Topic: How long sick, before you knew you had lyme?
BostonLyme2005
Unregistered
posted
Hey Guys,
What is the average time you were ill for, before finding out for sure, no questions asked, that you had lyme??
I have been ill for just over a year now, been on meds four times, felt good at some times, like it went away, then came back...I have stopped today for seven days so I can send a test to Igenex, then back to the Amox, 1500mg's a day..I have felt my energy increase at times, then other times, I felt like crap! I guess this must be the herx. If I do too much physical activity, I may become burnt out, but usually after a solid nights sleep, I am feeling better. My legs seem to vibrate more these days, maybe because they are dying and making me suffer a bit...It did stop mostly for a few weeks, then comes back...I see the LLMD on Nov, 9.
posted
3 years
Posts: 638 | From Wroclaw, Poland | Registered: Mar 2004
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Nearly three years
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
me - 39 yrs., my daughter - 17 yrs., my son - 16 yrs. (they have congenital lyme)
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
20 yrs
1500 mg of amoxy is less than ILADS recommends I believe-you may want to google burrascano guidelines
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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(It doesn't seem possible that I'm old enough to say such things.... ">25 years" Mentally I think & 'feel like I'm still in my early 20's -- but physically... my body feels like I'm in my late 80's!)
-------------------- DR. Wiseass NOT a real doc - just a real wise Posts: 792 | From USA | Registered: Jan 2005
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-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Nine years for me Posts: 2549 | From never never land | Registered: May 2005
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posted
I'm the baby here. Was feeling cruddy for about a year then finally got VERY sick a year ago in June. So, a year before diagnosis.
-------------------- Sure I feel like death warmed over, but I just saved a TON of money on car insurance switching to GEICO!!! Posts: 9 | From MN | Registered: Oct 2005
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
17 years. Now at 20, and just getting proper treatment.
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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quote:Originally posted by BostonLyme2005: Hey Guys,
What is the average time you were ill for, before finding out for sure, no questions asked, that you had lyme??
I have been ill for just over a year now, been on meds four times, felt good at some times, like it went away, then came back...I have stopped today for seven days so I can send a test to Igenex, then back to the Amox, 1500mg's a day..I have felt my energy increase at times, then other times, I felt like crap! I guess this must be the herx. If I do too much physical activity, I may become burnt out, but usually after a solid nights sleep, I am feeling better. My legs seem to vibrate more these days, maybe because they are dying and making me suffer a bit...It did stop mostly for a few weeks, then comes back...I see the LLMD on Nov, 9.
posted
I would have to say about 20 years before diagnosis and 2 years of treatment.
Posts: 649 | From United States | Registered: Dec 2003
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posted
It is unbelieveable how this bacteria can stay long wothout dying or killing host. I wonder how it happens, does it contols it`s population in a body ? if body can kill it somehow than why do not kill it to the end, eradicate to zero?
Posts: 638 | From Wroclaw, Poland | Registered: Mar 2004
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
37 years
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
10 years
1 year of treatment. Stopped abx last November - and am perfectly ok now.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Sick since April 1997. So 8 1/2 years. Diagnosed July 2005. On treatment just over 2 months.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
12 years misdx. 2.5 years in treatment. It'll be 15 years total in March.
Posts: 925 | From California | Registered: Sep 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I was very fortunate. 10 days after coming down with flu-like symptoms, fatigue and unbelievable pain in all my joints, I went to my PCP and told him I thought I had food poisoning because something very bad was attacking my body.
He listened to all my symptoms and told me, no does't sound like food poisoning, I think it could be lyme disease. Told me not to worry, we caught it early. Started me on the doxy by the old doc book. Added amox, ampicillian, zitro in there the first 2 months.
It was too late. Chronic stages from the onset. That was summer of 99. As bad as it's been, I can't even image going through all that and not having any answers or support for years like most of you. God blessed with a lyme literate doc, he just couldn't fix it. He tried.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6479 | From Louisville, Ky | Registered: Jan 2002
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posted
Sick about 8 months now. Determined Bb, Babs 2 months after tick discovered from all the symptoms and available test results (joke). At this point I realized that complete idiots and dishonest SOBs are licensed to practice medicine in Oregon. I don't know how many times I mentioned the tick, the rash, etc. to (so called) physicians here and getting blank stares for my efforts. This is Oregon with elk and deer running everywhere and certain areas are just infested with ticks.
Thank god for this site and others like it. The accumulated knowledge here is absolutly priceless, the quackes in Oregon have none.
Posts: 33 | From Oregon | Registered: Sep 2005
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WildCondor
Unregistered
posted
10 years of misdiagnosis and undertreatment before the docs finally figured out the true cause...Lyme, babesia, and bartonella.
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posted
13 years, but before this I had problems as a child and tenager that were unexplaiable and now linked to Lyme so I can say more realisticall the number is more 30 years....
Posts: 437 | Registered: Sep 2004
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posted
I don't really know..Living in Chicago(born and raised) and going back and forth to a family farm in Wisconsin ... i can go back as far with certain symptoms and being bit by ticks since i was 2 because this farm had a gazillion ticks everywhere ..it was on 120 acres.... i wasn't diagnosed til 1989 and i had bells palsy and a stroke in 1986.. and before that i had numerous panic attacks and stomach problems and alot of neuro problems and strept throats.. even in 1989 they gave me the wrong meds for 2&1/2 yrs.. 1995 i was given only 3 wks of IV rocephin.. now in 2005 i am taking doxy.. my brain is so messed up i can't count how long i can even figure i have had this..(maybe i just don't want to know :<))along time let's say.. very long...tooooooooooooooooooooooooo long.... too many drs OKKEEEEEEE let's NOT go there ...lol
Posts: 6 | From USA | Registered: Feb 2003
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posted
It's really just a quess but over 30 years. Had a lot of misdiagnosis and symptoms treated but dx'd with MS 3 years ago. I told the duck something has got to be causing me to be sick for sooooo looooong so will you run some tests? No! Or try a month of antibiotics such as Doxy to see if it helps me? No!
So Bye Bye to the duck who quacks whatever the BigPharma Cartel tells him to quack! I'm just starting treatment with a LLMD who dx'd Lyme 3 weeks ago.
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Or try a month of antibiotics such as Doxy to see if it helps me? No! ![[bonk]](graemlins/bonk.gif)
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