disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm kind of worried...
My husband is starting lyme and co treatment and is starting on Rifampin...
The PROBLEM is that I don't think it's going to work too well because he loves soda... He could NEVER follow the anti-candida diet. He loves soda and he LOVES pasta. The only thing he drinks during the day is soda. Soda after soda after soda... It's like pulling a tooth just to get him to drink water once in a while.
We can double up on probiotics, but still...
What should I tell him?
How is this going to work?
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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there are some wonderful gluten free pastas that your husband would never guess they are from brown rice. While still a carb, being gluten free would be a huge help.
Tinkyada makes some and Trader Joe's also has some. Penne at Trader Joe's Tinkyada has lots. They have a web site.
and- some natural sodas, too. they may still have fruit juice added for sweetness, but would not have the chemicals of regular soda.
Trader Joe's has some wonderful juicey carbonated drinks.
Tell me the brand of soda your husband likes and I'll see if I can find something comparable. I know there is a tasty root beer at some natural foods stores.
All that said, I hope the doctor - or a book - can get through to him the importance of a low sugar food plan (it may be best to not call it a diet).
Also of concern is blood sugar levels with all the soda - but whatever he does, avoiding aspartame/Nutrasweet/Equal is vital. that stuff is very neurotoxic. As is MSG.
- What about getting a soda charger to make your own soda water and adding a bit of dark cherry juice or maybe a root beer concentrate (wonder if there is a natural cola concentrate?).
I'm not sure about carbonated anything, though. that might be hard on the stomach.
And, yes - water, water, water can make the difference in if treatment will work. The liver, the colon . . . our brains . . . all need the water to help detox and hydrate.
What about iced teas that have good flavors. You can look at the site for Yogi Teas. Lots of good strong teas - some are decaf, some not.
And, thinking back to my diet coke dependent days - it was a drug to me. I simply needed it to stay upright but it was part of what also took me down.
Adrenal support may help reduce the need for cola support.
Best of luck to you both. -
-
This book, by an ILADS member LLMD, has a lot of good information:
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by Keebler:
Tell me the brand of soda your husband likes and I'll see if I can find something comparable.
Oh yes, I'm know about Tinkyada and love it. My husband, on the other hand, is VERY picky. He's picky with everything. That's why I'm afraid he won't even try anything that isn't Pepsi... that's what he likes. He does drink diet soda, but still just as sugary/bad as regular.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I think regular soda with sugar is far safer than diet soda. FAR safer. the fake sugars (aspartame/nutrasweet/Equal) are really toxic to brain cells and can cause symptoms very much like MS and ALS.
Still, neighther (sp??) one works with lyme treatment.
It also comes down to a talk from the doctor. I think it's best to come from someone who has seen thousands of lyme patients and tell him what he has seen.
From all we've read (and I can tell you know this), we have to be darn near perfect to have a chance for this treatment to work.
Most of us would walk on mars if we could have a chance. Maybe if your husband really understood the risk he's taking by continuing his habits . . .
and having the doctor treat the underlying reasons for the cola (energy, etc.) . . .
If you have kids, would your husband shell out big bucks to treat a disease that could be life-threatening if a kid continued to eat junk food?
Some analogy might be helpful but I'm not very good at that for a man's brain. He may not know just how serious this is.
posted
He'll have yeast really bad if he continues like that. Gluten free breads/pastas are still carbs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi disturbedme-
Have your hubby pm me and I will tell him what can happen when Candida gets out of control-
I can guarantee you he wont drink another drop of soda or eat another crumb of pasta after I tell him what I went threw with the candida - Jay -
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Goodness, I never drink soda! Make sure he drinks filtered water and skips the soda! For pasta, organic brown rice pasta or sprouted grain pasts should be fine. Personally, I have been avoiding all processed grains and sticking to intact grains such as whole oat grouts, steel cut oats, amaranth, buckwheat grouts, things of that nature. My LLMD is perfectly fine with this. Some sprouted grain foods I eat occassionally now.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
Hey, D, I ate pasta and never restricted it, but I always was sure to get a good amount of protein with it. I never ate carbs without a good, solid protein. I also often use the Tinkyada.
Another thing I do is use coconut oil for everything. At first he might notice a strange flavor, but after while he won't (that's how my husband was).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I guess when most of us made the changes to our way of eating we realized it is really a matter of life and death - and far less pain.
Lyme treatment requires a tremendous life change- and dedicatoin - but it's really the only way it is going to work. Avoiding candida (system yeast) is vital.
A raging candida infection can be horrible and cause many of the devastating symptoms as lyme - even for the brain. (BTW, partners of anyone with any sort of yeast infections should also be sure to take lots of probiotics as yeast can be passed back and forth.)
He has much to gain and only fake foods to loose.
There are still ways to have very delicious foods that nourish our cells.
See books from Amazon: "A Spoonful of Ginger" and "The Cure is in the Kitchen"
The intact non-gluten grains mentioned above - and quinoa (keen-wa) - can be used in small or modest amounts if the candida never gets a chance to develop in the first place.
Some people can't do the 'no grains' at all and require some to help keep blood glucose more stable between meals and to help fuel the brain - along with lots of veggies, proteins and good fats.
disturbedme
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Member # 12346
posted
Thank you all for your suggestions.
