LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » My son's platelet count dropped again

 - UBBFriend: Email this page to someone!    
Author Topic: My son's platelet count dropped again
Hoops123
LymeNet Contributor
Member # 18333

Icon 1 posted      Profile for Hoops123     Send New Private Message       Edit/Delete Post   Reply With Quote 
LLMD is not worried about it - says he will always be low. He was fine until about 2 yrs ago when the lyme symptoms started. Will this get better with continued treatment? He is bruising easier now. Hematologist did not have much to offer -
Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
The big question is how low is it?

Also which infections has he been diagnosed with -- I personally think the coinfections affect this number much more than lyme does.

Has he ever taken extra vitamin c -- might possibly help with bruising.

Anytime a doc uses the words always and never I get worried -- nothing in medicine is that exact in my opinion. Actually one of hubby's former docs told us to watch out for comments like that from other docs.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Hoops123
LymeNet Contributor
Member # 18333

Icon 1 posted      Profile for Hoops123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Bea

He was at 229 back in the fall of 2011. Until the last blood draw, he has hovered around 125. Now, he is done to 90.

He is positive for lyme thru igenex and has a positive Igg for west nile. Other coinfections are negative. CD57 was at 31 when treatment started.

Has major OCD and Pandas like symptoms as well. LLMD feels that with lyme treatment they will go away as will other autoimmune issues.

Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Love my kids
LymeNet Contributor
Member # 32876

Icon 1 posted      Profile for Love my kids     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ask your LLMD if you can try some supplements to boost WBC, RBC. I have had very low numbers as well and these helped. Shark Liver Oil to boost WBC and Marrow Plus from Health Concerns for RBC. I also use Immune Blood Cell Booster from Herbal Vitality. Remember, not medical advice, just thoughts. Please check with your doctor.

--------------------
Healing thoughts to you,

L.

Posts: 101 | From USA | Registered: Jul 2011  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thrombocytopenia -- low platelet count -- seems to happen much more frequently with anaplasma/ehrlichia infections and sometimes during babesia treatment.

I think it is much more rare as a lyme symptom. PubMed didn't seem to find much.

Despite the negative tests -- you might want to consider asking the doc to try meds specific to the infections I mentioned to make sure you are not overlooking an infection that could be contributing to the low platelet count.

Personally I think if the lyme treatment has been ongoing for a year the numbers should be at least stable if not increasing -- if lyme was the cause.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Hoops123
LymeNet Contributor
Member # 18333

Icon 1 posted      Profile for Hoops123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bea

I am concerned about babesia. My other son tested positive for babesia and is good now after 4 months of mepron, zith and septra.

I am going to ask the LLMD to take him this son (with the platelet issue and Pandas) off of doxy and put him on zith and seriously consider that babesia may be an issue.

He has never been on zith. Pandas and lyme often go hand in hand from what I have read.

Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have the same problem and it goes up and down. Babs is very hard to get rid of and sometimes the treatment can affect your counts. If you have a good LLMD, one that is ILADS trained and practices as all ILADS doctors do, you should trust that he knows what he are talking about.

Not everyone responds the same with meds. My husband and I are both infected and neither of respond in the same way. We have multiple coinfections.

If you don't trust your LLMD, time to get another opinion.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2680 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
poppy
Frequent Contributor (1K+ posts)
Member # 5355

Icon 1 posted      Profile for poppy     Send New Private Message       Edit/Delete Post   Reply With Quote 
For what it is worth, here is the CDC on ehrlichiosis. Note association between low platelets and this coinfection.

http://www.cdc.gov/ehrlichiosis/symptoms/

Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.