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» LymeNet Flash » Questions and Discussion » Medical Questions » Positive test, negative bands

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Author Topic: Positive test, negative bands
LosingMyMind
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Hi everyone!

Last year I had a positive Lymes antibody test, however none of the bands were reactive so my neurologist dismissed it. I have been gradually getting worse with my symptoms. Visual snow, anxiety, depersonalization, unable to drive because the road now looks like it's slanting downward and I feel like I am on a roller coaster. I keep getting these moments where I feel like I crazy. Crazy thoughts, crazy feelings.This all started in 2006 after getting so sick. The dr's thought I had strep, but both tests were negative. I was treated with antibiotics and after I stopped all of this mess started. Anxiety out the butt, dizziness. I have also had a thyroid disorder since I was 19, I am now 30. I was wondering, is it possible that my high thyroid antibodies could cause a positive lyme test? Or does the test only pick up lyme antibodies? My neuro really wasn't interested in looking into this and in fact I no longer see him. I started seeing him after I got the visual snow and migraines which were daily. I am now on medicine for that and it has given me back a portion of my life.

Thank you all and God bless!
Candi

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*~Candi~*

Posts: 24 | From Ellenton, FL | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Well, I only know of a VERY FEW (handful) neuros who know anything at all about Lyme.

What test did you have?? Not sure how you got a positive with no bands??

You need to find a Lyme Literate MD and get checked for possible coinfections as well. You could have bartonella and/or babesiosis. Those need to be checked.

I'm moving this to Medical where you will get more info and help. [Smile]

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--Lymetutu--
Opinions, not medical advice!

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Razzle
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Probably a positive ELISA with negative Western Blot...

But the ELISA being positive means Lyme...hard to get a false positive on this.

No, the Thyroid antibodies are not cross-reactive with Lyme antibodies.

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Lymetoo
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That's what I thought. Maybe the ELISA... and YES .. those mean a LOT!! Hard to get a positive on those sometimes!

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--Lymetutu--
Opinions, not medical advice!

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LosingMyMind
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Thank you all for your reply. I was reading online that the Elisa was unreliable because of the false positives it gave.

But I have read everywhere else that usually any positive, even without reactive bands means infection.

Some days I just tell my husband I don't feel like I am going to make it... he thinks I am joking, but I am so serious.

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*~Candi~*

Posts: 24 | From Ellenton, FL | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Very untrue. If you've been reading the CDC site or the ALDF then that is what you might hear. (about false positives) There is a huge controversy surrounding Lyme disease.

Your education begins here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555

PS.. Get a Western Blot thru Igenex Lab. They test for ALL POSSIBLE bands.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LosingMyMind
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Thank you so much. I guess that was one thing I didn't understand. The lab I used must have tested the Elisa, once that was positive, they did the WB, but did test all of the bands. That makes more sense to me! [Smile]

Thank you so much for the link and explaining that to me!

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*~Candi~*

Posts: 24 | From Ellenton, FL | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
   

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