posted
If any of you are like me, you wish someone would've told you about Lyme Disease so you wouldn't have been sick for so long. I was 12 when I got Lyme and am almost 20 now - still battling the disease. The good thing about it all is that it has given me many, many opportunities to tell people and warn them about Lyme.
My latest adventure with making people aware about Lyme will be when I compete in the Miss South Dakota pageant this summer. My platform will be "Lyme Disease Awareness". This is an exciting opportunity since speaking about this will reach hundreds of people.
As I prepare for the pageant, I am in need of some good Lyme Disease statistics. I need to know estimates how many people have Lyme in the U.S., how many people are expected to get it, etc. Please send me what you know!
I also would like prayers about hopefully helping some people who are sick with Lyme and don't know it.
Thanks for the help :-)
Posts: 204 | From Wyoming | Registered: Feb 2003
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hi, Miss
I just wanted to wish you luck with your pageant; I know you'll be able to get the word out, and I really respect you for doing that.
I wouldn't wish this sickness on anyone!
Let us know how you do this summer.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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Page 2 - Editorial Note, 2nd paragraph says: "Surveillance for LD is subject to several limitations. Studies from the early 1990's suggested that LD cases were underreported by 6 to 12-fold in some areas where LD is endemic; the current degree of underreporting for national data is unknown..."
Apparently they are trying to say that their data doesn't show how many cases there are.
ENDEMIC: "Lyme Disease Surveillance Case Definition..." www.cdc.gov/ncidod/dvbid/casedef2.htm "Disease endemic to county - A county in which Lyme disease is endemic is one in which at least two definite cases have been previously acquired or in which a known tick vector has been shown to be infected with B.burgdorferi."
As you know, a speaker can't throw out too many numbers, or you lose the audience, but a few well-chosen statistics can make a big impact.
Hope this is a start for you. Give us updates from time to time to let us know how you're doing.
Good luck!!! and I hope you win!!!
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
WAY TO GO! We need people like you to speak out. Go to www.findarticles.com some good projected statistics, scary though. Lots of good wishes and luck with you're pageant.
Gael
Posts: 121 | From philadelphia | Registered: Feb 2006
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posted
WAY TO GO! We need people like you to speak out about this horrific disease. Go to www.findarticles.com. Good info and projected statistics. Good luck with your pageant, and thankyou.
Gael
Posts: 121 | From philadelphia | Registered: Feb 2006
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bettyg
Unregistered
posted
hi miss SD!
BRAVO! My is off to you! You've got my vote.
I'll come back tomorrow when I can get into my wordprocessor and send you info I typed up in 2004 about lyme disease including IF you would like it: (very detailed ... was made for 4 columns of LEGAL size page and 4 pages in length)
* early symptoms of lyme disease, * later signs & symptoms of lyme, * what is lyme disease? * kids and lyme disease; * diagnosis and sending western blot igm/igg to Igenex lab in Calif. & other stuff needed.
* 9 questions MDs will ask in making a diagnosis; * treatment suggestions; * tick removal; * protection -- what to do & use; * hunters and lyme diseas; * Iowa issues of Lonestari;
* support & info names/addresses/phone nos/ and email addresses;
* books including Lyme Disease Update 2004: Science, Policy, & Law plus the costs.
* Bull's eye: Unraveling the Mystery of Lyme disease by Johathan Edlow, 2003.
* Coping with lymedisease: a practical guide to dealing with diagnosis & treatment, 1997 by seph Territ/Dense Lang.
* Everythign you need to know about LD and other LD tick-borne disordes, 1997, by Karen Forschner.
If you ARE interested SD, please let me know. Otherwise, I won't send it to you.
Also. to send it to you, I'll need your private email address. So just PM me/2 people standing together, and show your private email in this private email between you & me. I'll send it to that address
Also in email topic line, show SEND ME LYME BROCHURE YOU TYPED. Then I know it's NOT spam! Thank you.
Also, I noticed you have DISABLED your PM, private messages. I'd like to suggest you change that from no to YES. Just go to MY PROFILE, and read down the instructions where you can change to YES. hit edit update when done.
PMs go directly into your PRIVATE email at home as well as show the ACTUAL CONTENTS of the PM; saves you time.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol's newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated
YES, I have what you have! Are you on doxy too? That made my extreme eyes 200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board. Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
You will need 2% amber and 10% amber ... Style no. 901 and 910. 1-800-521-9746 TOLL- FREE
mention you have lyme and marshall protocol, they will give you 20% off! Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that's why I currently have LONG addresses vs. short tiny ones! I'll keep trying.
posted
Thanks everyone for all the help. It's great to have a few, solid statistics to help with a platform. I will keep you all posted on how I do!
Charis
Posts: 204 | From Wyoming | Registered: Feb 2003
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Ms. SD, you should contact the folks from the Columbia LD center, in NYC. They desperately need all the PR they can get to get this research center open and to fund the endowment. Please look at the Columbia thread, too.
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Hi Miss South dakota, I am a neighbor in the adjoining state to the south. (Northern part) Just wanted to add my howdy and welcome you aboard since this is the first time I have seen one of your posts, (knowingly).
I am not knowledgeable like all the OTHERs since they are experts here.
I dont know if YOU have read where we have a Lyme Float every year and canoe or kayak a scenic river somewhere in the USA every year.
I sorta got hooked when I did get the opportunity to canoe the Buffalo River in Arkansaw in 2004.(Thanks Melanie!!!)
It was beautiful scenery and magnificent company from fellow people I met on this board. best week of my life, except it was much TOO short!!
Anyway the suggested site for this, this year is the Niobrara river from Valentine east. No matter what part of South Dakota you are from, it is close, relatively speaking, to attend, and have a bit of social setting with fellow lyme sufferers.
Hope to see you there... And my PM is turned on so you could send me a private message if you wanted too. I would think I have daughters close to your age so it may be possible to be a "slightly" adopted daughter also, If you wish, OR NOT!!!
Dont get to meet many lymies from this area as there are a few less of us here that some other places. But what we have in small numbers, we make up in quality!!!
As I have always told people all my life, "NEVER met a 'South Dakotan' yet, I didnt like"!!! Was just there Thursday!!! It was sure rainin' up der!!!
Howdy and welcome and hope you float!!!Cuz I remain --just don-- with a sore head!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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bettyg
Unregistered
posted
Morning, another thing to print off is the heart-warming true story from Paula Langhoff ?, lyme league site owner, written like a poem.
She has her single spaced version in general, and NAN has double-spaced her piece, THE FORGOTTEN. This tells it like it is to family/friends who say BUT YOU DON'T LOOK SICK.
gotta run finding MS info for my friend, got side-tracked but wanted to send you this info too. Bettyg
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posted
Good luck!! I live in South Dakota too and I only know of one other person with Lyme in my area. I'm sure there are many more. Our doctors here could sure use some lyme education!!
Best wishes!! Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Thanks,Kerry
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