My husband is very stubborn and he won't listen to me. I keep telling him that he can't have soda and take abx... but he doesn't understand. He thinks that if he only takes half of what he usually drinks (which would still make it nearly 3 or even 4 soda's a day!!!) that it would be fine. He told me that he'd only listen (maybe) if the doctor told him he has to change his diet or what he drinks.
I try to tell him what you've all told me and what can happen to a person if they consume too much sugar with antibiotics, but he just doesn't listen. He's hard-headed and thinks that it doesn't apply to him.
I told him that if that's the case, we should just go with herbal treatments and not antibiotics. Sadly, I just don't think it's going to work.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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disturbedme
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Member # 12346
posted
Thanks, Lymetoo!
I PMed Jay.
I hope his PM and my LLMD talking to him will get through to him, but I don't have high hopes for it... he's just soooo stubborn, no matter what sometimes.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Oh, so sorry.
And - are you sure you are going to an LLMD? I can't imagine a doctor not covering this before a patient begins lyme treatment.
It may not be clear, the scope of the infection and how hard it is to treat, under the best circumstances.
This is not meant as an insult. It just may take him a little while to understand the seriousness of lyme - most of this is because it's seen as no big deal to most doctors and a sort term blip on the screen.
Has your husband read the ILADS guidelines? www.ilads.org - I know I just posted the Singleton book the other day, but that really helps explain this.
Has he been able to talk to other patients who have battled this?
To go with herbals requires the same dedication to food choices, sometimes even more so.
You are in a difficult position. Does your husband have a LLMD? If so, most have patient care suggestions on a page or two or refer them to a particular book.
I think this will have to come from the doctor, but even then it sounds like your husband would still want to take the easiest way out. (But it won't work - we are here to tell you that - don't think many of us did not try that. It took me TEN years to get over candida infections because I never knew all about it.)
Again, this is not meant to be an insult or make you sad. It's natural. Who wouldn't unless they really understood the complexity of this. And - the sodas probably give a false sense of energy. Until that is addressed, it may be like ripping his battery out.
Singleton explains how to work with energy and adrenals/endocrine.
It took most of us a long time before we realized that we were in way over our heads - because there was no one around to guide us - and no doctors had a clue.
So, it is a natural human response to say "no big deal" to something that has had zero importance in the field of medicine except for a few specialist that have dedicated their lives to this. That goes for systemic candida infections as well as for lyme/TBD.
Finding others who have gone through this might help.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Keebler -
I am pretty sure he's like this because he's a pretty functional person, thankfully. It hasn't gotten to him to make him as extremely sick as it made me or most of the people here.
I think because of that, he doesn't see how terrible and hard it can be. He has seen what it can do because he's seen me suffer for a year and a half, almost two with it... But even so, I don't think a person really gets it until they go through it themselves and since he's so functional still, he just doesn't grasp it...
It's upsetting, it really is... Sadly, there's too many people out there who have the same logic in thinking as he does.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Thanks for you PM. I am just exhausted now, so I'll ask here for anyone to share suggestions for natural sodas.
I guess it'd be good to know the attraction, such as:
- taste
- kick from caffeine
- kick from sugar
- feeling of the bubbles and sensation in the mouth
-- Is it just COLA or would other flavors work? Root Beer would be easy to come up with from (maybe from sarsaparilla, I think, but a similar word also starting with an "s" and they have tinctures of it)
I'd start with a Trader's Joe's or a natural food's grocery. Hansen's is one brand BUT they often have white grape juice which is too sugary. I'm thinking stevia.
and, here is what I'm wondering - maybe someone has figured this out.
the cola is a mixture of sugar and WHAT? A plant extract (or artifical flavors).
If you can get a cola extract (before sugar and chemicals are added) then get a soda charger for your own soda water and add a drop of stevia to the cola extract might this work?
I do know, though, that the carbonated water itself can be hard on a stomach lining, but it's a step and then maybe a better solution later such as storing it in a pitcher in the fridge and some bubbles dissipate.
-
Any cola experts out there?
==============
I took a glance at some root beer extracts sites, but they only list "natural flavors" - that's not always natural at all. I'd want specifics and the cleanest source I could find.
I say that knowing that I need to stop drinking cokes (that's what we call them down here ).
My vise is dr. pepper. I only drink about 1 every other day, but I know it would be better if I drank 0.
So I hope you can reason with him and at least get him to cut it down DRASTICALLY.
Posts: 248 | From Tejas | Registered: Jun 2007
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Angelica
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posted
I have a friend who is an admitted sugar addict at times and no it is not me. Mysteriously with the help of antibiotics and malaria meds she is getting better and is back at work.
I am not saying anyone should eat sugar but maybe your husband will get better even if he refuses to change some of his old habits.
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Hoosiers51
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Member # 15759
posted
Maybe it will be more persuasive for him if he notices yeasties popping up in the form of bad breath or increased body odor, etc. (sorry, not that I am wishing that on anyone!)
While I don't drink soda, sometimes I go overboard with sweets and if I notice bad breath, etc.......that's my wake up call to back off.
But if he notices something like that.....sometimes actually experiencing it for yourself is believing. Maybe at that point your gentle suggestions will be worth more, Ash!
Good luck!
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