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Lalkay
Junior Member
Member # 50146

Icon 1 posted      Profile for Lalkay     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, and she says the Lipkin study was fraud.
There was indeed a retrovirus.
Lipkin promised her a chance to publish her isolation of XMRV-Mikovits if she just agreed to sign that it was not XMRV-SILVERMAN, but he lied. So everyone thinks she was wrong. In fact she was right

Posts: 8 | From Europe | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
Lalkay
Junior Member
Member # 50146

Icon 1 posted      Profile for Lalkay     Send New Private Message       Edit/Delete Post   Reply With Quote 
No I never got round to being properly tested . I was one of the UK patients waiting to have my blood drawn.
My doctors saw she had been framed.
We took a shot on the dark and I took the antiretrovirals. Had my whole life in front of me. We figured out the politics and called Lipkin's bluff.

Posts: 8 | From Europe | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 
-
I knew that the reports against her work years ago - that those who bombarded her work were really wrong. I was so sorry she had to go through all that but glad she did not give up.

I'm so glad to hear that my instinct was right on that. It was a turbulent time and I could sure smell a set up. Horrible to think that it actually was, though.

But then, for so many years, anything tangible about ME/CFS - and those real researchers working to solve all the puzzles with that - well, they have so often been wrongly discounted or severely misinterpreted . . . as have many regarding tick-borne bacteria & viruses.
-

Posts: 47990 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lalkay
Junior Member
Member # 50146

Icon 1 posted      Profile for Lalkay     Send New Private Message       Edit/Delete Post   Reply With Quote 
She thinks Lyme bacteria propagates retrovirus.u have the rv.Then get bitten. lyme bacteria helps make the rv spread like mad.Hit it but it just won't calm down.So you probably gotta go nuclear n blast it to pieces.Enter blue and red army of viread and raltegravir.Low dose then build up quick to full dose? Just like in ME?No one with resistant nasty lyme tried ever?
Posts: 8 | From Europe | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow! Interesting! My case of nasty lyme went acute and mad very quickly. I wonder if this is why. Thankfully I'm doing much better but it also makes sense why mild hyperbaric would work as it tends to put the immune system back in charge. I'm doing this now to take care of remnants- really, this is so interesting because I kid you not- within a week I was saying the wrong words and about knocked off my feet. Thank you for sharing this! Great for you! Thanks for promoting this treatment! Wonderful that you never Gave Up! Hooray!
Posts: 853 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
duncan
LymeNet Contributor
Member # 46242

Icon 1 posted      Profile for duncan     Send New Private Message       Edit/Delete Post   Reply With Quote 
Along with 2 other patients, I sat down and talked with both Judy Mikovitz and Hilary Johnson for the better part of an evening. This was about a year before the xmrv dam burst.

Two extremely intelligent and driven people.

Posts: 225 | From Unitied States | Registered: Jul 2015  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have to hand it to lyme patients on this thread and in this case me patients(former)- Thank you for being a bunch of tenacious information gatherers for the benefit of so many- really, thank you. Not a day goes by I am not grateful for this site and quite frankly warrior community! Thank you...
Posts: 853 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster