Topic: Our Beloved Member Charlie is in the Hospital
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Charlie is in the hospital in Texas with a diagnosis of Congestive Heart Failure. He and his wife Jenny are unconvinced that is the real issue, and are pushing for answers.
I am awaiting an email back from Jenny to see if it's okay to give out his address for cards. For now let's keep Charlie and his wife Jenny in our prayers!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
charlie,
best wishes to you; my late dad had congestive heart failure for 20 PLUS YEARS!!
he also was never diagnosed for lyme disease but had it at least 80 YEARS!!
my thoughts and prayers go to you jenny and charlie during this time.
thanks tracy for posting this for lymenet members
charlie has such a wonderful sense of humor; i receive a few of his golden goodies in regular email.
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
I have a feeling Charlie will be reporting in here himself in the not too distant future.
it doesn't sound likely that he has congestive heart failure, and other truly awful possibilities seem to be ruled out.
Charlie thinks he relapsed several months ago after being blasted by a neighbor's indiscriminate use of insecticide.
Here's hoping that pain relief and sleep are at hand, and a full recovery not far behind.
dill
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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They say it happens at early stage, but that is probably because they don't recognize the late stage.
Posts: 8430 | From Not available | Registered: Oct 2000
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I did a bit of reading to learn more. Like other labels...the symptoms are a lot like we deal with all the time with lyme and company.
Sounds like meds help with this but does not cure it.
Wondering how Charlie knew or his doctor that it was CHF.
Such a scary sounding dx. Are you scared Charlie??
I think I would be.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
again...its not at all clear that Charlie has CHF.
He was admitted with that diagnosis, BEFORE examination/tests-- admissions folks have to write down some best guess.
i believe the diagnosis was later modified.
whatever is going on, it sounds like it has been no fun at all for some while.
Hugs to Charlie and Jenny and hoping to hear more soon.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Being in the hospital for ANY reason is always upsetting. Hang in there Charlie. My best to both you and Jenny.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Thinking of you. Hope you get answers soon!
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Charlie and Jenny,
Am praying for you both! Let us know how everything turns out.
Joann
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6205 | From Columbus, GA | Registered: Jul 2004
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posted
Hi Charlie, Wishing you a quick recovery. Thinking about you! Posts: 677 | From Virginia | Registered: Sep 2002
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
My best wishes to you Charlie - I don't know you, but I certainly feel for you. I hope that you can be as comfortable as possible while you are there, and that you receive truly thorough care and concern.
I hope you experience a miracle and have someone on the hospital staff working with you that is truly Lyme-literate.
Hey, it could happen!
Sending my good thoughts your way. I hope you feel much better soon, and can go back home.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Get out of that bed Charlie!! Wishing you a speedy healing...
P. S. nurses love humor..keep em laughing. Good for your liver also
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey Charlie and Jenny hope things settle down and you're felling better soon.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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1: Can J Cardiol. 1996 May;12(5):503-6.Click here to read Links
Comment in: Can J Cardiol. 1996 Nov;12(11):1146.
Cardiac manifestations of Lyme disease: a review. **************************************************************
Nagi KS, Joshi R, Thakur RK.
Arrhythmia Service, University Hospital, London, Ontario.
OBJECTIVE:
To describe the clinical features of cardiac manifestations of Lyme disease, the most common vector-borne illness in North America, which occasionally results in cardiac involvement.
DATA SOURCES:
A review of the English-language clinical literature pertaining to Lyme disease and Lyme carditis indexed in MEDLINE from 1975 to 1995.
DATA EXTRACTION:
Studies describing diagnosis, clinical features, treatment or outcome were reviewed.
DATA SYNTHESIS:
Cardiac complications of Lyme disease may occur in up to 8% of patients.
Cardiac manifestations occur in the early phase of the illness, at a median of 21 days from the onset of erythema migrans.
Temporary cardiac pacing may be required in up to a third of cases and complete recovery occurs in most (greater than 90%) patients.
The overall prognosis of Lyme carditis is very good, although recovery may be delayed and late complications such as dilated cardiomyopathy may occur.
CONCLUSION:
Lyme disease is a tick-borne spirochetal infection caused by Borrelia burgdorferi.
Cardiac complications of Lyme disease generally occur in the early phase and include conduction system disturbances, myopericarditis and congestive heart failure.
PMID: 8640597 [PubMed - indexed for MEDLINE]
no copyright shown....
thanks lou for this most informative pub med article! hugs
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Liver? That's not so good either. You need that too. At least the liver can regenerate itself & people can get transplants.
Hey, if you have to get on a transplant list, that's probably a good time to have the ducks not believe that you could still have Lyme disease.
I'm glad to hear that Charlie seems to be holding onto his sense of humor. That's got to be a good sign!
I hope we'll see him posting again soon.
Hugs & Prayers for both Charlie & Jenny, Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Prayers sent.
Please keep us all updated.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
charlie will likely be out of the hospital tomorrow, no thanks to his doctors.
hopefully Jenny or Charlie will post here or at Lyme Friends soon...
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Here is the update I got from Jenny today, no mention of the actual diagnosis they may have changed it to. She mentioned liver issues yesterday as well, however there was a lot of information and mostly questions so what I reported was his "admitting diagnosis", which is generally always their "best guess."
From Jenny:
Hi All, Just praying they'll drain Charlie's abdomen early tomorrow morning. He's very much looking forward to coming home.
Would say he's pretty discouraged tonight. I have given him some of the Email you've written and it's helped him, but don't know how to get into LYme Friends...and I'm just too tired to learn now. Thanks for your Email and prayers.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Also, we are taking a collection to send Charlie something. Paypal donations can be sent to [email protected].
Charlie is always the first and most generous to donate to everyone else. I have emailed Jenny to see what he might like, or maybe someone here might have suggestions; as I'm guessing flowers may not be his thing!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
edited-
I have spoken to Jenny directly and Charlie does not have CHF, period.
Again, he should be out of the hospital tomorrow. If he escapes then, it doesn't mean he's well, just won't be at the mercy of docs who don't have a clue and who don't seem to care much about his best interests.
[ 07-22-2009, 01:35 AM: Message edited by: sometimesdilly ]
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Oh my most generous friends ... I feel for both of you and wish you the best. Hopefully the doctors will figure out what's going on with Charlie, find a solution, do it and send him on the way to better health.
If there's anything we (Angela & I) can do for you, please contact us and we will do it!!!
The best of luck and our prayers for both of you,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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I'm sorry to hear you are in the hospital. I can imagine how much fun that is for you!
I hope to hear you are better soon.
(I just spent 10 days in the hospital with Jake.)
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Charlie,
Been thinking about you!!!! Hoping for a swift recovery so you can crack us up in chat again soon....
Posts: 4590 | From Midwest | Registered: Jun 2008
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I'll be prayin' for ya, Bat Pancreas, Buzzard Breath...miss you
Posts: 2903 | From AZ | Registered: Feb 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Looks like Charlie was probably spot-on about his exposure to insecticide..... he isn't the first on this board to have a severe problem or relapse from someone's careless spraying of chemicals.....
Very sorry, Charlie...... I pray there's a doc out there to help you reverse the effects of this problem. Hope you get home today.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi Charlie,
Thinking of you, sending my best wishes to you and Jenny, hoping you are out of that hospital and feeling better soon.
If you were exposed to toxic insecticide -- it could be a reaction to toxic chemicals? Could it be a lyme relapse?
Take care and I hope you are working with a good doctor/llmd on this one. Wishing you the best and also glad that it is not CHF! Hugs & kisses.
Posts: 2557 | From home | Registered: Aug 2006
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
We are going to send Charlie a fruit basket, as suggested by his wife when asked! He needs to begin healthier eating so she said it would be great.
We'd like to get it there ASAP as he is to be discharged today. Please send contributions if you like, even $5 would be great, to MerryGirl38@hotmail via paypal.
Thanks everyone for showing Charlie some love! Also his wife said he would LOVE cards, so I am going to give his address to BettyG to distribute to those interested in sending a card.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Wiki says that ascitis is 80% due to liver problems. He may have to give up the brew.
Posts: 2903 | From AZ | Registered: Feb 2006
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
.....Thanks so much everybody. I got home late yesterday and I'm attempting a sleep-a-thon to make up for days and weeks of no rest, just misery. (I'm having to make faaaar too many corrections while I type to convey much with clarity)
I'll be back as soon as I'm rested enough to give a somewhat coherent update and the profuse thanks I owe all of you.
The ticker is fine, that was expected.
The liver found whatever happened as a bit off-putting, but will be fine with a bit of TLC.
and the kidneys are not hurt (WHEW),,, which is the biggie I was worried about. I can't sit still thru a newscast much less dialysis.
Again thanks, I love you all and I'll be back with duckens and a 'tale of ascities' ...prolly before you know it, and no I won't put a pic of my giant tum on lymefriends.
hugs to everybody
Charlie Posts: 2804 | From Texas | Registered: Oct 2000
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bettyg
Unregistered
posted
charlie, YOU are back with your wonderful sense of humor!!!
so glad to see you wrote yourself, and get many hours of good sleep in yoru own bed!! hugs/kisses to you and jenny ....
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posted
Hi Charlie - I haven't been on here much, but saw this today - glad you are feeling a little better. you might want to google for the Environmental Health Network - they deal with pesticide exposure.
Posts: 13117 | From San Francisco | Registered: May 2006
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Hi Charlie & Jenny - Sending prayers and hugs your way.
Charlie, hope you are feeling better and have a speedy recovery.
Jen
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Ahhhh....what a relief to hear from you Charlie!!! So glad you are home. Enjoy your sleepathon.... if you happen to wake up late at night you know where to find us on chat!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
charlie--- (only 8 kisses allowed, i see)
dill
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
ah, Charlie, great to hear the update "straight from the horse's mouth" so to speak
Having to give up one/some of life's pleasure's sucks, though. Love, Julie
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Glad to have you "home" again!
I hope you're getting plenty of rest & not partying! (just kidding )
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Welcome Home Charlie!!!
Gotta keep all Texas boys up and running. Missed you and glad you're back!
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Get Well Soon--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
up
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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